1. LONG-TERM SURVIVAL OF WOMEN WITH BREAST CANCER Susan Brown, M.S., R.N. SUSAN G. KOMEN FOR THE CURE ®

2. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. OUR VISION…OUR PROMISE A World Without Breast Cancer To save lives and end breast cancer forever by empowering people, ensuring quality care for all and energizing science to find the cures.

3. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. FIGHTING BREAST CANCER ON ALL FRONTS Next to the U.S. government, we are the world’s largest source of nonprofit funds dedicated to ending breast cancer. Local communities Innovative research on a national level Strong public policy across all levels of government Global expansion

4. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. The Global Breast Cancer Crisis A case of breast cancer is diagnosed every 19 seconds OVER THE NEXT 25 YEARS  Another 41 million people worldwide are expected to be diagnosed

5. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. LONG –TERM SURVIVAL 1. Definition of long-term survival 2. Physical issues 3. Psychological issues 4. Young women – special issues 5. The need for follow-up – for life 6. Komen investment

6. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. LONG –TERM SURVIVAL What is long-term survival? Why talk about it now? 4 MILLION BREAST CANCER SURVIVORS WORLDWIDE

7. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. PHYSICAL ISSUES FOR BREAST CANCER SURVIVORS Lymphedema Fatigue Bone health

8. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. Incidence Risk Recent studies LYMPHEDEMA

9. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. Incidence Risk Research FATIGUE

10. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. Incidence Risk Research BONE HEALTH

11. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. PSYCHOLOGICAL ISSUES Fear of recurrence Sexuality Depression

12. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. FEAR OF RECURRENCE Ongoing surveillance Anniversary anxiety Communication

13. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. SEXUALITY Incidence Risk Research Communication

14. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. DEPRESSION Incidence Risk Research Communication

15. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. SPECIAL ISSUES FOR YOUNGER WOMEN Fertility and Pregnancy Early menopause Distress

16. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. FOLLOW-UP - FOR LIFE Survivorship Care Plans Follow-up for life “Teachable moment” Research

17. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. WHAT IS KOMEN DOING? Research Portfolio – metastatic breast cancer Cancer Support Community – MAP registry www.breastcancerregistry.org www.breastcancerregistry.org

18. Copyright © 2011 by Susan G. Komen for the Cure. All rights reserved. In Partnership Together To End Breast Cancer Forever