1. Betsy L. Humphreys Deputy Director US National Library of Medicine National Institutes of Health, Department of Health & Human Services blh@nlm.nih.gov Connecting to Opportunities: The NLM Update

2. Connected Opportunities Electronic Health Records ↔ Knowledge Sources Electronic Health Records ↔ Knowledge Sources Clinical & Translational Research Clinical & Translational Research Disaster preparedness & response Disaster preparedness & response Health Literacy, K-12 Education Health Literacy, K-12 Education Recruitment to Our Profession Recruitment to Our Profession

3. Standards for linking to external information sources Clinical decision support Specified that the use of the HL7 Context-Aware Knowledge Retrieval (“Infobutton”) standard would be optional as part of the linked referential decision support capability (and adopted Information Guides) Limited configuration variations to be just based on a user’s role Patient-specific education resources Adopted HL7 Infobutton standard and the URL and SOAP-based implementation guides = Incentive for decision support product development = Opportunity for librarians to assist in assembling the best resources for institution 45 CFR 170.314(a) 2014 EHR Certification Criteria

4. More opportunity to link to link to NLM resources via APIs…

5. MedlinePlus Connect Problem, medication, or lab code-based request Consumer health information targeted response Clinical system Patient portal EHR/Health IT System MedlinePlus Connect Slide 5

7. Recent MedlinePlus Connect Enhancements Diagnosis Codes Diagnosis Codes  Links to related information for patients in Web Service response  Responses to many more codes Medication Codes Medication Codes  Dramatically increase in number of codes we can respond to & improved precision  Direct links to matching pages of medication information in Web Service response  Just Released: Spanish responses, too Slide 7

8. MedlinePlus Connect RxNorm SNOMED CT LOINC www.nlm.nih.gov/healthit/meaningful_use.html Slide 8

9. A New Knowledge Source http://livertox.nih.gov/

10. And a rapidly expanding one… 10

11. Connected Opportunities Electronic Health Records ↔ Knowledge Sources Electronic Health Records ↔ Knowledge Sources Clinical & Translational Research Clinical & Translational Research Disaster preparedness & response Disaster preparedness & response Health Literacy, K-12 Education Health Literacy, K-12 Education Recruitment to Our Profession Recruitment to Our Profession

12. 12

13. 13

14. Refined recruitment status searching

15. Better access to history of changes

17. More help in interpreting records …

18. 18

19. More information for data submitters

20. 20

21. Eight presentations with audio and slides Available under “Online Presentations” at http://clinicaltrials.gov/ct2/manage-recs/present Available under “Online Presentations” at http://clinicaltrials.gov/ct2/manage-recs/present 1.Overview of ClinicalTrials.gov 2.Key FDAAA Issues 3.PRS Information and Data Review Process 4.PRS Accounts and Registration Results 5. Participant Flow Module 6. Baseline Characteristics Module 7. Outcome Measures and Statistical Analysis Module 8. Adverse Events Module ClinicalTrials.gov training 21

22. NLM Supplements to Research Grants for Informationist Services 8 administrative supplement awards made by NLM to research grantees of Institutes of Aging, Cancer, Dental, Deafness, Eye & NLM 8 administrative supplement awards made by NLM to research grantees of Institutes of Aging, Cancer, Dental, Deafness, Eye & NLM – Awards bring 15 librarian information specialists into research settings, and measure the value of their contributions – Three of the librarians are former NLM Associate Fellows – Co-funding from Deafness & Cancer Institutes

23. Some Examples Lisa Federer R01 EY-21590, Grundfest, Warren H. UCLA. Grant title: Non-contact, THz Sensing of Corneal Hydration. Lisa Federer, Louise Darling Library Sally Gore R01 CA-132935, Luckmann, Roger. U Mass Worcester. Grant title: Promoting Breast Cancer Screening in Non-Adherent Women. Sally Gore, Souter Library Victoria Goode R01 CA-116477 Sgouros, George. Johns Hopkins University. Grant title: Dose-Response in Radionuclide Therapy. Victoria Goode, Welch Medical Library Theodora BakkerKaren Hanson R01 DC-011329, Svirsky, Mario A. New York University. Grant title: Clinical Management of Cochlear Implant Patients with Contralateral Hearing Aids. Theodora Bakker & Karen Hanson, NYU Health Sciences Library Claire TwoseJennifer Darragh R01 AG-040100, Szanton, Sarah. Johns Hopkins University. Grant title: Reducing disability via a Bundled Bio-Behavioral-Environmental Approach. Claire Twose & Jennifer Darragh, Welch Medical Library

24. Connected Opportunities Electronic Health Records ↔ Knowledge Sources Electronic Health Records ↔ Knowledge Sources Clinical & Translational Research Clinical & Translational Research Disaster preparedness & response Disaster preparedness & response Health Literacy, K-12 Education Health Literacy, K-12 Education Recruitment to Our Profession Recruitment to Our Profession

25. You have experts in your midst…

26. Connected Opportunities Electronic Health Records ↔ Knowledge Sources Electronic Health Records ↔ Knowledge Sources Clinical & Translational Research Clinical & Translational Research Disaster preparedness & response Disaster preparedness & response Health Literacy, K-12 Education Health Literacy, K-12 Education Recruitment to Our Profession Recruitment to Our Profession

27. More tools to reach more populations

28. After School Activity Club Developed by cross curriculum middle school teachers  Two Science  One English  One Social Studies Tox Town as core research tool Science inquiry integrated with social action Six units 1. Water quality 2. Air quality 3. Chemicals in Your Home 4. Food Safety 5. Runoff, Impervious Surfaces, and Smart Development 6. The Great Debate: Bottled vs. Tap Water http://sis.nlm.nih.gov/outreach/k12.html Slide 28

29. GeneEd Portal of genetic resources for high school students and teachers National Association of Biology Teachers survey defined the need Partnership between: – NLM – SIS, NCBI, Lister Hill - Genetics Home Reference – National Human Genome Research Institute – ICF Genetics subject experts Slide 29

30. Exhibitions - a great outreach tool

31. Soon to have traveled to all 50 states…

32. www.nlm.nih.gov/nativevoices traveling version in development

33. Connected Opportunities Electronic Health Records ↔ Knowledge Sources Electronic Health Records ↔ Knowledge Sources Clinical & Translational Research Clinical & Translational Research Disaster preparedness & response Disaster preparedness & response Health Literacy, K-12 Education Health Literacy, K-12 Education Recruitment to Our Profession Recruitment to Our Profession

34. WE are our own best recruiters 2012/2013 NLM Associate Fellows

35. 2012 MLA/NLM Spectrum Scholar “Working at NLM has truly been life changing. The encouragement I received from many of the folks here really inspired me to go into health sciences librarianship. Prior to coming to NLM, the thought of becoming a librarian never even crossed my mind.” - October 12, 2012

36. Thank you. Betsy L. Humphreys, MLS Deputy Director blh@nlm.nih.gov