1. Emergency Preparedness Belongs to Everyone Suggestions on Behalf of Individuals with Developmental Disabilities

2. Events that Have Placed Emergency Preparedness & Disabilities on the Front Burner 9/11 9/11 Hurricanes Katrina, Gustav, Ike Hurricanes Katrina, Gustav, Ike Katrina Aid today initiative Katrina Aid today initiative HHS/DHS conference summer 2006 HHS/DHS conference summer 2006 Targeted Capabilities Work Groups Targeted Capabilities Work Groups State level initiatives State level initiatives

3. Treatment of Individuals with Developmental Disabilities: Analysis Post-Katrina Save and manage individuals with developmental disabilities Save and manage individuals with developmental disabilities Their individual preferences not necessarily considered Their individual preferences not necessarily considered Opportunities to contribute in planning, response, and recovery activities by individuals with developmental disabilities episodic and extremely limited Opportunities to contribute in planning, response, and recovery activities by individuals with developmental disabilities episodic and extremely limited

4. What Needs to Happen Personal education and responsibility Personal education and responsibility Participation in neighborhood activities Participation in neighborhood activities Participation in community activities Participation in community activities Representation on community-level planning groups Representation on community-level planning groups Participation and representation at the State level Participation and representation at the State level

5. Neighborhood Ideas that Can Grow Find lists and share Find lists and share Have meetings to brainstorm Have meetings to brainstorm Make “go kits” Make “go kits” Make up contact numbers to carry Make up contact numbers to carry What do you need to stay at home What do you need to stay at home How do we help each other How do we help each other

6. Community Preparedness Influence notification procedures Influence notification procedures Influence “locate” process Influence “locate” process Checkout shelters, find out about needed stuff and put near or in shelters in advance Checkout shelters, find out about needed stuff and put near or in shelters in advance Identify volunteers to help out in shelters Identify volunteers to help out in shelters Help design forms that make sense Help design forms that make sense Know who to call for what Know who to call for what Take neighborhood ideas to community planning meetings Take neighborhood ideas to community planning meetings Expect/request public education and awareness activities Expect/request public education and awareness activities Get everyone involved Get everyone involved

7. State Level Share guidelines on plain language [use a “Google” search for a ton of resources – www.google.com] Share guidelines on plain language [use a “Google” search for a ton of resources – www.google.com] Appoint individuals with developmental disabilities to planning committees and advisory boards Appoint individuals with developmental disabilities to planning committees and advisory boards Use individuals with developmental disabilities during a disaster as advisors, advocates, mentors, and helpers Use individuals with developmental disabilities during a disaster as advisors, advocates, mentors, and helpers Maintain up-to-date information on where resources are located Maintain up-to-date information on where resources are located Maintain up-to-date directories Maintain up-to-date directories Encourage and sponsor drills on a regular basis Encourage and sponsor drills on a regular basis Develop and sustain a public awareness campaign that lets people know what to do and where to go for help Develop and sustain a public awareness campaign that lets people know what to do and where to go for help Encourage and support a decentralized, but connected, web of support that begins at the neighborhood level and expands to the state Encourage and support a decentralized, but connected, web of support that begins at the neighborhood level and expands to the state Take a functional approach to helping, based on universal design Take a functional approach to helping, based on universal design

8. Functional Approach to Preparing for and Helping People Based on Universal Design Ask questions that allow you to make decisions Ask questions that allow you to make decisions Ask the person the questions Ask the person the questions Ask questions only once Ask questions only once Keep people where they land with people they know Keep people where they land with people they know Create a routine Create a routine Give lots of updates Give lots of updates Give people something to do with their time Give people something to do with their time Connect people with others who can help them plan and decide what they will do when they leave Connect people with others who can help them plan and decide what they will do when they leave Mobilize resources to secure what people expect Mobilize resources to secure what people expect

9. Last Word Individuals with developmental disabilities deserve and expect what all of us deserve and expect – Individuals with developmental disabilities deserve and expect what all of us deserve and expect – To be included To be included To be heard To be heard To influence To influence To help To help To know what’s happening To know what’s happening To know what to do To know what to do In planning for and responding to disasters in communities

10. Resources: Federal ADD Emergency preparedness is an ongoing process. Please check ADD’s website frequently for updated links. www.acf.hhs.gov/programs/add. Emergency preparedness is an ongoing process. Please check ADD’s website frequently for updated links. www.acf.hhs.gov/programs/add. www.acf.hhs.gov/programs/add Emergency Management Conference web site: http://www.add-em- conf.com Emergency Management Conference web site: http://www.add-em- conf.comhttp://www.add-em- conf.comhttp://www.add-em- conf.com

11. Resources: Federal Department of Homeland Security Disability Preparedness Resource Center: http://www.disabilitypreparedness.gov/ Disability Preparedness Resource Center: http://www.disabilitypreparedness.gov/ http://www.disabilitypreparedness.gov/ Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities (ICC) Interagency Coordinating Council on Emergency Preparedness and Individuals with Disabilities (ICC) –ICC Website http://www.dhs.gov/xprepresp/committees/edito rial_0591.shtm http://www.dhs.gov/xprepresp/committees/edito rial_0591.shtm http://www.dhs.gov/xprepresp/committees/edito rial_0591.shtm FEMA Disability Preparedness Information http://www.disabilitypreparedness.gov/ FEMA Disability Preparedness Information http://www.disabilitypreparedness.gov/ http://www.disabilitypreparedness.gov/

12. Resources: Federal National Council on Disability National Council on Disability Saving Lives: Including People with Disabilities in Emergency Planning http://www.ncd.gov/newsroom/publications/2005/saving_lives.htm Saving Lives: Including People with Disabilities in Emergency Planning http://www.ncd.gov/newsroom/publications/2005/saving_lives.htm http://www.ncd.gov/newsroom/publications/2005/saving_lives.htm Department of Justice An ADA Guide for Local Governments: Making Community Emergency Preparedness and Response Programs Accessible to People with Disabilities http://www.usdoj.gov/crt/ada/emergencyprep.htm An ADA Guide for Local Governments: Making Community Emergency Preparedness and Response Programs Accessible to People with Disabilities http://www.usdoj.gov/crt/ada/emergencyprep.htm http://www.usdoj.gov/crt/ada/emergencyprep.htm A Report on Special Needs Issues, Efforts and Lessons Learned http://www.eadassociates.com/SNreport-dr1391.doc A Report on Special Needs Issues, Efforts and Lessons Learned http://www.eadassociates.com/SNreport-dr1391.dochttp://www.eadassociates.com/SNreport-dr1391.doc

13. Resources: National Organizations Emergency Preparedness Initiative of the National Organization on Disability Emergency Preparedness Initiative of the National Organization on Disability Emergency Preparedness Initiative Guide for Emergency Managers, Planners and Responders http://www.nod.org/resources/PDFs/epiguide2005.pdf Emergency Preparedness Initiative Guide for Emergency Managers, Planners and Responders http://www.nod.org/resources/PDFs/epiguide2005.pdf http://www.nod.org/resources/PDFs/epiguide2005.pdf Report on Special Needs Assessment for Katrina Evacuees (SNAKE) Project http://www.nod.org/index.cfm?fuseaction=feature.showFeature&Fea tureID=1588&C:\CFusionMX7\verity\Data\dummy.txt Report on Special Needs Assessment for Katrina Evacuees (SNAKE) Project http://www.nod.org/index.cfm?fuseaction=feature.showFeature&Fea tureID=1588&C:\CFusionMX7\verity\Data\dummy.txt http://www.nod.org/index.cfm?fuseaction=feature.showFeature&Fea tureID=1588&C:\CFusionMX7\verity\Data\dummy.txt http://www.nod.org/index.cfm?fuseaction=feature.showFeature&Fea tureID=1588&C:\CFusionMX7\verity\Data\dummy.txt SABE: www.sabeusa.org [Self-Advocates Becoming Empowered] SABE: www.sabeusa.org [Self-Advocates Becoming Empowered]www.sabeusa.org

14. Resources: National Organizations AARP We Can Do Better: Lessons Learned for Protecting Older Persons in Disasters (Summary) http://add-em-conf.com/confdocs/AARP_summary- doing_better-seniors_and_disasters_2006.pdf We Can Do Better: Lessons Learned for Protecting Older Persons in Disasters (Summary) http://add-em-conf.com/confdocs/AARP_summary- doing_better-seniors_and_disasters_2006.pdf http://add-em-conf.com/confdocs/AARP_summary- doing_better-seniors_and_disasters_2006.pdf http://add-em-conf.com/confdocs/AARP_summary- doing_better-seniors_and_disasters_2006.pdf We Can Do Better: Lessons Learned for Protecting Older Persons in Disasters (Full Report) http://add-em-conf.com/confdocs/AARP_full_report- doing_better-seniors_and_disasters_2006.pdf We Can Do Better: Lessons Learned for Protecting Older Persons in Disasters (Full Report) http://add-em-conf.com/confdocs/AARP_full_report- doing_better-seniors_and_disasters_2006.pdf http://add-em-conf.com/confdocs/AARP_full_report- doing_better-seniors_and_disasters_2006.pdf http://add-em-conf.com/confdocs/AARP_full_report- doing_better-seniors_and_disasters_2006.pdf

15. Resources: State New York City Regional Office of Mental Retardation and Developmental Disabilities 9-11 Experience http://www.eadassociates.com/NYCReport4_20_05_Harget t.doc 9-11 Experience http://www.eadassociates.com/NYCReport4_20_05_Harget t.doc http://www.eadassociates.com/NYCReport4_20_05_Harget t.doc http://www.eadassociates.com/NYCReport4_20_05_Harget t.doc The California State Independent Living Center The Impact of 2003 Wildfires on People with Disabilities, April 1, 2004 http://www.eadassociates.com/wildfires.doc The Impact of 2003 Wildfires on People with Disabilities, April 1, 2004 http://www.eadassociates.com/wildfires.doc http://www.eadassociates.com/wildfires.doc

16. Resources: Other Homeland Protection Professional – Special Needs Related Articles Homeland Protection Professional – Special Needs Related Articles Special People, Special Care, March 2006, by Lisa Gibney, Robyn Reese, Ned Wright http://add-em- conf.com/confdocs/special_people_special_care.pdf Special People, Special Care, March 2006, by Lisa Gibney, Robyn Reese, Ned Wright http://add-em- conf.com/confdocs/special_people_special_care.pdf http://add-em- conf.com/confdocs/special_people_special_care.pdf http://add-em- conf.com/confdocs/special_people_special_care.pdf Are We Prepared for the Cost of Preparedness, April 2006, by Elizabeth Davis http://add-em- conf.com/confdocs/Prepared_for_the_cost_of_preparedness.p df Are We Prepared for the Cost of Preparedness, April 2006, by Elizabeth Davis http://add-em- conf.com/confdocs/Prepared_for_the_cost_of_preparedness.p df http://add-em- conf.com/confdocs/Prepared_for_the_cost_of_preparedness.p df http://add-em- conf.com/confdocs/Prepared_for_the_cost_of_preparedness.p df Special Products Section, April 2006 http://add-em-conf.com/confdocs/Spec_Prod_Section.pdf Special Products Section, April 2006 http://add-em-conf.com/confdocs/Spec_Prod_Section.pdf http://add-em-conf.com/confdocs/Spec_Prod_Section.pdf

17. Resources: Other Other Tips For First Responders In Assisting Persons With Disability: http://cdd.unm.edu/products/tips_web020205.pdf Tips For First Responders In Assisting Persons With Disability: http://cdd.unm.edu/products/tips_web020205.pdf http://cdd.unm.edu/products/tips_web020205.pdf Connecticut DD Network: Guide for Including People with Disabilities in Disaster Preparedness Planning: http://www.ct.gov/ctcdd/lib/ctcdd/Guide_final.pdf Connecticut DD Network: Guide for Including People with Disabilities in Disaster Preparedness Planning: http://www.ct.gov/ctcdd/lib/ctcdd/Guide_final.pdf http://www.ct.gov/ctcdd/lib/ctcdd/Guide_final.pdf IAEM Bulletins featuring Special Needs articles IAEM Bulletins featuring Special Needs articles http://www.eadassociates.com/resources.html#gpub http://www.eadassociates.com/resources.html#gpub http://www.eadassociates.com/resources.html#gpub

18. Contact Information Patricia A. Morrissey, Ph.D. Patricia A. Morrissey, Ph.D. –Commissioner –Administration on Developmental Disabilities Administration for Children and Families Administration for Children and Families –U.S. Department of Health and Human Services –patricia.morrissey@acf.hhs.gov patricia.morrissey@acf.hhs.govpatricia.morrissey@acf.hhs.gov –(202) 690-6590