1. Overview of the Community Engagement Program A resource for faculty, staff, students, and community Nuts & Bolts of Community Based Participatory Research Workshop April 11, 2014 Crystal Evans, MS Program Manager

2. Presentation Objectives Provide an overview of the Community Engagement Program’s mission, goals, and resources. Determine how the Community Engagement Program can help you

3. Community Engagement Program Team Faculty – Lee Bone, MPH, BSN, Associate Professor, JHU-SPH – Hae Ra Han, PhD, Associate Professor, JHU-SON – Pamela Ouyang, MBBS, Professor, JHU-SOM Staff – Crystal Evans, MS, Program Manager Community Research Advisory Councils – Johns Hopkins East Baltimore – Johns Hopkins Bayview

4. Community Engagement Program Mission 1.Build the capacity of researchers and community members to conduct community-engaged research. 2.Create a forum for community members and researchers to collaborate on research activities. 3.Support community driven research and outreach 4.Enhance the dissemination of research to practitioner and lay communities.

5. Community Engagement Program Activities ActivityGoalImpact Measure ConsultsProvide assistance to faculty, staff, students on CE research projects # of consultations 6 and 12 month surveys (Self reported status of project; funding, IRB approvals) TrainingsBuild the capacity of faculty, staff, students, and community to collaborate on research # of attendees Surveys (Self reported knowledge; use of info on projects) Advisory Councils Promote community & researcher collaborations # council driven projects Surveys (Membership satisfaction surveys)

6. Community Engagement Consulting Service Impact # of consultations: Served 800 individual research teams over 6 years # consultations conducted 2012-2013: 25 # 6-12 month follow up surveys: 10 Follow up Survey Findings All respondents were very satisfied with consultation Most common reasons for consultation were: Feedback on grant prior to submission; Feedback on project after funding Identifying community partners 80% reported applying feedback to project; Respondent comments; “Included feedback in grant and got funding” “Changed interview questions so they were easier to understand” “Revamped advisory board; developed bylaws; recruited members” “ Invited senior center directors to serve as community partners.”

7. Community Engagement Consulting Service List of Consultations 9/2013-2/2014 Project, InvestigatorService, Impact 1.Neighborhood Influences on Healthy Eating Shari Waldenstein, PhD, University of Maryland Survey Design IRB Approved 2. Patients Views of Patient Centered Research Nancy Kass, ScD, JHU School of Public Health Survey Design IRB Approved 3. Hypertension: Comparative Effectiveness Study Steven Schulman, MD, JHU, School of Medicine Grant Prep Grant Submitted 4. Older Adults Driving Study Vanya Jones, PhD, JHU School of Public Health Co-Investigator Referral 5. Treatment Preferences of Patients with Diabetes John Bridges, PhD, JHU School of Public Health Grant Prep Grant Funded

8. Community Engagement Program Trainings EventGoalImpact Nuts & Bolts of Community Based Participatory Research Introduce CBPR principles and methods; build knowledge of CBPR 150 attendees Main Survey Findings -Day of event: 95% reported increased knowledge of CBPR -6 month follow up survey: 70% used knowledge on a CBPR project Understanding & Evaluating Research: Community Advisory Board (CAB)Workshop Introduce research methods and ethics to individuals serving on community advisory boards 35 attendees; affiliated with 10 boards Main Survey Findings -Day of event: 75% reported increased research knowledge -3 month follow up: 60% used knowledge as part of CAB work

9. Community Engagement Program Training Attendee Affiliations External Audience Alliance of Community Teachers American Public University Baltimore City Health Department Baltimore City Schools Black Nurses Association Community Health Initiative Health Leads Howard University International Rescue Committee Liberty University Loyola University Men and Family Health Center Morgan State University University of Maryland Safe and Sound Y of Central Maryland Internal Audience Johns Hopkins Centers & Institutes Alzheimer’s Research Center Center to Eliminate Cardiovascular Disparities Center to Reduce Cancer Disparities Center for Urban Environmental Health Urban Health Institute Student Resource Center Johns Hopkins Schools Business Education Engineering Medicine Nursing Public Health

10. Community Research Advisory Council at East Baltimore YearTimeline 2009Formed as part of the Community Engagement Program Initial focus on ethics & safety Designated advisor to the IRB on exception to informed consent studies and projects impacting community Reviewed 5 exception to informed consent studies 2010Mission revised by members to reflect commitment to increasing community trust and involvement in research Bylaws developed: term limits, roles, decision making process 2011Committees formed to guide: Board Development, Community Education, and Research Reviews 2013 Committee Chairs Elected

11. Community Research Advisory Council at East Baltimore Committee Accomplishments Board Development Maintain active, engaged, & diverse membership. Major Accomplishments Recruited new members Organized new member orientations &trainings Developed &administered member satisfaction survey Recommended strategies to enhance member satisfaction Helped develop bylaws that guide how C-RAC business Research Review Provide community input on research projects and policies. Accomplishments In 2012-2013, conducted 5 research reviews. - Hepatitis C Study -Family Health History Study -Treatment Preferences of Patients with Diabetes -Use of Community Engagement to Improve Health -Use of Patient Health Info to Recruit Study Participants -Conducted survey to measure impact of research reviews

12. Community Research Advisory Council at East Baltimore Committee Accomplishments Community Education Provide information about health issues facing the local community and Hopkins research related to those health issues Major Accomplishments Partnered with 4 churches to develop & conduct survey to identify research priorities of congregation & community members. Clergy & health ministry leaders led data collection Survey completed by 847 people. Johns Hopkins researchers presented on the top health priorities High Blood Pressure, Heart disease, Diabetes, and Asthma. Faith and Community-Based Partners Memorial Baptist Church New Shiloh Baptist Church of Turner Station St. Martin Church of Christ Zion Baptist Church Druid Heights Neighborhood Association

13. Community Research Advisory Council at East Baltimore Founding Partners Community AARP Alzheimer’s Association Baltimore City Schools Baltimore City Health Department Civic Works Environmental Justice Partnership Family and Children Services Light Health Foundation Mental Health Association University of Maryland School of Medicine Sojourner Douglas College The Door Urban Leadership Foundation Johns Hopkins Johns Hopkins University School of Medicine - Center to Eliminate Cardiovascular Health Disparities - Office of Diversity and Cultural Competence Johns Hopkins University School of Nursing Johns Hopkins University School of Public Health - Berman Institute of Bioethics - Center for Urban Environmental Health - Department of Health, Behavior, and Society

14. Community Research Advisory Council at Bayview YearTimeline 2011 Formed to create a forum for community members, faculty, and staff to discuss Bayview Research At inaugural meeting participated in focus group to identify community perceptions of Bayview research -Noted that local residents willing to participate -Did not understand why research was conducted -How to access research opportunities or findings After meeting, Council decided to focus on educating local residents and patients about the research process 2013Formed committees: Board Development, Community Education, and Research Review 2014Planned Activities: Revise Mission, Recruit New Members, Identify research projects for Council to work on

15. Community Research Advisory Council at Bayview Major Accomplishments 2012 Developed clinical research booklet Distributed at 20 community event Posted on Bayview Website Plan to modify for East Baltimore campus 2013 Helped revise Trials at Bayview Website Advised to use less words; more photos Organize studies by health condition Feedback was incorporated site http://www.hopkinsmedicine.org/johns_hopkins_bayview/research_clinical_trials/clinical_trials/

16. Community Research Advisory Council at Bayview Founding Partners Community Angelesea to Kane Streets Baltimore Public Defenders Office Baltimore Guide Newspaper Baltimore Medical Systems Bayview Business Association Dundalk Renaissance Corporation Healthy Community Partners Zion Baptist Church Johns Hopkins Bayview Institutional Review Board Office of Community and Government Relations Community Health Library Pastoral Care Public Affairs and Communication President’s Office

17. Community Engagement Program For more information contact Crystal Evans, MS Program Manager cevans20@jhmi.educevans20@jhmi.edu or 410-550-2281