1. Advocacy Project- BC Campus School Shiva Moshtagh

2. About The Campus School… Mission Statement: Boston College Campus School is committed to providing quality education to children with multiple challenges including complex health care needs On campus in Campion Hall Majority of students are non-verbal and are in wheelchairs

3. Goals for Project Allows medical team to get to know the child Facilitates hospitalization process for the non-verbal patient without a parent present Helps nurses learn how to interact with patient and how to provide minimal discomfort for the child

4. My Project Pt Advocacy- Developing a template and/or booklet for the non-verbal child in the hospital setting, particularly geared to those without a parental figure present during the hospitalization allows the healthcare provider to better understand the patient and his/her needs.

5. About the Book On each page there is helpful information about the child, along with pictures showing the student doing their favorite activities with family or friends About Me Page- likes and dislikes, what makes me happy or sad, family & friends, how you can tell I’m in pain/discomfort, I use special signs to say…

6. Sample My name is I will be spending some time at _____ hospital My mom and dad will not be with me These are my friends at school (picture) This is my family (picture) I use special signs to say…. When I get upset, I usually… ________ makes me happy If I appear to be lethargic or irritable… I have a special page about communicating my pain, which I made with my communication teacher Thank you for taking care of me!

7. Ben’s Story Bedside and medical book, “Cheat Sheet”- put pictures of when Ben was happy and healthy Nutrition reports, medical history, neuro reports, previous hospitalizations Classical music = safe time Example: If Ben appears lethargic, check his O2, check lighting, etc If upset, comforted by being held When coughing, let him cough it out a little bit before resorting to suctioning

8. Thank you.