1. Involving children and young people in decision making
Turkay Mahmoud, Interim CEO, Healthwatch Hillingdon

2. Who we are Independent, local health and social care watchdog
One of 152 local Healthwatch organisations
Led nationally by Healthwatch England
Working to ensure consumer views are represented

3. What we do Information, advice and signposting service
Gather experiences and views to guide our work
Work strategically with health and social care partners
Have statutory powers and can influence service delivery and design
Located in shopping centre in main town centre.
Open shop means accessible to public.

4. Children and young people
All age service but…
…generally not accessed by children and young people
Feedback from parents and carers led to CYP wellbeing project
CYP don’t generally come into the shop.
Received feedback from parents and carers about Hillingdon CAMHS and the Children’s Development Centre at Hillingdon Hospital.
Led to the first big piece of work involving CYP strategically.

5. CYP Mental Health and Wellbeing Project
Worked with Voluntary Sector Partners
Face to face interviews
Focus groups
Surveys
Interviews, focus groups and surveys with parents/carers and young people.
Produced interim report ‘Listen to me!’ in December 2014 which outlined issues and recommendations for improvement.
Highlighted long waiting lists, high attendance at A&E for self harm, a service review completed without user involvement, lack of early intervention etc.
Endorsed by HCCG and Hillingdon Council.

6. CYP Mental Health and Wellbeing Project
Multi-stakeholder CYP Mental Health and Wellbeing group formed by commissioners
Joint Social Emotional Wellbeing and Mental Health Strategy started
Children’s Mental Health Needs Assessment commissioned
Interim funding to reduce Tier 3 waiting list
Funding for LD CAMHS, Out-of-Hours CAMHS intervention at A+E and Perinatal services
Report was catalyst for change.
Action taken locally.
Influence national policy through introduction by Healthwatch England.
Our findings echoed by Future in Mind.
We then produced a comprehensive report – ‘Seen and heard – Why not now?’ – including hard hitting stories from young people.
Insights from the report were highlighted throughout Hillingdon’s CYP Mental Health and Wellbeing Local Transformation Plan.

7. Next steps Employed CYP Community Engagement Officer
Developed youth engagement programmes
Bid for funding to support programmes
Consulted with young people about CAMHS for CQC
Realised we wanted/needed to do more to engage with children and young people.
Programmes: Young Healthwatch Hillingdon and Mental Health, Wellbeing and Life Skills programme for secondary schools
Awarded £10k from Awards for All to support the first year of Young Healthwatch Hillingdon and £2.5k from Hillingdon Community Trust to deliver the pilot Mental Health, Wellbeing and Life Skills programme at one local secondary school.
Commissioned by CQC to carry out engagement as part of stage 2 of their national review of CYP mental health and wellbeing services.

8. School programmes Pilot was a success Secured more funding
Now running programme in four further schools
Also running Peer Support Training Programme in five schools
The Mental Health, Wellbeing and Life Skills programme involves as small cohort of students taking part in education sessions about mental health, wellbeing and stigma and discrimination and then using their learning, along with evidence from a whole school mental health survey, to create an awareness raising campaign to benefit the whole school population; encouraging students to talk about mental health and reach out for help.
Outcomes showed an increase in knowledge, confidence and understanding across the board.
Pilot was a success and we received a local award for our contribution to local wellbeing.
Enabled us to secure Saturday Fund money to run in further schools and develop and deliver a Peer Support Training Programme in five schools.

9. Measuring our success 66.7% to 81.3% 57.1% - 100% 57.3% - 60.3%
Measure
Impact
An increase in the number of participants that agreed that they have the knowledge and confidence to help make their school a more open and supportive place.
66.7% to 81.3%
An increase in the number of participants who agreed that they know how to improve and protect their own mental health.
57.1% - 100%
An increase in the number of students who agreed they know where to go for mental health information and support.
57.3% %
Use knowledge, confidence and skills measures to assess impact through before and after programme surveys with direct participants and before and after campaign (delivered by direct participants) surveys with whole school population.
Data on this slide is from the pilot programme.
First two bullet points show impact with direct participants.
Last bullet point shows impact with school population.

10. Measuring our success 62.8% - 74.9% Measure Impact
An increase in the number of students who agreed they know where to go for mental health information and support.
62.8% %
Data on this slide is from school in which we have just delivered.
Shows impact on whole school population following campaign by direct participants.
Still waiting for data from direct participants.
Still waiting for data from other school and will have more data in June from further schools.

11. School programmes – Involvement Outcomes
Student participants presented to key stakeholders
Young person spoke at LSCB
Participant schools implementing support based on student recommendations
Pilot school participants presented their learning and recommendations to school leadership, but also to representatives from Hillingdon CAMHS. OUTCOME - This inspired the representatives to develop further participation in the local CAMHS service.
One student attended a meeting of the Local Safeguarding Children’s Board and shared her experiences. OUTCOME – This highlighted to the board the importance of working with schools around young people’s wellbeing.
OUTCOMES – The participant schools we have worked with to date have worked with participating students to plan further support options for their school communities including signing up to our Peer Support Training Programme, establishing peer support services in school and external support services such as Toot! and Kahoot.

12. Young Healthwatch Hillingdon
Youth volunteering programme
To date – 28 trained young volunteers
February to December 2018 – 700+ volunteering hours
Engagement, awareness raising and strategic involvement
28 trained young volunteers to date. Aged 11 to 20.

13. Measuring our success
100% of respondents agreed that they have gained knowledge e.g. of the health sector.
100% of respondents agreed that they have gained skills including time management, organisation, public speaking and people skills.
100% of respondents agreed that they have gained confidence in public speaking, interacting with others and leadership.
Surveyed YHwH members in November 2018 for Awards for All funding report.
Will review impact on volunteers each year.

14. Measuring our success
Feedback from young people YHwH have interacted with –
“I have struggled with eating disorders and you doing this is amazing. I just want to say thank you.” Young person
Feedback from partner organisations -
“Your scheme and approach is a flagship model for getting young people involved in their local health services so long may it continue.” Hillingdon Hospital rep
Success of NHS Takeover Challenge bid based on YHwH work
Always ask for feedback from partners and CYP involved.
NHS Takeover Challenge bid was submitted by Hillingdon CCG.
Funding to support further strategic involvement of young people in local health services.
Bid was based on extending the already excellent work of YHwH.

15. Young Healthwatch Hillingdon - Outcomes
PLACE Assessments and hospital ‘Wayfinding’ inspection
Gathering young people’s views leading to action
Hillingdon CYP Mental Health & Wellbeing Local Transformation Plan
Brook Wellbeing Workshops
Outcome – Influencing decisions about improvements to cleanliness and condition of hospital and hospital signage and accessibility.
Outcome – Feedback gathered by YHwH from young people has led to the development of a ‘Safe Spaces’ peer support project in the borough.
Outcome – Feedback from YHwH shared with the Hillingdon Health and Wellbeing Board and used to support the focus of greater school based interventions in the Hillingdon CYP Mental Health and Wellbeing Local Transformation Plan.
Outcome – YHwH members regularly meet with reps from Brook Sexual Health to help shape the training workshops they offer young people.

16. Building on our success
Further PLACE Assessments
Transitions project (NHS Takeover Challenge Bid)
Early intervention wellbeing project (NHS Takeover Challenge Bid)
School Nursing Service engagement
Transitions project – Working with Hillingdon CCG to shape the transition pathway for young people moving from pediatrics to adult health services. Facilitating sessions with young people and working with the CCG at strategic level.
Early intervention wellbeing – Working strategically with the CCG to shape local wellbeing early intervention for young people.
School Nursing – Working with the Hillingdon School Nursing Team to influence how the service delivers it’s drop in service in schools. Engaging with young people and feeding this back to school nurses as well as giving their own ideas.

17. How can funders provide support to organisations?
Encourage applicants to evidence CYP influence in bids and provide guidance
How can funders involve CYP?
Engage CYP to establish funding streams
Involve CYP on funding allocation panels e.g. NHS Takeover Challenge
Support to organisations
Include sections in application forms for outlining CYP influence in decision to bid for money and shaping projects. Provide good practice examples to assist.
Funders involving CYP
Work with young people to establish what sort of funding streams should be offered e.g. should there be a fund specifically focused on obesity projects or early intervention for anxiety? What do young people think.
CYP to sit on panels making decisions about funding applications that impact on this cohort. Example of all bids to the 2019 NHS Takeover Challenge Fund. The British Youth Council made the final decision on which applications would receive funding.

18. Questions?

19. Contact Kim Markham-Jones CYP Community Engagement Officer
healthwatchhillingdon.org.uk