1. www.samh.org.uk Scottish Association for Mental Health Involving people who use services in research

2. WWW.SAMH.ORG.UK SAMH Scotland’s leading mental health charity Operational activity: –Direct services –National Programmes –Lobbying and Campaigning –Fundraising

3. WWW.SAMH.ORG.UK People who use our services 3300 use our direct services each week 25,000 use our website each month Many more involved in our national programme work: –Suicide Prevention –Sport and Physical Activity –Anti-stigma –Anti-bullying –Trauma

4. WWW.SAMH.ORG.UK Involving People in Research Who is the target audience? Do they have the skills to take part in the ways envisaged? If working with partners – are they the right ones? Terminology Accessibility Other equality issues

5. WWW.SAMH.ORG.UK Involving people in research Supporting involvement and participation When and how to involve – design?; delivery?; response? Beware of involvement fatigue Action-led and peer-led research Electronic involvement and its limits Face-to-face and its limits Involvement requires investment

6. WWW.SAMH.ORG.UK Ethics Are people involved in considering ethical considerations Ironic that ethical considerations tend to be ‘done to’ people rather than ‘with’ people Human rights Transparency Sensitivity does not mean paternalism or exclusion

7. WWW.SAMH.ORG.UK Feedback Crucial issue People have the right to know the outcomes of the research and how these will be used ‘A World to Belong To’ example Feedback requires investment

8. WWW.SAMH.ORG.UK In conclusion Very important to capture the real life experiences of people who use services Involvement requires careful planning, delivery and feedback Involvement requires investment Partnership approach essential Use an impact assessment approach