1. Inclusion and Ethics Professor Simon Rogerson
Centre for Computing and Social Responsibility
De Montfort University, UK

2. ICT potential self-learning and adapting systems
human activity recognition
tracking technologies and sensors
sharing of contextual information between different services and objects
virtual community technologies

3. FP7 context
research activities supported by the Framework Programme should respect fundamental ethical principles
Charter of Fundamental Rights of the European Union
opinions of the European Group on Ethics in Science and New Technologies (EGE)
any proposal which contravenes fundamental ethical principles shall not be selected and may be excluded from the evaluation, selection and award procedures at any time

4. Due regard explicitly address ethical concerns
the research
its conduct
its outcomes
ethical issues beyond the obvious must be addressed
likely that new, sensitive applications will come to the fore
specific tasks or specific work package

5. Privacy right to privacy and data protection is a fundamental right
Europeans view personal privacy as an important issue
compliance with Data Protection legislation
research volunteers have the right to remain anonymous
manner in which research outcomes are reported must not contravene the right to privacy and data protection
must carefully evaluate and report the personal privacy implications of the intended use or potential use of the research outcomes
volunteers (conduct) and beneficiaries (outcome)

6. Informed consent
whenever research involves volunteers in interviews, behavioural observation, invasive and non-invasive experimentation, and accessing personal data records
empowers the individual to make a voluntary informed decision about whether or not to participate in the research based on knowledge of the purpose, procedures and outcomes of the research
information must be given specifying the alternatives, risks, and benefits for those involved in a way they understand
right to withdraw consent at any time and, if requested, associated data destroyed
special consideration must be given when volunteers have reduced autonomy or are vulnerable

7. A typical sensitive area
ICT implants and wearable computing devices must not:
allow individuals to be located on a permanent and/or occasional basis, without the individual’s prior knowledge and consent
allow information to be changed remotely without the individual’s prior knowledge and consent
be used to support any kind of discrimination
be used to manipulate mental functions or change personal identity, memory, self perception, perception of others
be used to enhance capabilities in order to dominate others, or enable remote control over the will of other people

8. Enrich Your Elderly proposal
ICT research aimed at increasing the independence and quality of life of the elderly suffering from dementia
Conduct of research
Collection of evidence from dementia sufferers
Testing protocols
Who defines quality of life
Outcome of research
Tracking and monitoring – right to privacy and autonomy
Associated medical data and death of a person
Potential misuse of application

9. An approach to addressing the ethical dimension
Work Package which spans the life of the project.
Start of Project Review
Undertake a thorough review of the potential ethical and social impact of the project culminating in a Project Ethics Agenda which will guide both the substance and conduct of the research throughout the life of the project
Intermediate Review(s)
Review the project components and identify potential ethical issues regarding both the project process and the anticipated project outcomes
End of Project Review
Review the project outcomes to identify any inherent positive and negative ethical effects

10. Responsible research
“The rapid pace of scientific and technological progress can give rise to serious ethical questions of concern to all Europeans. These questions may also have potential implications for future generations.”
Science and Society Action Plan
European Commission, 2002