1. Career and Health Transitions Take Charge of Planning and Managing Your Own Health and Career Goals 1

2. 2 October is National Disability Employment Awareness Month (NDEAM) NDEAM is celebrating its 70 th year and the theme for 2015 is “My disability is one part of who I am.”  NDEAM was created to celebrate the contributions of workers with disabilities and to encourage the employment of people with disabilities, including transition age youth, who face low employment rates.

3. 3 Disability Employment Statistics  Current students with disabilities can expect to face much higher adult unemployment rates than their peers without disabilities.  Young adults with disabilities are three times likelier to live in poverty as adults than their peers without disabilities.  71.7% of Americans ages 16-64 without disabilities are employed, while only 26% of Americans ages 16-64 with disabilities are employed.  The employment rate for youth with disabilities ages 16-19 is 16.6% for youth with disabilities compared to 29.9% for youth without disabilities.  The employment rate for youth with disabilities ages 20-24 is 31.6% for youth with disabilities compared to 65.5% for youth without disabilities. Sources: Guideposts for Success, National Collaborative on Workforce and Disability for Youth, www.ncwd- youth.info/guidepostswww.ncwd- youth.info/guideposts Bureau of Labor Statistics (2014), www.bls.gov/news.release/disabl.a.htm and www.bls.gov/news.release/youth.t02.htmwww.bls.gov/news.release/disabl.a.htmwww.bls.gov/news.release/youth.t02.htm

4. The Need for Transition Improvements Not just 500,000 youth (ages 18-21) with special needs transitioning to adult health care annually … It is ALL ADOLESCENTS who must transition Emerging young adults (ages 18-25) as a group have the highest use of ER among those younger than age 75 Most likely to report no health care visits in last 12 months even with the ACA changes in health insurance. Majority of youth are ill-prepared for this change To go to school or start a career, it is necessary to transfer to adult model of care, while also managing own health care and health insurance 4

5. 5 Achieving Successful Youth Transition Research tells us that in order for youth to transition successfully, it is critical to address the needs of youth in these five issue areas:  Going to and completing school  Preparing for and going to work  Having youth development and leadership opportunities  Connecting to activities, services, and supports to achieve goals and meet individual needs  Having family involvement and caring adults

6. 6 Youth Career Development  Career development is a critical step as we think about employment for youth with disabilities, which addresses how youth prepare for going to work and having careers.  Many young people, particularly youth with disabilities and chronic health conditions, do not have the opportunity to gain work skills and practice work.  Career development is an interactive process of developing skills in three domains.

7. 7 Three Skill Domains of Career Development 1. Self Exploration - Ability to identify personal interests, skills, and values to better understand oneself and inform decisions 2. Career Exploration – Ability to identify and analyze various career options in terms of what education, training, experience, and competencies are required for success 3. Career Planning & Management – Various skills needed to maintain employability and navigate career changes throughout the lifespan (Includes soft skills, career-specific skills, job search skills, financial literacy skills, youth development and leadership competencies)

8. Youth Transition & Health Care  Youth and caring adults cannot only think about career development without addressing connecting activities, such as housing, transportation, financial planning, and health.  Youth cannot successfully get or maintain a job if they do not manage their health care.  Today we will be focusing on issues related to health and why managing health care is so important to achieve success in work and career. 8

9. Career and Health Transitions Alliance Youth Transitions Collaborative The Center for Health Care Transition Improvement (Got Transition) Office of Disability Employment Policy (ODEP) National Collaborative on Workforce and Disability for Youth (NCWD/Youth) 9

11. 11 CENTER FOR HEALTH CARE TRANSITION IMPROVEMENT Health Care Transition: Take Charge of Managing Your Own Health www.GotTransition.org

12. Goal of transition is to optimize health and assist youth in reaching their full potential. Requires an organized transition process to support youth in acquiring independent health care skills, preparing for an adult model of care, and transferring to new providers without disruption in care. Health Care Transition = the process of changing from a pediatric to an adult model of health care. 12

13. Six Core Elements of Health Care Transition 1. Transition Policy 2. Transition Tracking and Monitoring 3. Transition Readiness 4. Transition Planning 5. Transfer of Care 6. Transfer Completion 13

14. 14 www.GotTransition.orgwww.GotTransition.org: one-stop resource center for health care transition

15. 15 Transition QuickGuide: Take Charge of Planning and Managing Your Own Health and Career Goals This information is for youth and young adults, including those with disabilities and chronic health conditions, from ages 12-30. With support from families, health care providers, workforce professionals, and others, young people can gain self-care and decision-making skills to take charge of planning and managing their own health and career goals. Retrieve your own copycopy

16. 16 Speakers  Teresa Nguyen, Health Care Transition Consumer Expert, Got Transition Consultant, teresa.nguyen@ucdenver.eduteresa.nguyen@ucdenver.edu Bethany Boucher, Youth ACT Youth Kathy Kuiper, Youth ACT Adult Partner

17. 17 Who Am I?

18. 18 Transition: What Does It Take? HEALTH EDUCATION EMPLOYMENT SUPPORT NETWORK HOUSING TRANSPORTATION

19. My First Job University of Colorado Boulder - Office of Disability Services Project Manager of accessible campus mapping system for students with disabilities Lessons Learned Health care benefits are confusing! Time to transition-plan is limited because you’re working! Asking for help is a strength 19

20. Employment & Health Understand Your Health Care Benefits Insurance “lingo”: Deductible: the amount you owe for health care services before your health insurance or plan begins to pay. Premium: the amount that must be paid for your health insurance or plan. Network: the facilities, providers, and suppliers your health insurer has contracted with to provide health care services. Do your benefits meet what you need in health care? Emergency plan Portable Medical Summary Insurance Coverage Details Understand Your Needs At Work Accommodations Schedule flexibility 20

21. Employment & Health (cont’d) Finding A New Doctor In or Out of Network? Meet your needs? 21

22. Tips for Success Professionals: Got Transition’s Six Core Elements of HCT Be mindful of the busy life of a young adult: transition is complex and timely. For young adults with disabilities employment can open many doors for independence. 22

23. Tips for Success (cont’d) Young Adults: Preparation is key! Have a conversation with your provider about employment. Got Transition’s Six Core Elements of Health Care Transition Understand YOU and what you need on both ends: employment and health care. Transition takes time and looks different for all. Ask for help! 23

24. 24 Preparing for Success through Healthcare Transition Health Comes First Knowledge Involve others Practice

25. 25 Pediatrics to Adults Switching physicians Taking control of your health information Be Informed on medical providers, medicines and insurance

26. 26 Advocacy Know what you need Know where to find help Build your network

27. Thank You! Questions? 27

28. 28 Contact Information Office of Disability Employment Policy Website: www.dol.gov/odep www.dol.gov/odep Email: odep@dol.govodep@dol.gov Phone: 1-886-633-7365 National Collaborative on Workforce & Disability for Youth Website: www.ncwd-youth.infowww.ncwd-youth.info Email: contact@ncwd-youth.infocontact@ncwd-youth.info Phone: 877-871-0744 Got Transition/Center for Health Care Transition Improvement Website: www.gottransition.orgwww.gottransition.org Email: info@gottransition.orginfo@gottransition.org Phone: 202-223-1500 Youth Transitions Collaborative Website: www.thenytc.orgwww.thenytc.org Email: jqueener@cscn.orgjqueener@cscn.org Phone: 202-454-1220