1. MAKING AN IMPACT Collaborations Are Key to the Growth of Your Registry ODH logo

2. Laurie Dietsch, MPH Project L.O.V.E. Love Our Kids…Vaccinate Early! Mark Sulzman, BA Ohio Department of Health

3. Immunization Rates for Children 19-35 Months of Age National Immunization Survey, Q1/2001-Q4/2001 4DTaP:3Polio: 1MMR* 4DTaP:3Polio: 1MMR*:3HIB Ohio76.374.7 Cuyahoga74.072.8 Franklin (Columbus) 79.378.3 Rest of State76.274.5

4. OHIO Population of State = 11.4 million* –Cleveland = 478,000 –Cincinnati = 331,000 –Columbus = 702,000 Annual Birth Cohort = 155,700** –Franklin County (Columbus) = 17,400 * U.S. Census Data 2000, ** Ohio Department of Health Vital Statistics

5. Historical Timeline IMPACTSIIS The ODH immunization registry began collecting data from public health clinics in 1997 Public health clinics have entered data into their PC’s using special front end software (private or ODH designed) Data forwarded via batch uploads using modems 1-4 times a month Registry access was via telephone using interactive voice response (IVR) Key Issue: At least 60%-65% is administered in private sector

6. Changing Climate Lessons Learned Since 1997 –Servicing front end software for 88 counties impractical –Data extracted from PC’s can be corrupted or lost in transmission via modem batch uploads –Extracts from billing systems met with resistance Current Trends –2000 NVAC adopts minimum core standard for all US registries –HL7 protocol mandated by HIPAA –ODH recognizes web offers best option for public and private providers

7. Project L.O.V.E. (Love Our Kids...Vaccinate Early!) is a unique partnership between Franklin County hospitals, area physicians, City of Columbus and Franklin County Health Departments, local businesses and community organizations, whose goal is to assure that Franklin County 2 year- olds are fully immunized.

8. Market an Immunization Registry among central Ohio physicians in order to establish a centralized source of individual immunization records across the county and state Maintain and improve current immunization levels throughout the general population of Franklin County Project L.O.V.E. Two Primary Goals

9. Project L.O.V.E. Partners Hospitals (Mount Carmel, Doctors, Grant, Riverside, St. Ann’s, Ohio State University and Children’s) Foundations (Columbus Medical Association Foundation and The Columbus Foundation) Ross Labs 2 Health Departments (Franklin County Board of Health and Columbus Health Department) Pharmaceutical Companies (Merck, Wyeth & Glaxo Smith Klein) Columbus Compact Corporation (Empowerment Zone) Media (NBC4) Political Officials (Mayor and Representatives)

10. Franklin County’s Quest for a Registry 1993-1997 –Focus Groups –Planning 1997-2000 –Pilot Central Repository (Public Health) –Talking Relationship With ODH –3 Options Develop a registry locally Buy an existing system Partner with ODH

11. Three Options Develop System Locally – Money to develop AND sustain –Technical upkeep Buy HII or STC? –Money to purchase AND Maintenance –Not “our” system –Web-based ODH –“Free” for us –Our input made the system –Strengths and Weaknesses Fit

12. STRENGTHS State – ODH –IMPACT SIIS –National/CDC Support –Technical Staff and Resources –Sustainability –Privacy/Security/ Confidentiality –Power and Influence Local – PLOVE/CHD –Local Contacts –Local Name Recognition for Coalition and Marketing Capability –Funding for Marketing –End User Perspective –Not as Many Funding Constraints –Incentive Due to Low Immunization Rates

13. PLIRAC Project L.O.V.E. Immunization Registry Advisory Council HD Immunization Program Staff Health Commissioners – CHD and FCBH Project LOVE Director and Registry Coordinator Ohio Department of Health Staff Legal Representatives Paul Werth Marketing Firm Technically Inclined Members Partner Representatives Parents

14. Web Design Group Made up of Representatives from: – Development Staff from Keane (GSA Contract) – Ohio Department of Health – Columbus Health Department – Office Managers and Physicians Statewide – Interested members of the POINT Team

15. Design Team Functionality –What needs to be in the registry –Web page layout Usability –Developer versus user viewpoint

21. POINT Team Physician Office Impact INTeraction Team Made up of representatives from around the state –ODH and Columbus Health Department –Other Local Health Departments –Hospitals –American Academy of Pediatrics (AAP) President - Ohio Chapter (Chris Rizzo, MD) –Managed Care Organizations

22. POINT Team Privacy, Security and Confidentiality Legal Issues Policy Development HIPAA

23. Negatives –Negative History (Trust Issues) –Change in Leadership –Getting to Know Each Other –Communication Difficulties Technical vs Non-technical Tunnel Vision Misunderstandings –Limited Staffing –Different Perspective State vs Local –Fear of Making “Another” Mistake

24. Positives +Successful State and Local Partnership +Immunization Registry +Complimenting Strengths and Weaknesses +Communication is More Open +Different Perspectives State vs Local +Improved Relations +System That is User-Friendly and FREE

25. If the registry is implemented successfully it will occur quietly. However, if the registry is not implemented successfully, it will be heard loudly.

26. Columbus Health Department