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1 Promotoras, Peer Participant Providers and Community Outreach as Preconception in the Continuum of Perinatal HIV Transmission Armida Ayala, M.H.A., Ph.D. Arthur Durazo Office of AIDS Programs and Policy Kimberly West, M.D. Maternal and Child Adolescent Health Los Angeles County, Department of Health Services CityMatch Annual Urban Maternal and Child Health Leadership Conference Expedition 2004: Exploring the Boundaries of Urban MCH September 11 - 14, 2004 Hilton Portland Portland, OR
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2 “I have the right to know what is written about me. You have the duty to plan responsibly with me. Then, we can all act on behalf of our health and the future of our little girls”. - Lisa, Promotora.
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3 ISSUE Perinatal transmission prevention is most effective in the presence of appropriate access to health education, prenatal care, HIV counseling & testing and linkages to treatment. Who & how is examined in the following…
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4 Rates of HIV-Newborns: Los Angeles County by Service Planning Area (SPA),1995-1998. ( Total Tested: 79,242 Total Positive: 65)
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5 OBJECTIVES To recruit members and consumers of the target populations as providers and agents of health education To implement strategies and services designed to increase test acceptance rates among women without prenatal care and/or a history of injection drug use
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6 OBJECTIVES (Cont’d) To recruit and train peer service providers to make perinatal HIV prevention services more accessible to pregnant women The increase proportion of pregnant women who accept an HIV test The increase proportion of pregnant women who are offered HIV counseling and testing
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7 EXPECTED RESULTS Effective co-participation of Promotoras through peer model design A collaboration of government and community partners to reach pregnant women in Los Angeles County A multi-level intervention that will provide accessible prenatal care and perinatal HIV transmission prevention services to low- income pregnant women
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8 METHODS System Integration Community Partnerships Participatory Action Research Focus Groups/Interviews Lay Health Promoter Approach (Promotora Peer Model) Multi-Level Intervention Social Marketing Campaign Provider Training Outreach
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9 KEY PARTNERS Department of Health Services Los Angeles County Office of AIDS Programs and Policy Educational Services Prevention Services Public Affairs Planning & Research Maternal and Child Adolescent Health Pediatric Surveillance of HIV Disease
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10 KEY PARTNERS (Cont’d) Los Angeles County Sheriff’s Department Community Partners Los Angeles Family AIDS Network Harbor Community Health Center East Los Angeles Women’s Center Promotoras Consumers Target Population members
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11 ROLE OF THE DEPARTMENT OF HEALTH SERVICES To create systemic changes in collaboration with departmental, interdepartmental and community partners Provide research-based knowledge to facilitate the development of effective prevention strategies To implement and evaluate key activities of a multi-level intervention
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12 COST AND RESOURCES Multi-level intervention $120,000 Federal/State funds Integration of existing resources
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13 RESULTS Community partnerships facilitated the implementation and dissemination of the “Loving Responsibly” HIV prevention campaign Participatory training increased the acceptance of Promotoras to become active in the intervention Participant action research and peer reinforcement resulted in African-American women adopting the Promotoras model Outreach in targeted areas increased opportunities for leadership and communication about perinatal issues in a supportive relationship
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14 BARRIERS System Inadequate health insurance Fragmentation of services for hardest to reach and low-income Limited community participation Insufficient focus on prenatal and HIV prevention services Inadequate delivery of services
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15 BARRIERS System Low offer rates and minimal HIV counseling and testing Cultural distance between providers and patients Limited access to HIV counseling and testing Lack of outreach to youth, substance users and foreign-born. Minimal opportunities for women to address perinatal issues in a supportive relationship
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16 BARRIERS Individual Fragmented knowledge of services available State of fear, isolation Distrust of institutional entities Stressed social networks and resources Domestic and environmental violence Incarceration and drug abuse Limited language skills Divergent future perspectives Minimal self-management of health education
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17 BARRIER BUSTERS Integrate interdepartmental HIV prevention resources and programs Establish partnerships HIV service providers Non-HIV service providers Community Leaders Consumers Co-participation of target group members To advise To reach hardest to reach women To provide services as Promotoras
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18 BARRIER BUSTERS (Cont’d) Focus outreach in areas of highest estimated need Target young women, substance users and foreign-born women in social marketing campaign, outreach and provider training Involve agencies who have earned the trust of respective women
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19 LESSONS LEARNED System Integration is Key Ensures collaboration Enables coordination of services Acceptance Rates of HIV Tests Increase with Accessible HIV prevention information Peer-based counseling Familiar and trustworthy settings Culturally and Linguistically Relevant Social Marketing Campaigns Promote self-management of health education Facilitate the adoption of health promotion practices Increase participatory action
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20 LESSONS LEARNED Collaboration Works Best when Power, decision making and knowledge are shared among key partners in government, universities, and community stake holders Is guided by an advisory group with consumer membership Promotes fair social structures Effective Multi-level Interventions Evidence based Actively involve key partners in all aspects of the research, intervention and dissemination process Include values central to the research process: co- participation, supportive relationships, social justice and ongoing learning
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21 Promotoras Training
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22 Promotoras Training
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23 Media Campaign Bus Cards
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24 Media Campaign Bus Cards
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25 Media Campaign Refrigerator Magnets
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26 Media Campaign Refrigerator Magnets
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27 Responses Los Angeles Social Marketing Campaign
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28 Responses Los Angeles Social Marketing Campaign
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29 Responses Los Angeles Social Marketing Campaign
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