1. Jan Swasthya Sahyog Leprosy Project JSS Health Centre Ganiyari, Bilaspur District Chhattisgarh

2. Background on JSS Jan Swasthya Sahyog (JSS) is a long term partner of AID and has been working on healthcare in the Bilaspur District since 2000 They run a community health program in 50 villages, provide a clinic 3 days a week for more complicated cases and have an in-patient ward and operation theater They are also working on sharing their findings from rural India including highlighting issues of access, chronic hunger levels, cost of drugs and the link between poverty and disease. Dr Jonathan Fine recently visited their site and gave us an update at GBM 2010 http://www.youtube.com/watch?v=4yY_JSO-Dqg ( if time permits)http://www.youtube.com/watch?v=4yY_JSO-Dqg

3. Leprosy – Prevalence in India Leprosy is endemic in the state of Chhattisgarh. The current official prevalence level is about 2 per 10,000 population. Leprosy was eliminated as a public health problem by WHO in 2000 ( less than 1 case per 10,000 persons)

4. CAUSE Leprosy is a chronic disease caused by a bacillus, Mycobacterium leprae (Mycobacterium leprae). M. leprae multiplies very slowly and the incubation period of the disease is about 5 years. TRANSMISSION Leprosy is transmitted by air through droplets from the nose and mouth, during close and frequent contacts with untreated cases. Leprosy is one of the least infectious diseases, because: Over 99% of the population has adequate natural immunity; Over 85% of the clinical cases are non-infectious, and An infectious case is rendered non-infectious within one week, most often after the very first dose of treatment. SYMPTOMS Leprosy mainly affects the skin and peripheral nerves. If left untreated, it can lead to progressive and permanent damage of nerves, leading to loss of sensation and sweating in the extremities and paralysis of muscles in the hands, feet and face. The disease is classified as paucibacillary (PB) or multibacillary (MB), depending on the bacillary load. LEPROSY- KEY FACTS

5. Treatment / Cure Current recommendations : Pauci-bacillary leprosy(1-5 skin lesions): Treat with rifampicin and dapsone for 6 months Multi-bacillary leprosy (>5 skin lesions): Treat with rifampicin, clofazimine and dapsone for 12 months MDT : Multi Drug Therapy- provided by WHO and Novartis for free to all patients in the world (agreement uptill 2010)

6. Leprosy Care at JSS Referred (but new) cases from other doctors in Bilaspur and beyond. Cases who have taken treatment partially from other private doctors, with or without complications. Cases who have taken partial or complete treatment from the Government public health system, with or without complications and / or side effects. Number of new cases of leprosy seen at JSS for the last few years: 2007.........121 cases 2008.........149 cases 2009.........180 cases Although the JSS Health Centre at Ganiyari is not a leprosy hospital or treatment centre, it has attracted and continues to attract a large number of leprosy patients, most of them completely new cases. Some of the other kinds of leprosy patients are:

7. Proposed Budget I propose we give atleast $4000-6000. Can we take a vote ? AID Bay Area – Rs 3,00,000 for JSS Leprosy Project