2. A
It’s a family affair!
Working with families living with a life-limiting diagnosis
Cath Thompson MA, BSc, RMN
Head of Care Services
Tŷ Hafan

3. Life-limiting condition
Multi level impact
Individual
Family level
Societal level
Impact on dynamics of family
Impact on communication patterns internal and external
Impact on family structure

4. Family Systems Theory
Framework for studying a group of related elements that interact as a whole
Has several basic concepts
Characterized by wholeness or unity
Governed by rules
Described by degree of openness

5. Family stress theory
‘A stressor event is defined as a life –event or occurrence that affects the family unit and produces, or has the opportunity to produce change in the family system.’
McHale and Smith 1991

6. communication Generational patterns of parenting/family life
Structure of family
Open or closed systems
Protection
Culture
Aspirations, hopes and dreams
Developmental stage of family
Myths, belief systems and values
Nature of illness
Response to stressors

7. Family life
perception
reality

8. Family life Responses to change alter over time
Individuals within families do not think and feel the same at the same time
Multiple layer emotional and psychological attachments
Protection v autonomy

9. Successful working Recognize factors
Work with families not against them
Rights and responsibilities
Empowerment and problem solving their way, not yours
Move at families pace, not yours
Be open
Communicate
Facilitate don’t dictate
Tread lightly, don’t leave your footprints

10. It’s a family affair!