1. Why is Health Communication Important to the Patients as Partners Program Kelly McQuillen, Director Patients as Partners, BC Ministry of Health Services Health Literacy Summer School Advocacy and Health Literacy: Reinforcing Population Health Promotion July 8, 2011

2. What are we trying to accomplish today? 1.Provide overview of Patients as Partners (PasP) as part of the PHC agenda 2.Build “will” to authentically engage patients/families and communities in ehealth solutions for care, redesign and improvement. 3.Describe how health communications can enable PasP

3. Guiding Primary Health Care Primary Health Care Charter Coordinated system approaches to different population health needs In 2007/08, approximately 1/3 of British Columbians had chronic condition. 83% accessed primary care General Practice Services Committee (GPSC) Collaboration between BC’s General Practitioners, Health Authorities, the Ministry and the BC Medical Association to improve the quality of patient care Value us, Pay us, Train us, Support us

4. Patients as Partners improves health care in three ways Population Health Experience of Care Per Capita Cost The Triple Aim, www.ihi.org Healthy People! Happy People! And we can afford it!

5. Patients as Partners – BC PHC definition Patients and families are partners in primary health care when they are supported and encouraged to participate : in their own health care in decision making about that care at the level they choose in quality improvement and health care redesign in ongoing and sustainable ways

6. Core principles of family- centered care Dignity and Respect Information Sharing Participation Collaboration Institute for Family-centered Care http://www.familycenteredcare.org/

7. Why patient experience in PHC? When patients have a good experience with their healthcare and are engaged in the system, the result is: Better safety Better clinical outcomes Reduced costs Improved support for BC’s healthcare system G ood experience is what patients and providers want Wilson, T. Improving Service Experience, PricewaterhouseCoopers, LLP September 2008.

8. The ultimate measure by which to judge the quality of a medical effort is whether it helps patients (and their families) as they see it. Anything done in health care that does not help a patient or family is, by definition, waste, whether or not the professions and their associations traditionally hallow it. (Berwick 1997)

9. The Expanded Chronic Care Model – Evidence based approaches to CDM

10. Patients As Partners Priorities Individual Health Care Shaping the Primary Health Care System Bringing in the Community

11. What are we trying to accomplish in partners in individual health care? Support health literacy as a foundation for patient self-management Support providers to meaningfully engage with patients Enhance confidence of patients and providers in self-management Enhance patient and provider relationships

12. The Health Literacy Umbrella Health Problems & Risks B e t t e r H e a l t h RelationshipsUnderstanding Developed by the Health Literacy in Communities Prototype Faculty: Connie Davis, Kelly McQuillen, Irv Rootman, Leona Gadsby, Lori Walker, Marina Niks, Cheryl Rivard, Shirley Sze, and Angela Hovis with Joanne Protheroe, July 2009. IMPACT BC. Partnering

13. Patient Contact with Health Professionals  Time managing at home over 1 year  GP visits per annum = 1 hour  Visits to specialists = 1 hour  PT, OT, Dietitian = 10 hours  Total = 12 hours with professionals  364.5 days managing on their own or 8748 hours Barlow, J. Interdisciplinary Research Centre in Health, School of Health & Social Sciences, Coventry University, May 2003.

14. PATIENT AS PARTNER Portable, Comprehensive Provider continuity Proactive management Guideline based Team coordinated Self-management Participation Forums Support Groups Communications Support Coaching Awareness Alerts

15. PATIENTS WANT EMPOWERMENT KNOWLEDGE ACCESS TO PROVIDER SUPPORT FROM OTHERS DECISION PARTNER WELLNESS – preventive and behavioral ILLNESS – medical and clinical Face-to-face – extend to team eAccess – eVisit, secure messaging Group sessions from Providers Patient Forums, Blogs,wikis,, (Communityware systems) Involved in care planning Long term goals Self-management Feedback on progress Not episodic care

16. What are we trying to accomplish by Partnering to Shape the Primary Health Care System? Include voice, choice and representation in redesign efforts Create a habit of patient and family involvement from policy to practice Train and support patients and providers towards meaningful engagement

18. The Patient Voices Network is a mechanism to recruit, train and support patients and their families to participate in primary healthcare changes on an individual, community and system level. The Network will bring patients together from around the province to share experiences and learning.

19. Why Do We Need a Patient Voices Network? Patients and families are the experts in their own lives. To make decisions that reflect the needs, aspirations and priorities of the local population, they have to be engaged openly and honestly in system re-design and in their own care.

20. What Does the Patient Voices Network Look Like? Patient Voices Registry / Website Activated Network Peer to Peer Coaching (Healthy Behaviours) Shaping the System Engagement Community Activation Patient Voices Network Database of Patients E-learning Information / News Polls / Surveys Offline engagement

21. What are we trying to accomplish by Bringing in the Community? Support the growing partnerships between PHC, community, patients and families Support increasing the involvement of community in health care service delivery and decision making Leverage community assets

22. Patients as Partners If you want to travel fast, travel alone. If You want to travel far, Travel together

23. “Our next-generation healthcare system will not be a computerized doctor, but a well-wired patient”

24. HYH a GPSC value Test with assistance of John.h.wasson@dartmouth.eduJohn.h.wasson@dartmouth.edu

25. Extensive PHC partnerships to support patients 41

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27. Let us join you in your journey of care… Patients as Partners. Thank you