1. Hi I’m [name], please take extra care of me I have a special heart
If I’m ill please help me quickly – Multiple symptoms call 999
[Child’s name]
[Address]
DoB:
NHS Number:
Consultant:
Medication:
GP:
SITUATION
MOST CHILDREN ME
Chest Pains
Sit quietly, rub better
Sit quietly, look for other symptoms, call parents
Shortness of Breath
Sit quietly
Shallow Breathing/ Fast Breathing
Sit quietly, tell parents at end of day
Not breathing all the way to diaphragm or more than 40 breaths per minute are dangerous. Call parents.
If sleepy, or blue call 999.
Unresponsive/Unconscious
Call parents/ call 999
This could be related to my heart or another illness putting stress on my heart - call 999.
Pale & Sweaty
Fresh air & drink of water
Dizziness
Monitor look for other symptoms
Bleeding
First aid
First aid but if excessive call 999
I’m Cold
“Run about”
Let me wear extra layer e.g. gloves or come inside
Temperature
Monitor
Call parents, can escalate quickly
Blue Hands, Feet, Lips
Extra jumper
Look for other symptoms, add layers, then call parents if still blue
Pain in Arms, Neck, Jaw
Think about sprains
Look for other symptoms. Call parents.
Tired
“Try harder”
Let me have a rest, skip activity
999
Mum (name): [tel no.]
Dad (name): [tel. no]
999
THEN
[Brief history of heart condition and surgeries]
MY SCAR
[what your child calls their scar and any relevant info about it]
DRINKS
[information about the importance of staying hydrated]
EXERCISE [specific needs relating to exercise]
SWIMMING [specific needs relating to swimming]
NOW
[how heart condition affects child now]
If I show any symptoms no matter how mild e.g. getting tired please tell Mummy and Daddy I might need to see the Dr and may not remember to tell them myself