1. Strengthening the public voice in shaping sexual and reproductive health services - Changing relationships Prof Nicola Robinson and Dr Ava Lorenc, London South Bank University

2. Project overview Commissioned by London Sexual Health Programme 1.Research project 2.Working group 3.Toolkit 4.Event 5.Follow up events/network

3. Research project Aims: Review current policy, guidelines and practice on patient and public engagement (PPE) in SRHH Identify best practice examples Identify gaps in existing guidance Methods: Documentary analysis/literature review(n=59) Survey (n=72) In-depth interviews (n= 25) Report: www.londonsexualhealth.org/patient- public-engagement

4. Research project Key themes: 1.Organisational commitment to PPE 2.Motivating patients/public 3.Using public awareness/education campaigns to engage patients 4.Changing NHS philosophy 5.Informing patients/public 6.Overcoming the barrier of stigma. 7.Working with voluntary sector organisations.

5. Research Project Gaps: Engaging certain population groups Specifically targeting non service users Sexual/reproductive health (not HIV) Structured PPE/organisational commitment Training for patients/staff Dedicated staff/time/money Measuring impact Knowledge amongst NHS staff Universal standards for PPE

6. Working group To take the findings/recommendations from the report and make them real  influence planning, development, delivery, evaluation and improvement of services  disseminate recommendations Alyson Elliman; Amatullah Hashi; Bernard Forbes; Bernard Kelly; Bryan Teixeira; Catherine Murphy; Christopher Sandford; Elizabeth Shaw; Gary Alessio; Heather McMullen; Hong Tan; Johnny Coleman; Karen Beechey; Kevin Miles; Magnus Nelson; Nicky Davies; Paul Clift; Peter Twist; Rachel Challenor and Vikki Pearce

7. Toolkit www.londonsexualhealth.org/ppe-toolbox

8. Learning aims of today After attending this event, participants will be able to: Understand the importance of PPE in SRHH in this time of change Be aware of the barriers and challenges in this area and how to overcome them Feel more confident to approach their service/organisation and advocate PPE to them Appreciate the importance of having a PPE action plan and auditing progress Use appropriate tools to conduct PPE relevant to their service Know how to access our online resource and toolkit to provide support and resources for doing PPE in SRHH

9. Today Marketplace (11.50 to 13.30pm) Examples of PPE Reproductive health, sexual health, HIV 8 x 10min slots Prize Lunch & networking (13.30 to 14.30) ‘Doing it’ discussion forum & closing (14.30 to 16.00) How to use the toolkit Expert panel Q&A Evaluation Snap Survey online questionnaire

10. The future Follow up survey Need to ensure sustainability Training Events based on: – Action plan – Auditing – Progress Suggestions?

11. Thank you to all the participants, working group and to: Gilead Sciences Snap Surveys ViiV Healthcare Prof Nicola Robinson Dr Ava Lorenc e-mail: avalorenc@hotmail.com Many thanks to LSHP for funding the initial project