2. Our Mission…
To ensure that all those impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.

3. The Universal Challenges of Cancer
Increased Stress
Loss of Control and Hope
Social Isolation

4. GCSF Program Model 5 Core Components: Support Groups & Services
Education
Healthy Living Classes
Social Connections
Linkage and Referral

5. Core Component 1: Support
New Member/Newcomer meetings
Psychosocial Screening & Personal Support Plans
Decision Assistance/Question List Counseling (Open to Options™)
Group Support for people with cancer
Group Support for Family, Friends, & Caregivers

6. Core Component 1: Support Cont…
Groups/other activities for children/teens who have a family member with cancer or who have cancer themselves
Cancer-related bereavement support for all ages
Short-term cancer counseling for individuals and families (Optional)
Awareness of & access to individual/group support online

7. Core Component 2 : Education
Lectures/workshops about:
cancer and its treatment
psychosocial issues
Skill-building programs
Workplace, school &
Faith-based education/support programs
Awareness of & access to educational materials and programs online

8. Core Component 3 : Healthy Living Classes
Mind-body programs
Exercise & physical activity programs
Nutrition education & awareness activities
Expressive Arts
Health maintenance & awareness

9. Core Component 4: Social Connections
Activities interaction, play, & humor (e.g. , Pot Lucks, Gilda’s Got Talent, Noogiefest)
Social activities for families facing cancer who have children and/or teens
Awareness of & access to social networking opportunities online

10. Core Component 5: Linkage & Referral
Personalized assistance & referral to resources within CSC and in the broader community as needed
Resource library & computer access
Awareness of & access to online information about local/national resources

11. National Helpline
Provides emotional support counseling for cancer patients, survivors, loved ones, and caregivers
Provides navigation on practical resources available to you
English & Spanish counselors available
Translation service available for 200 additional languages
M-F 9am – 9pm ET
Live web chat also available

12. www.MyLifeLine.org Interactive Blogging & Updates Helping Calendar
Let family and friends know how you’re doing. We’ll them when you post an update.
Helping Calendar
Coordinate volunteers to help with meals, rides to treatment, errands, child care, pet care, and more.
Discussion Boards
Connect with other patients and caregivers in an online forum to support each other with information, opinions, stories, and inspiration.
Care Coordinators
Make life easier by setting up family and friends as “Care Coordinators” to help manage your site and organize volunteers.
Privacy Controls
Your cancer experience is personal. Ensure the right people have access to comment on your site and volunteer.

13. What is it?
Research survey to identify and understand emotional and social needs unique to the cancer experience
Informs medical professionals and patient advocates about patient needs to improve quality of care
Confidential and secure

14. Who is it for? Caregivers (loved ones who help patients)
Cancer Patients/Survivors
People facing any cancer, including:
Acute Myeloid Leukemia (AML)
Breast Cancer
Metastatic Breast Cancer
Chronic Lymphocytic Leukemia (CLL)
Chronic Myeloid Leukemia (CML)
Lung Cancer
Melanoma
Multiple Myeloma
Prostate Cancer
Stomach Cancer

15. How to Join? Go to www.CancerExperienceRegistry.org
Register in 3 steps
Agree to informed consent
Submit your & select a primary cancer or caregiver status
Complete your profile
3. Fill out the survey to share your experience
4. Set up your personalized page
5. Check back for education resources and new surveys

16. Join Our Grassroots Movement
Help ensure that people touched by cancer have access to quality, comprehensive cancer care that includes social and emotional support.
This community will provide you the opportunity to:
Get up-to-date information on key issues that are important to patients with cancer and their loved ones
Be part of a network that interacts with Capitol Hill and other policymakers on important issues to cancer patients
Have your voice heard along side other voices of patients with cancer and their loved ones
To join, visit: