1. Self-care & Retention June, 2012

2. Visit www.incarecampaign.org Pop-up Question What do we mean by Self Care? Self-care and Retention

3.  Potent ARTs have transformed HIV into a chronic manageable disease  Many similarities to other chronic diseases but also important differences (stigma, drug resistance)  HIV therapy is life long  Treatment strategies must be sustainable  HIV patients have day-to day responsibilities for their care  Providers must support motivation, tools, and skills Aberg J. The Changing Face of HIV Care: Common Things Really Are Common. Ann Intern Med. 2006;145(6):463-65 HIV as a Chronic Condition Self-care and Retention

4. YOU

5. “The ability of patients with chronic illnesses, in a complementary partnership with their health care providers, to manage the symptoms, treatment, lifestyle behavior changes, and the many physical and psycho- social challenges that they face each day.” A composite of definitions in the literature What is self-care? Self-care and Retention

6.  Learn about their HIV disease  Develop effective communication skills  Actively partner with providers in decision-making  Practice action-planning and problem solving  Self-monitor symptoms and follow treatment directions  Seek expert medical care and advice  Use family, peer, and community support resources  Maintain emotional and psychological balance  Practice health-enhancing behaviors What is self-care for people with HIV/AIDS? Self-care and Retention

7. Visit www.incarecampaign.org Pop-up Question Do you practice self care? How? Self-care and Retention

8. Personal. [e.g. disease knowledge, perceived illness, acceptance] Structural [help remembering appointments, transportation] Financial [insurance, public support – housing, food, etc.] For more information about self-care, visit the NQC web site: http://nationalqualitycenter.org/index.cfm/5943 Self-care and Retention in HIV Care Self-care and Retention

9. Improve knowledge about HIV; dispel negative beliefs Improve your health literacy – your understanding of HIV care Connect with others who can share information, answer questions and provide support Visit www.incarecampaign.org – “Resources Tab”www.incarecampaign.org to learn about effective retention initiatives. Things You Can Do to Improve Self- Care – Personal Changes Self-care and Retention

10. Visit www.incarecampaign.org – “Resources Tab”www.incarecampaign.org to learn about effective retention initiatives. Reminder calls or texts Transportation or other supports Insurance that enables routine access to health care; know how to use care Things Others Can Do to Support Your Self-care Self-care and Retention

11. Visit www.incarecampaign.org Pop-up Question What do you do to improve your ability to take care of yourself? How do you engage others to support your self-care efforts? Self-care and Retention

12. Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: info@incarecampaign.org  It’s free  Avilable through the National Quality Center  Use if for your group of HIV+ peers Check Out the “Making Sure” Curriculum Self-care and Retention

13.  Learn how to define “quality.”  Learn about “clinical indicators” to measure quality care.  Learn problem-solving and communication skills.  Learn to be your own self-care advocate. Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: info@incarecampaign.org A Tool to Help Improve Self-Care Self-care and Retention

14. www.incarecampaign.org Click the Partner Tab Connect with Partners in+care  Learn about retention in HIV care  Learn about self-care  Link to and learn from others living with HIV/AIDS Self-care and Retention

15. Visit www.incarecampaign.org – “Partners” Tab – Partners in+care Toolkitwww.incarecampaign.org Join the Partners in+care Network  Email notices and updates about Pi+c and in+care Campaign  Provide advice [Pi+c surveys] +Sign up to Be a Partner in Care Self-care and Retention

16. Directly Connect through Partners in+care on Facebook  Share tips, stories, experiences & resources  Community of people living with HIV/AIDS and allies  Secure and confidential  Join. Send email to incare@NationalQualityCenter.org – Facebook in subject line incare@NationalQualityCenter.org

17. Campaign Headquarters: National Quality Center (NQC) 90 Church Street, 13 th floor New York, NY 10007 Phone 212-417-4730 Visit Web www.incarecampaign.org - “Partners” tab www.incarecampaign.org Sign up for Pi+c Network www.incarecampaign.org – “Partners” tab www.incarecampaign.org Join Facebook Send email to incare@NationalQualityCenter.org – “Facebook” in subject line incare@NationalQualityCenter.org