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Investing in Patient Care & Member Involvement Through Clinical Research.

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Presentation on theme: "Investing in Patient Care & Member Involvement Through Clinical Research."— Presentation transcript:

1 Investing in Patient Care & Member Involvement Through Clinical Research

2 In your opinion, how important is medical research to your:

3 Overview: Heart Rhythm Society (HRS) Case Study Fostering a Strategic Direction Making the Strategic Decision Stick Addressing Governance, Staff & Budget Putting a Stake in the Ground Understanding Member Needs & Concerns Seeking Stakeholder Input Finding Early Means to Make a Difference

4 HRS Case Study Big Audacious Goal: End death and suffering due to heart rhythm disorders. Goal Area: Research The Society will be the preeminent organization for promoting research to end death and suffering from heart rhythm disorders. Objectives: Enhance the society’s strategic research agenda. Increase funding to support the society’s research agenda. Increase the leadership, presence and visibility of heart rhythm researchers within the Society. Increase support for rigorous outcome studies evaluating benefits of emerging technologies and clinical practices.

5 HRS Case Study Collaborations/ HRS Positioning Research Forums Convene the Basic Science Community HRS TrialNetSupport Career Scientists Fund Research Six Potential Areas of Focus

6 HRS Case Study Collaborations/ HRS Positioning Research Forums Convene the Basic Science Community HRS TrialNetSupport Career Scientists Fund Research

7 HRS: What Members Want Online survey 3000 HRS physician members Over 450 responses for a response rate of 16% HRS members believe it is very important to participate in clinical trial Overwhelmingly members wish to participate in more trials There is strong support for HRS.TrialNet concept Majority of members are willing to participate

8 HRS: Members Desire to Participate in Clinical Trials

9 HRS TrialNet TrialNet Site Profile Database Members/Non-Members complete site profile to be entered into DB HRS Current Clinical Trials Database Recruit Sites Networks of sites for trials, registries & CER HRS Match Site Support Training & Education Credentialing Services Accreditation Services Rx/Device Sponsors CROsGovernmentPIs Database Users Patient Advocacy HRS Members Non-Members Consulting Services Support Services Facilitate Research Core TrialNet


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