1. Greater Manchester Cancer
Taking Stock: challenges, achievements and progress…and looking forward Lindsey Wilby Macmillan Project Manager – Living with and Beyond Cancer
December 2018

2. Greater Manchester Cancer
GM Cancer

3. What are we not doing today?
Greater Manchester Cancer
Workshop aims
Talking about the Recovery Package, in detail, and considering how we can increase the scale and pace of implementation
Learning more about:
the relationship between GM cancer and Macmillan
the national perspective
the Prehab4 Cancer project
Participating…debating…challenging…sharing
What are we doing today?
Going over the basics
Talking about other aspects of the LWBC agenda in detail*
Listening to me talk all day!
What are we not doing today?

4. Chapter 10 devoted to this area of work

5. What do YOU want to get out of today?
Greater Manchester Cancer
What do YOU want to get out of today?
It’s your workshop!
@LindseyWilbyMC
Sli.do #8967

6. Past Present Future Objectives
Greater Manchester Cancer
Objectives
Past
Remind ourselves of what we’re doing and why
Look back at where we’ve come from, 18 months ago
Present
What progress have we made? Where are we now?
What has stopped us moving further, faster?
Future
Where do we need to get to?
How are we going to achieve that? And know when we have?
Are there examples of best practice that we can learn from?

7. What are we doing and why…
Greater Manchester Cancer
What are we doing and why…
Benefits for patients

8. What are we doing and why…
Greater Manchester Cancer
What are we doing and why…
Cancer Reform Strategy: set up of NCSI
NCSI: Living with and beyond cancer: Taking Action to Improve Outcomes
National Cancer Strategy (AWCCO)
NHS Operational Planning Guidance
GM Cancer plan (AWCCO: Taking Charge in GM)
2017
2016
2015
2007

9. Greater Manchester Cancer
18 months ago (June 2017)…
Only 4 project managers in post – Pennine, Bolton, Wigan, East Cheshire – out of 10 sites
(Unrealistic) target announced
No standard approach to implementation
Patchy knowledge, and little senior/executive engagement
Very few people attempting eHNA (3 Trusts signed up?)
No data
No agreement as to who was responsible for the delivery of each intervention

10. Progress to date/current work (and challenges)
Greater Manchester Cancer
Progress to date/current work (and challenges)
Project managers in post in 8 out of 10 sites
…10 out of 10 until this week
Implementation group
Macmillan leads and lead cancer nurses
Steering group: standard approach to implementation
Needs updating? Further dissemination?
GM dataset; third quarter of data due this week
capturing c.1500 HNAs per quarter
national dataset in progress

11. Progress to date/current work (and challenges)
Greater Manchester Cancer
Progress to date/current work (and challenges)
Strong engagement with all Trusts, including senior leads and executive leads – clear expectations
challenges persist with individual teams and clinicians
9 out of 10 sites signed up to eHNA; varying degrees of implementation
time, hardware, connectivity, compatibility, culture
100% target remains in place
But remains unrealistic…

12. Progress to date/current work (and challenges)
Greater Manchester Cancer
Progress to date/current work (and challenges)
Treatment summaries
Finally making progress (details later)
Health and wellbeing
Lots of examples of good practice but no definitive model; resourcing/sustainability
User involvement
PABC on steering group, implementation group, involved at Trust level, and at all pathway mapping workshops and LWBC events
Pathway mapping

13. Pathway Mapping Workshops
Greater Manchester Cancer
Pathway Mapping Workshops
Planning one for every site-specific pathway board: 7 completed, 1 more planned, ambition to do more
Sometimes with charity or industry support
Attended by a CNS from every Trust, plus AHPs, PABC, and GM Cancer
For each treatment pathway/sub-diagnosis, we map out:
when, where, who, whether or not?
for each of 1st HNA, 2nd HNA, and treatment summary

14. Greater Manchester Cancer
What else?.....

15. Where do we need to get to?
Greater Manchester Cancer
Where do we need to get to?
100% of patients receiving the Recovery Package?
HNA? No
Formal change request to GM Cancer Board? …backed up by data
What (HNA or eHNA), who, where, and when
Treatment summaries?
Yes!

16. Where do we need to get to?
Greater Manchester Cancer
Where do we need to get to?
100% of patients receiving the Recovery Package?
Health and wellbeing?
Events, no?
Information and support, yes
Links with Prehab4Cancer
Cancer Care Reviews?
Yes
But quality and timing of these

17. How are we going to achieve that? What are we doing well?
Greater Manchester Cancer
How are we going to achieve that?
What are we doing well?
What could we do better?
How will we know when we have?
Measurement…NHSE metrics? Other?
QoL metric? ePROMS?
Are there examples of best practice that we can learn from?
What are some sites doing well?
What are the barriers to other sites doing the same?
Over to you…