1. “What’s in it for us?” NICE Guideline: Safe and Effective use of Medicines (Medicines Optimisation) Erin Whittingham Public Involvement Adviser Public Involvement Programme, NICE

2. “What’s in it for us?” Overview of NICE and developing NICE Guidelines Key messages: NICE Guideline on the safe and effective use of medicines (medicines optimisation) Questions

3. The National Institute for Health and Care Excellence (NICE) provides national guidance and advice to improve health and social care. The role of NICE To identify good clinical, public health and social care practice using the best available evidence To help resolve uncertainty for the public, patients, service users and professionals To reduce variation in the availability and quality of practice and care.

4. The Citizens Council: advising on social values The Citizens Council is a panel of 30 members of the public that largely reflect the demographic characteristics of the UK. The Council considers societal and ethical issues relevant to NICE work. For example: -Should NICE take age into account? -Should the NHS pay a premium for treatments for people with rare conditions? -What aspects of benefit, cost and need should NICE take into account when developing social care guidance? Council’s views underpin social value judgements used by NICE committees and other advisory bodies

5. Core principles of NICE guidance Comprehensive evidence base Expert input Public involvement Independent advisory committees Genuine consultation Regular review Open and transparent process

6. The importance to users of services and carers “Confidence in the clinical system” “Confidence in staff looking after me” “Understand what treatment to expect” Better patient experience and outcomes Empowers peoples to make choices about their own care A constitutional right to receive treatment and medicines.

7. The importance for health professionals Guides practice “Brings together what the research tells us in the context of what is already known” “Pragmatic approach to clinical problems seen every day” “Helps me to keep my practice up to date” Health professionals should take NICE guidance into account when deciding what treatments to give people

8. Developing NICE Guidelines – involving the public Referral Scoping Development Consultation Publication Implementation support Local Healthwatch National organisations Users of services, families and carers

9. Patient experience in adult NHS services Medicines optimisation Medicines adherence Drug allergy Overarching NICE guidance

10. Definition of medicines optimisation ‘a person-centred approach to safe and effective medicines use, to ensure people obtain the best possible outcomes from their medicines’

11. Accurately listing your medicines Sharing information about your medicines What should you expect at a medication review? Using a self-management plan Mistakes with medicines

12. Identify Prioritise Report Take action Apply and share learning What is a ‘Fair Blame’ culture? Who benefits?

13. We are KEY in making decisions about our medicines “What’s in it for us?”

14. Emergency

15. Shared Decision Making… is a collaborative process that allows patients and their providers to make health care decisions together, taking into account the best scientific evidence available, as well as the patient’s values and preferences Angela Coulter and Alf Collins, The King’s Fund

16. Shared understanding Information Goals Values Preferences “What’s in it for us?”

17. Could these questions help you? These questions may help you discuss your condition or the treatments you have been offered with your care team: How often should my medicines be reviewed? Who sees the information about what medicines I'm taking? Will the information about my medicines be kept confidential? What are the benefits of using a self ‑ management plan? Can you tell me about using a patient decision aid? How do I report a side effect or a bad reaction to a medicine? What do I do if I think I no longer need a medicine? What do I do if I think a medicine isn't working? Who do I speak to if I want to stop taking a medicine? What do I do if I think a mistake has been made with my medicines?

18. We are KEY in making decisions about our medicines “What’s in it for us?”

19. Questions? erin.whittingham@nice.org.uk Thank you!