1. Patient Partner and Health: Reality and Challenges
By Vincent Dumez, patient expert University of Montréal, Faculty of medicine Collaboration and Patient Partnership Unit SMI – November 6th 2014

2. I EXPERIENCED PATIENT MANAGEMENT CONSULTANT PROJECT DEVELOPER
LIVES CONVERGENCE

3. “ A KEY ACTOR IS MISSING IN THE CREATIVE PROCESS OF A STRUGGLING HEALTH SYSTEM “
Dean Faculty of medicine, 2010

4. POPULATION IS STRUGGLING
50% +
of western countries’ populations suffer from at least one chronic disease :
POPULATION IS STRUGGLING
IN THIS ROOM, HALF OF THE PUBLIC HAS A CHRONIC DESEASE
WE ARE A SICK POPULATION

5. 50 to 80%
of these patients don’t properly respect their prescriptions :
INDIVIDUALS ARE STRUGGLING
WHY INTELLIGENT PEOPLE DON’T RESPECT THEIR TREATMENT ?
NOT A QUESTION OF RESPONSABILITY, BUT A QUESTION OF EMPOWERMENT
CAPACITY TO HELP THOSE PEOPLE TO TAKE CARE OF THEMSELVES

6. 80% + of patients search online for health-related information
But even with this easy access WE ARE STILL STRUGGLING
WHY DO THEY LOOK SYSTEMACALLY FOR THS KIND OF BROAD INFORMATION ?
BECAUSE THEY DON’T HAVE ACCESS TO STRUCTURED AND ADAPTED INFORMATION THROUGH THEIR CARE TEAM
BECAUSE THEY DON’T UNDERSTAND AND THEY LOOK FOR ANSWERS

7. NOT SO MUCH TIME IN THE END 
5-10 hours
= Average ANNUAL TIME spent by chronic patients with their health professionals
NOT SO MUCH TIME IN THE END 

8. Therefore ignoring huge amounts of valued EXPERIENCE BASED KNOWLEDGE
6000+ hours
= average ANNUAL TIME spent by chronic patients + families for their own care
Therefore ignoring huge amounts of valued EXPERIENCE BASED KNOWLEDGE

9. « PUSHING SOLUTIONS » MODE
Stuck in paternalism
PATIENTS OUTSIDE
EXPERTS THINKING FOR THEM
PUSHING SOLUTIONS
REINFORCEMENT OF PASSIVE POSITION OF THE PATIENT
OBVIOUS, NO ?
« PUSHING SOLUTIONS » MODE

10. CO-BUILDING FROM EXPERIENCE
Move to partnership
LIVING WITH AN ILLNESS
EXPERTS
DISEASE
HEALTH PROFESSIONALS
PATIENTS
CO-BUILDING FROM EXPERIENCE
TO RENEW HEALTH SYSTEM
DO WITH THE PATIENT
PATIENT INSIDE THE EXPERTISE CIRCLE
CONSIDER AS AN ACTOR OF CARE
FULL PART OF A CO-BUILDING DYNAMIC
FULL PART OF THE SUCCESS OF THE CARE PROCESS
WE CAN’T DO WITHOUT PATIENTS
A NEW PARADIGM TO RENEW A STRUGGLING SYSTEM WITH NO SOLUTION
A CREATIVITY PARTNER

11. CHANGE IN HEALTH SCIENCES EDUCATION :
STRENGTHEN HUMANITIES CURRICULUM
CHANGE IN HEALTH CARE AND SERVICES :
STRENGTHEN PARTNERSHIP IN CARE
CHANGE IN RESEARCH : STRENGTHEN POPULATION NEED FOCUS

12. TOWARD A PARTNERSHIP IN HEALTH SCHOOL
« MONTREAL MODEL »
PARTNERING IN HEALTH EDUCATION
+120 patients-as-trainers
PROGRAMS TRANSFORMATION
STUDENTS TRAINING / MENTORING
CO-LEAD UNIT
PATENT EXPERTS
RESEARCHERS
HEALTH PROFESSIONALS
HEALTH MANAGERS
TOWARD A PARTNERSHIP IN HEALTH SCHOOL
PARTNERING IN CARE
+75 patients-as-advisors
QUALITY IMPROVMENT & GOVERNANCE
PUBLIC POLICY ENHANCEMENT
PARTNERING IN RESEARCH
+5 patients-as-researchers
RESEARCH GOVERNANCE
RESEARCH RELEVANCE & TRANSLATION
DEDICATED TO CO-BUILDING AND CREATIVITY FROM EXPERIENCES
FIELDS OF EXPERIMENTATION
UNDERSTANDING PARTNERSIP IN DIFFERENT WAYS
UNDERSTANDING RULES OF ENGAGEMENT
HOW TO CREATE TOGETHER

13. Twitter
@patients_udm