1. R. Raghavan, A.Farooqi, K.Jutlla, B.Desai, N. Patel, A.Wilson
Recruitment and research participation of Black Asian and Minority Ethnic citizens in health research in the UK: A tool kit for good practice
R. Raghavan, A.Farooqi, K.Jutlla, B.Desai, N. Patel, A.Wilson
De Montfort University, Leicester City Clinical Commissioning Group, University of Leicester
MERH World Congress May,2018 Edinburgh 1

2. Context UK Population East Midlands / Leicester Diversity and Health
Hard to Reach/ Easy to ignore
Policy / Researcher awareness
MERH World Congress May,2018 Edinburgh

3. Ethnicity and Health
Do we understand the diverse needs of black and minority ethnic communities?
Do our services meet the diverse needs and aspirations of black and minority ethnic communities?
Do we provide an appropriate and professional service to black and minority ethnic communities?
Do we achieve equally high outcomes for all ethnic groups in all our various activities?
MERH World Congress May,2018 Edinburgh

4. Aim
Develop a toolkit to guide and support those wanting to conduct research with BAME populations and consequently increase their representation in UK health-related research
MERH World Congress May,2018 Edinburgh

5. What do we know already
Language use and ability; participants’ English speaking ability, translation and interpretation issues, and illiteracy.
Socio-cultural factors that can make it difficult to determine the extent to which problems are concerned with a person’s ethnic identity.
Participants’ lack of knowledge about research, mistrust towards research and health professionals and the stigma associated with certain health conditions.
Practical issues: the cost implications of research participation and competing priorities for participants.
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6. Method Conduct Literature review
Workshops with community members, users, carers, researchers and professionals
Draft good practice Took kit
Consult users, cares, community members, researchers and professionals
Finalise tool kit
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7. Tool kit themes
Consideration of the communities which your research needs to involve.
Undertaking effective patient and public involvement (PPI) in research
Conducting effective recruitment in BAME communities
Ensuring cultural competency in the conduct of your research.
Providing effective feedback to research participants
Recognising the importance of recruiting BAME communities in research
Involving BAME communities in preparing grant applications
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8. Consideration of the communities which your research needs to involve
Have you considered the characteristics/demographics of the population your research will include?
If you are investigating a particular issue or problem, have you considered the data regarding differences in prevalence or impact on particular groups, and taken these into account in your protocol?
Potential sources of information:
Prevalence data e.g. Public Health observatories, Local Health Watch, Health and Wellbeing Boards, Health and wellbeing strategies
GP practice data
Research literature
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9. Have you outlined in your proposal why it is important to ensure adequate representation of BAME groups in your study population?
Does your study methodology ensure that BAME groups will be adequately represented in your study?
Have you considered any possible barriers or difficulties in ensuring the groups you need, will in fact be recruited to your study?
Case Studies
Top Tips
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10. Conclusion Online Tool kit Impact Monitoring/ Evaluation
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