1. Efficiently Finding Elusive Disaster Health Information An Introduction to Disaster Lit SM Cindy Love Siobhan Champ-Blackwell Disaster Information Management Research Center December 10, 2015

2. Agenda About NLM Disaster Information Management Research Center Overview of Grey Literature on Disasters Disaster Lit SM Database Q & A 2

3. NLM Long-Range Plan 2006-2016 NLM will :  Be a partner in Federal disaster preparedness and recovery  Demonstrate how medical libraries and librarians can provide critical disaster information services  Ensure access to health information and effective use of libraries/librarians in disasters  Establish a Disaster Information Management Research Center (DIMRC)

4. Disaster 101  What is a disaster? emergency? catastrophe? public health emergency?  What are the phases of disasters/emergencies?  What do disasters have to do with health care? SO, WHAT IS NLM’s ROLE?  What is disaster health information? Where can you find it?  What is information management?  What is public information? Communications?  What kind of R&D can be done for disaster health information?

5. What’s a ‘Disaster’? Bioterrorism Chemical Emergencies Fires and Wildfires Geological Hazards Disease Outbreaks Radiation Emergencies Weather and Storms Large-scale Humanitarian Assistance Emergencies Large-scale Accidents Casualties from Terrorism, Mass Shootings Mass Migration of Refugees Civil Disturbances Public Health Emergencies Every disaster is a public health emergency.

6. Disaster Health Literature Peer-reviewed scholarly literature Journal articles Books “Grey” Literature Reports Summaries Surveillance data Training materials Conference proceedings

7. Grey Literature Formal definition: “That which is produced on all levels of government, academics, business, and industry in print and electronic formats, but which is not controlled by commercial publishers.” Working definition: Not in PubMed. Disaster Lit: NLM home of grey literature about disaster public health and medicine. 7

8. It’s Everywhere!

9. Managing the Flow of Information

10. Disaster Lit: The Resource Guide for Disaster Medicine and Public Health http://disasterlit.nlm.nih.gov http://disasterlit.nlm.nih.gov Grey Literature –Training –Guidelines –Conference materials –Reports –Fact sheets –Websites

11. Disaster Lit Search Features Search features –Stemming –Boolean AND, OR, NOT –Filters Content –Over 9,000 records

12. Searching Disaster Lit Pre-formulated searches –Disaster Lit home page –Topic Pages –You can add pre-formulated searches to your Website. Demos –Refugee issues –Zombies?!

13. Refugees

14. Zombies

15. What can I do with the results? Sort Change number of records per page Long or short versions of Annotations “Print this page” “Download full record” “Download brief citations” Print/download only selected records, use checkboxes

16. Download Full Record

17. Keeping Track of What’s New in Disaster Lit

18. Mobile Optimized Add icon to home screen: Step One Step Two Step Three

19. Icon on Home Screen!

20. What’s in Disaster Lit? Disaster medicine, disaster public health, public health emergencies, broadly defined From an approved Source

21. We do the ‘CRAP’ test for you * Currency –How recent is the information? –How recently has the website been updated? –Is it current enough for your topic? * Reliability –What kind of information is included in the resource? –Is content of the resource primarily opinion? Is it balanced? –Does the creator provide references or sources for data or quotations? * Authority –Who is the creator or author? –What are the credentials? –Who is the published or sponsor? –Are they reputable? –What is the publisher's interest (if any) in this information? –Are there advertisements on the website? * Purpose/Point of View –Is this fact or opinion? –Is it biased? –Is the creator/author trying to sell you something? 21

22. Evaluating Sources Evaluation is by DIMRC librarians and subject experts Authoritative and credible High-quality content, kept current Includes materials for a professional audience Meets reasonable expectations for Web access, usability, navigation, and availability Includes English-language materials Non-commercial, no advertising, non-advocacy http://disaster.nlm.nih.gov/enviro/envirohealthlinkscriteria.html

23. Tracking Source Evaluations Over 1,900 Source records –1,680 approved Sources, including all 800 U.S. state agencies with disaster-related responsibilities –100 Sources reviewed as ‘top priority’ –220 records documenting Sources not approved

24. Some of the “usual suspects”

25. Selection Guidelines for Materials From an approved Source Emphasis on substantive documents Professional audience English Free or requires free registration Resources NOT already in PubMed or MedlinePlus 25

26. Disaster Lit: Professional Audience All health professionals who may be responding to a disaster or public health emergency outside their regular duties Trained medical and humanitarian volunteers Emergency/disaster planners and responders All responders coping with public health needs Medical Reserve Corps, Community Emergency Response Teams, etc. Those responsible for special needs/vulnerable populations Health care system planners Federal, state, tribal, and local planners and responders Researchers Journalists

27. Tools of the ‘Selection’ Trade

28. Building on Disaster Lit Capabilities Disaster Lit provides 88% of the ASPR TRACIE Technical Resources Library records. Disaster Lit provides a subset of tools for researchers for the NIH Disaster Research Response Project. An API (application program interface) is available on request for using Disaster Lit on your website. The discontinued PEDPrepared database was merged into Disaster Lit. Thinking of starting a database of disaster health information materials? Retiring a database? Ask about using Disaster Lit to ensure sustainability and avoid duplicate effort.

29. Disaster Lit: More than You Might Expect Broad and deep coverage of public health and medical aspects of every kind of disaster Resources from 100s of organizations Robust Web features for easy searching and downloading Use Disaster Lit on your websites: pre-formulated searches, RSS feed Current awareness tool, keep up with disaster-related grey lit Talk with us about using our capabilities to meet your program goals.

30. Thank you! Cindy Love cindy_love@nlm.nih.gov cindy_love@nlm.nih.gov Siobhan Champ-Blackwell siobhan.champ-blackwell@nih.gov siobhan.champ-blackwell@nih.gov Disaster Information Management Research Center http://disasterinfo.nlm.nih.gov

31. Thank you for attending! To receive MLA CE credit: Fill out the online survey for the class at: http://surveymonkey.com/s/disaster_CE. Select the "Monthly Conference Call" radio button in question #1. Once you complete and submit the survey, a link will pop up that will send you to an online MLA CE certificate that you can personalize with your name and the date of the CE for 1 contact hour. The recording and slides will be added online: https://disasterinfo.nlm.nih.gov/dimrc/dismeetings.html