1. Genetic Diseases Achonddroplasia (Dwarfism) Adrenoleukodystrophy Albinism Autosomal Recessive Polycystic Kidney DiseaseAutosomal Recessive Polycystic Kidney Disease Cystic Fibrosis Duchenne Muscular Dystrophy Hemophilia Hereditary Breast Cancer Hereditary non-polyposis colorectal cancerHereditary non-polyposis colorectal cancer Hunter Syndrome Huntington’s Disease Krabbe’s Disease Long QT Syndrome Marfan Syndrome Myotonic Dystrophy Neurofibromatosis Osteogenesis Imperfecta Phenylketonuria Prader-Willi Syndrome Retinitis Pigmentosa Scprintzen syndrome Sickle Cell Anemia Tay Sachs Usher Syndrome Waardenburg Syndrome Frederichs Ataxia

2. Achondroplasia (Dwarfism) Associations –Little People of AmericaLittle People of America –Human Growth FoundationHuman Growth Foundation –March of DimesMarch of Dimes Books –Human Diseases and Conditions –Diseases –World of Health Resource File (a folder of information gathered from the Public Library’s database) Web pages –Short StatureShort Stature –Mayo ClinicMayo Clinic –MedLine PlusMedLine Plus –Web MDWeb MD

3. Adrenoleukodystrophy Associations –The ARC of the United StatesThe ARC of the United States –Australian Leukodystrophy GroupAustralian Leukodystrophy Group –CLIMBCLIMB –ELAELA –Fight ALDFight ALD –NIH Office of Rare DiseasesNIH Office of Rare Diseases –United Leukodystrophy FoundationUnited Leukodystrophy Foundation ) Resource File (a folder of information gathered from the Public Library’s database Books –World of Health Web pages –MedLine PlusMedLine Plus –Leukodystrophy typesLeukodystrophy types –Mayo ClinicMayo Clinic

4. Albinism Associations –NOAHNOAH Books –Diseases –World of Health –Human Diseases and Conditions Resource Files (a file of articles from the public library’s database) Web pages –MedLine plusMedLine plus –Mayo ClinicMayo Clinic –Scientific AmericanScientific American –National Institutes of HealthNational Institutes of Health

5. Asthma Associations –Asthma and Allergy Foundation of AmericaAsthma and Allergy Foundation of America –American Lung AssociationAmerican Lung Association –American Academy of Allergy, Asthma, and ImmunologyAmerican Academy of Allergy, Asthma, and Immunology Books –World of Health –Diseases –Sick –Coping with Asthma –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web Sites –National Heart Blood and Lung InstituteNational Heart Blood and Lung Institute –MedLine PlusMedLine Plus –Web MDWeb MD –CDCCDC –Mayo ClinicMayo Clinic

6. Autosomal Recessive Polycystic Kidney Disease Associations –ARPKD / CHF AllianceARPKD / CHF Alliance –CAGSCAGS –Rare Diseases organizationRare Diseases organization Books –World of Health –Diseases –Kidney Disorders –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web sites: –National Institutes of HealthNational Institutes of Health –NIHNIH –Web MDWeb MD

7. Cystic Fibrosis Associations –Cystic Fibrosis FoundationCystic Fibrosis Foundation –Boomer Esiason FoundationBoomer Esiason Foundation –Kids HealthKids Health –Canadian Cystic Fibrosis FoundationCanadian Cystic Fibrosis Foundation Books –World of Health –Diseases –Sick –Genetics and Human Health –Human Diseases and Conditions Web sites –MedlineMedline –Mayo ClinicMayo Clinic –National Heart lung and Blood InstituteNational Heart lung and Blood Institute –Genetics Home ReferenceGenetics Home Reference Resource File (a folder of information from the public library’s database)

8. Duchenne Muscular Dystrophy Organizations –Muscular Dystrophy AssociationMuscular Dystrophy Association –Parent Project Muscular DystrophyParent Project Muscular Dystrophy –Your Genes your healthYour Genes your health Books –World of Health –Diseases –Sick –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web Sites –Medline Plus CDC Mayo ClinicMedline PlusCDCMayo Clinic –National Institute of Neurological Disorders and StrokeNational Institute of Neurological Disorders and Stroke

9. Hemophilia Associations –National Hemophilia OrganizationNational Hemophilia Organization –Bleeding Disorders AssociationBleeding Disorders Association –Hemophilia Organization of AmericaHemophilia Organization of America Books –World of Health –Diseases –Sick –Human Diseases and Conditions –Genetics and Human Health Resource File (a folder of information from the public library’s database) Web Sites –Medline PlusMedline Plus –National Heart lung and blood InstituteNational Heart lung and blood Institute –Mayo ClinicMayo Clinic –E MedicineE Medicine

10. Hereditary Breast Cancer Associations –National Breast Cancer FoundationNational Breast Cancer Foundation –American Cancer SocietyAmerican Cancer Society –Susan G. KomenSusan G. Komen Books –World of Health –Diseases –Sick –Breast Cancer –The Cancer Dictionary Web Sites –National Cancer InstituteNational Cancer Institute –Medicine NetMedicine Net –Web MDWeb MD –Mayo ClinicMayo Clinic Resource File (a folder of information from the public library’s database)

11. Hereditary non-polyposis colorectal cancer Organizations –Colon Cancer AllianceColon Cancer Alliance –Colorectal Cancer NetworkColorectal Cancer Network –Hereditary Colon Cancer AssociationHereditary Colon Cancer Association Books –World of Health –Sick –The Cancer Dictionary –Human Diseases and Conditons Resource File (a folder of information from the public library’s database) Web Sites –Cleveland Clinic National Institutes of HealthCleveland ClinicNational Institutes of Health –National Cancer Institute Web MD Mayo ClinicNational Cancer InstituteWeb MDMayo Clinic

12. Hunter Syndrome Organizations –Rare DiseasesRare Diseases –Brave CommunityBrave Community Resource File (a folder of information from the public library’s database) Web Sites –A list of linksA list of links –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –Web MDWeb MD –ShireShire

13. Huntington’s Disease Organizations –Hereditary Disease FoundationHereditary Disease Foundation –Huntington’s Disease Society of AmericaHuntington’s Disease Society of America –National Institute of Neurological Disorders and StrokeNational Institute of Neurological Disorders and Stroke Books –World of Health –Disease –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web Sites –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –NCBINCBI –Web MDWeb MD

14. Krabbe’s Disease Organizations –United Leukodystrophy FoundationUnited Leukodystrophy Foundation –Hunter’s Hope FoundationHunter’s Hope Foundation –National Organization for Rare DisordersNational Organization for Rare Disorders Resource File (a folder of information from the public library’s database) Web Sites –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –National Institute of Neurological Disorders and StrokeNational Institute of Neurological Disorders and Stroke –University of Maryland Medical CenterUniversity of Maryland Medical Center

15. Long QT Syndrome Organizations –CARECARE –American Heart AssociationAmerican Heart Association –Heart rhythm SocietyHeart rhythm Society Resource File (a folder of information from the public library’s database) Web sites –Mayo ClinicMayo Clinic –Cleveland ClinicCleveland Clinic –National Heart Lung and Blood InstituteNational Heart Lung and Blood Institute

16. Marfan Syndrome Organizations –National Marfan FoundationNational Marfan Foundation –A list of Associations from around the worldA list of Associations from around the world Books –Diseases –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web sites –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –Web MDWeb MD

17. Myotonic Dystrophy Organizations –Muscular Dystrophy AssociationMuscular Dystrophy Association –Mytonic Dystrophy FoundationMytonic Dystrophy Foundation Books –World of Health –Diseases –Sick –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web sites –Genetics Home ReferenceGenetics Home Reference –Mayo ClinicMayo Clinic –NCBINCBI

18. Neurofibromatosis Organizations –Acoustic Neuroma AssociationAcoustic Neuroma Association –Acoustic Neuroma Association of CanadaAcoustic Neuroma Association of Canada Books –World of Health –Human Diseases and Conditions Resource File (a folder of information from the public library’s database) Web Sites –National Institute for Neurological Disorders and StrokeNational Institute for Neurological Disorders and Stroke –Kids HealthKids Health –Medline PlusMedline Plus –Mayo ClinicMayo Clinic

19. Osteogenesis Imperfecta Organizations –Children’s Brittle Bone FoundationChildren’s Brittle Bone Foundation Resource File (a folder of information from the public library’s database) Books –World of Health –Diseases (Look under bone diseases) Web Sites –Medline PlusMedline Plus –Web MDWeb MD –Net DoctorNet Doctor –University of Maryland Medical CenterUniversity of Maryland Medical Center

20. Phenylketonuria Resource File (a folder of information from the public library’s database) Books –World of Health –Human Diseases and Conditions Web Sites –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –Web MDWeb MD –Rare DiseasesRare Diseases

21. Prader-Willi Syndrome Resource File (a folder of information from the public library’s database) Organizations –Prader-Willi AssociationPrader-Willi Association Books –World of Health Web sites –Medline PlusMedline Plus –University of MichiganUniversity of Michigan –Mayo ClinicMayo Clinic –Rare DiseasesRare Diseases

22. Retinitis Pigmentosa Resource File (a folder of information from the public library’s database) Organizations –Foundation Fighting BlindnessFoundation Fighting Blindness –Low Vision OrganizationLow Vision Organization –American Optometric AssociationAmerican Optometric Association Books –World of Health –Diseases Web Sites –Medline PlusMedline Plus –Web MDWeb MD –Natural Eye CareNatural Eye Care

23. Shprintzen Syndrome Resource File (a folder of information from the public library’s database) Organizations –Coalition for Heritable Disorders of Connective TissueCoalition for Heritable Disorders of Connective Tissue –Hydrocephalus AssociationHydrocephalus Association Web sites –Genetics Home ReferenceGenetics Home Reference –CCDDCCDD –Web MDWeb MD

24. Sickle Cell Anemia Resource File (a folder of information from the public library’s database) Organizations –Sickle Cell Disease AssociationSickle Cell Disease Association –Sickle Cell Information CenterSickle Cell Information Center Books –Sickle Cell Anemia –Sick –Diseases –World of Health –Human Diseases and Conditions Web Sites –Mayo Clinic Medline Plus Web MDMayo ClinicMedline PlusWeb MD –Kids Health CDCKids HealthCDC

25. Tay Sachs Resource File (a folder of information from the public library’s database) Organizations –National Institute of Neurological Disorders and StrokeNational Institute of Neurological Disorders and Stroke –National Tay Sachs and Allied DiseasesNational Tay Sachs and Allied Diseases –Rare DiseasesRare Diseases Books –Diseases –World of Health –Human Diseases and Conditions Web sites –Genetics Home ReferenceGenetics Home Reference –Mayo ClinicMayo Clinic –Medline PlusMedline Plus

26. Usher Syndrome Resource File (a folder of information from the public library’s database) Organizations –Usher Syndrome FoundationUsher Syndrome Foundation –American Council of the BlindAmerican Council of the Blind –Foundation Fighting BlindnessFoundation Fighting Blindness –Helen Keller National Center for Deaf-Blind youths and AdultsHelen Keller National Center for Deaf-Blind youths and Adults Web Sites –NIDCDNIDCD –Genetics Home ReferenceGenetics Home Reference –National Institutes for HealthNational Institutes for Health –Web MDWeb MD

27. Waardenburg Syndrome Resource File (a folder of information from the public library’s database) Organizations –National Organization of Rare DiseasesNational Organization of Rare Diseases Web Sites –Medline PlusMedline Plus –Web MDWeb MD –Rare diseasesRare diseases

28. Frederichs Ataxia Web sites: –Mayo ClinicMayo Clinic –Medline PlusMedline Plus –Web MDWeb MD Organizations –The Frederichs Ataxia Research AllianceThe Frederichs Ataxia Research Alliance –Muscular Dystrophy AssociationMuscular Dystrophy Association