1. LAS ACADEMY THE ROLE OF PATIENT AND PUBLIC INVOLVEMENT IN PATIENT CARE Malcolm Alexander Chair, Patients Forum for the LAS

2. Who am I? Malcolm Alexander – Chair of the Patients’ Forum/LAS
Board Member Healthwatch Hackney
Member of Patient and Public Involvement Panel

3. Why is PPI important?

4. YOUR EXPERIENCES Have you experienced services that could be improved?
Have you taken action?
Have you positive empowering experiences of getting service improved?
Is the patients’ voice too strong or too weak?

5. ARNSTEIN’S LADDER

6. Patients’ Forum LAS
Established in 2003 to create a public voice in LAS
Meets monthly in public to discuss effectiveness of LAS
Giving patients and the public a voice in the LAS
Questions and engages LAS officers about service quality and access
Good relationship with senior LAS staff who provide informative updates on LAS developments and vision
Attend LAS Board, committees and groups
Influences policy and practice of LAS

7. PATIENTS AND PUBLIC INVOLVEMENT PANEL PPIP
Offer a patient and/or public perspective on the overall aims and objectives of the Paramedic Programme
Exchange ideas, offer assistance with internal assessment and recruitment to the Programme recruitment of volunteers to assist with Programme delivery and development for individual semesters
Academy PPIP members: Paul Bates (Programme Manager), Dominic Browne (Programme Lead) and Angela Hilliard (Programme Lead)
Forum members:Polly Healy, Janet Marriott, Malcolm Alexander

8. Statutory Duty to Involve and Consult
NHS ENGLAND
We must put every citizen and patient voice absolutely at the heart of every decision we take in purchasing, commissioning and providing services.
National Director of Patients and Information - NHS England
DEPARTMENT OF HEALTH
Users must be involved not only in the consideration of proposals to change services, but also in the development of any proposal that will change the manner in which a health service is provided. Real Involvement (DH 2008)
NHS CONSTITUTION (2013) PLEDGES AND PROMISES
You have the right to be involved, directly or through representatives, in the planning of healthcare services commissioned by NHS bodies, the development and consideration of proposals for changes in the way those services are provided, and in decisions to be made affecting the operation of those services.

9. LAS COMMITMENT TO PATIENT INVOLVEMENT THE QUALITY ACCOUNT
Patients will have a stronger voice than ever before
The patient is at the centre of everything that we do
We will listen to staff and patients to determine priorities
Patient/carer involvement in all our improvement work
Integral to all programmes must be robust patient and staff involvement
We need to listen to our patients, their families and carers, and respond to their feedback
Our goal being to have patient involvement in all service redesign programmes and a patient involvement framework developed to apply this goal consistently
We need to widen and increase our public involvement in both the development of these new services and monitoring of their success.

10. Examples of Forum Involvement
Sickle Cell
Diabetes
Ambulance Queuing
Mental Health Care
Dementia care
Stroke diagnosis
 Active involvement in End of Life Care developments
Complaints investigations
Patient Specific Protocols
Equality and Inclusion
Joining interviews for Midwifery and End of Life Care staff
Creating engagement between the LAS and patients
Supporting the work of the LAS Academy

11. Case study one STROKE CARE
R is a young woman who suffered a stroke while at work causing her speech and mobility problems
Her partner C was dissatisfied with the care R received and complained to the LAS and Ombudsman with a positive outcome
C now helps the LAS with staff education and training

12. Case study Two Sickle Cell Care and Treatment
PUBLIC MEETING ATTENDED BY 30 PEOPLE WITH SICKLE CELL AND THEIR FAMILIES
DESCRIPTION OF EXPERIENCES WITH THE LAS - MEDICAL DIRECTOR LISTENED AND RESPONDED
CSR UPDATED AND IMPROVED TO ENHANCE TRAINING
THREE CARU REPORTS SHOWED SIGNIFICANT IMPROVEMENT IN EXPERIENCE OF CARE
MEETING WITH THE LAS BOARD + PRIORITIES
FILMING TODAY AT SICKLE CELL SUMMER CAMP

13. Cooperation and Co-production
Collaboration between Healthwatch and the Patients’ Forum
Working with the LAS Commissioners
Reporting to the Care Quality Commission
London Assembly review of the LAS

14. Power: A Radical View. LUKES THREE DIMENSIONS OF POWER
Decision-making power is the most visual and public form of power. This "face" of power focuses on policy preferences revealed through social and political action.
Hidden power sets the agenda in organisations and debates and makes certain issues acceptable or unacceptable for discussion in "legitimate" public forums. It lets you think you believe are part of decision-making.
Ideological power influences people's wishes and thoughts, even making them want things opposed to their own self-interest (e.g., causing women to support a patriarchal society).

15. THE END THANKYOU MALCOLM ALEXANDER PATIENTSFORUMLAS@AOL.COM