1. Caroline Struthers Cochrane Training Coordinator (eLearning Development) Anna Noel-Storr, TSC Cochrane Dementia Group Study Manager, ALOIS register of dementia studies GETTING COCHRANE INTO SCHOOLS

2. 2 Declaration of interest No commercial conflicts of interest Helping my daughter get into medical school... does that count?!

3. Non-experts could do more for Cochrane Developing engaging tasks Developing Cochrane skills Never too early to start training up Cochranites! 3 Introduction

4. 4 Background Dementia Schizophrenia MS Asthma Depression ENT Arthritis Heart Childbirth Skin Diabetes ME

5. 5 Task 1: ALOIS coding task Recruitment

6. 6 Task 1: ALOIS coding task

7. 7 Task 1: ALOIS volunteer task Non-experts convert this...

8. 8 Task 1: ALOIS coding task Into this...

9. 9 The Duke of Edinburgh

10. 10 Jenny’s first record

11. 11 Jenny’s first record

12. 12 ALOIS coding in action I think it will certainly feel like eight hours

13. 13 ALOIS coding in action It will certainly feel like eight hours Why do they make it so difficult to find the information in these papers?

14. 14 ALOIS coding in action It will certainly feel like eight hours I see why Cochrane do it. If I was a doctor I wouldn’t want to read this stuff.

15. 15 ALOIS coding in action

16. 16 So although she complained...

17. 17 Task 2: Trial Blazers

18. 18 Task 2: Trial Blazers

19. 19 What’s the motivation? Wanting to help the researchers “My wife made me do it” Wanting to help Cochrane “Dementia is such a cruel disease, I want to help find new treatments” Wanting to help their career “This will look great on my CV”

20. 20 Task 3: Missing data

21. 21 Task 3: Missing data 20 May 2011...I was interested in seeing the results of the bilberry/grape study BBM, and I could not access the data...Have the results been published anywhere....? 20 May 2011...I was interested in seeing the results of the bilberry/grape study BBM, and I could not access the data...Have the results been published anywhere....? 24 June 2011....I did not hear back after writing to Professor Blomhoff last month about the results of the BBM: Bilberry-Memory study...it would be great to hear back from one of you about where the results of this trial have been published,.... 24 June 2011....I did not hear back after writing to Professor Blomhoff last month about the results of the BBM: Bilberry-Memory study...it would be great to hear back from one of you about where the results of this trial have been published,....

22. 22 Task 3: Missing data 24 June 2011 Our university web pages have been redesigned and all links are not up and running yet....My PhD student is at present in Australia.....Siv, maybe you could send Caroline the appropriate files.... 24 June 2011 Our university web pages have been redesigned and all links are not up and running yet....My PhD student is at present in Australia.....Siv, maybe you could send Caroline the appropriate files.... 27 June 2011...I look forward to receiving the files...Are they being published in a journal, or on a results register anywhere? 27 June 2011...I look forward to receiving the files...Are they being published in a journal, or on a results register anywhere?

23. 23 Task 3: Missing data 28 June 2011 This paper has not been accepted for publication yet, and the data will not be available before publication. I am sorry that I forgot to mention this in my previous email. After publication the data will be freely available. 28 June 2011 This paper has not been accepted for publication yet, and the data will not be available before publication. I am sorry that I forgot to mention this in my previous email. After publication the data will be freely available. 28 June 2011 Dear Ms. Struthers: This paper was submitted to the AJCN but was not accepted for publication. Peer Review & Production Support Specialist American Society for Nutrition 28 June 2011 Dear Ms. Struthers: This paper was submitted to the AJCN but was not accepted for publication. Peer Review & Production Support Specialist American Society for Nutrition

24. 24 Task 3: Missing data 28 June 2011 When do you expect the article to be in press? It looked like the results had been available on the University of Oslo website and that's what really led me to contact you directly. 28 June 2011 When do you expect the article to be in press? It looked like the results had been available on the University of Oslo website and that's what really led me to contact you directly. 2 November 2011 I never received a reply to my question about when the data from this study will be available. If the paper is not accepted for publication, the results should be made available, otherwise any future systematic review will be subject to publication bias. 2 November 2011 I never received a reply to my question about when the data from this study will be available. If the paper is not accepted for publication, the results should be made available, otherwise any future systematic review will be subject to publication bias.

25. 25 Task 3: Missing data 8 November 2011 The data will absolutely be published and available, don't worry :) We have not been able to finish this yet. The first author is at present in Australia. We will work on this. 8 November 2011 The data will absolutely be published and available, don't worry :) We have not been able to finish this yet. The first author is at present in Australia. We will work on this. 21 September 2013 Still no publication 21 September 2013 Still no publication

26. 26 Task 4: Trial detectives alois.cochrane.org

27. 27 Task 4: Trial detectives alois.cochrane.org

28. 28 Cochrane Strategy 2020 – does it fit in? Objective Getting Cochrane into the mainstream Has been moved from Goal 3: Advocating for evidence to Goal 2: Making Evidence accessible

29. 29 And finally.... “But Mummy, is that evidence based?”

30. 30 Acknowledgements and thanks Anna Noel-Storr Jenny and Lisa Milne The Cochrane Dementia Group Sally Bailey, NIHR Lynne Ramsay, Alzheimer’s Society Kit Huckvale, Imperial College and all the ALOIS Community supporters and volunteers past, present, and (of course) future