1. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes Central Asian Palliative Care Policy Meeting: Scope and purpose March 8 th, 2011.

2. Institut Català d’Oncologia Qualy EoL Observatory Support Cat & Spain MoH La Caixa Project WHOCC / Qualy WHO CC Research evaluation services WHO CC Education Training Unit Clinical Service ICO Other Partners

3. Institut Català d’Oncologia MISSION The mission of the WHO CC is to promote and extend the WHO Public Health approach for Palliative Care, elaborating and disseminating knowledge and cooperation

4. Institut Català d’Oncologia Main issue: Palliative Care as an element of the National Health Care System

5. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes Help country representatives to design and start (and evaluate) Palliative Care Programs and Services Build up Programs and Services with a Public Health vision and values Start (or continue) benchmark process of cooperation between General Objectives

6. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes Design the elements of a National Plan Answer questions and dilemmas in the implementation Build up an action Plan for every aspect for 1-2 years Specific Objectives

7. Institut Català d’Oncologia - Clear leadership and aims - Needs and Context Assessment - Clear model of care and intervention and definition of the target patients - General measures in conventional services (Specially Primary Care) - Specialist services in settings - Sectorized networks with coordination, continuing and emergency care - Education and training at all levels - Research Planning - Availability and accessibility of opioids and essential drugs - Legislation, standards, budget and models of funding and purchasing - Evaluation and improvement of quality - Evaluation of results, indicators - Action plans at short, mid and long term - Advocacy - Social implication: volunteers, social involvement in the cultural, social and ethical debates around the end of life Program: will follow the elements of a National Program

8. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes Combination of: Lectures, answer questions and dilemmas in the implementation Exercises / Workshops Methodology

9. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes 1. Introductory short lecture 2. Select a moderator 3. Select a reporter 4. Select the topics Methodology: Workshops & exercises -1

10. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes 5. List of topics 6. Difficulties and dilemmas identified 7. List 5 actions for 2 years Methodology Workshops & exercises -2: Written Outcome

11. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes 8. Expose to plenary 9. Discussion Methodology Workshops & exercises – 3: final

12. Institut Català d’Oncologia The main outcome of this meeting is achieving better quality of life for patients in 1-2 years in your countries and to insert palliative care in your systems

13. Institut Català d’Oncologia Old people with chronic and advanced disease…. Young people with advanced disease…. disease….

14. Institut Català d’Oncologia

15. Thank you all for coming!!! Building capacity!!!

16. Institut Català d’Oncologia ICO DiR. The ‘Qualy’ End of Life Care Observatory - WHO Collaborating Centre for Public Health Palliative Care Programmes. The ‘Qualy’ End of Life Care Observatory WHO Collaborating Centre for Public Health Palliative Care Programmes whocc.info@iconcologia.net +34 93 260 77 36 ICO l’Hospitalet Hospital Duran i Reynals Gran Via de l’Hospitalet, 199-203 08908 l’Hospitalet de Llobregat Institut Català d’Oncologia

17. International Palliative Care Initiative 1998-- Vision: Palliative care is available for all patients with life-limiting illness across all care settings.

18. Institut Català d’Oncologia Mission: To improve the care of patients and families facing life-limiting illness by supporting global and national policies to integrate palliative care into public healthcare systems. IPCI will advance its work through grantmaking, capacity building, strategic convening, advocacy, mobilizing, and leveraging funding in order to build the field of palliative care. International Palliative Care Initiative

19. Institut Català d’Oncologia International Palliative Care Initiative IPCI’s geographical focus is Central and Eastern Europe, Former Soviet Union, Southeast Asia, Southern Africa, East Africa, Central Asia, Latin America, and the Middle East.

20. Institut Català d’Oncologia WHO Public Health Model A government policy to ensure the integration of palliative care into the structure and financing of national health care systems An educational policy to provide support for the training of health care professionals, volunteers and the public A drug policy to ensure the availability of essential medicines for the management of pain and other symptoms and psychological distress, in particular, opioid analgesics for pain relief.

21. Institut Català d’Oncologia International Palliative Care Initiative Global organizations, GAPRI, PPSG, WPCA Regional palliative care associations, EAPC, APCA, APHN Pilot programs in cancer and AIDS centers Development of palliative care curriculum in medical and nursing schools Legal framework analysis Financial analyses