1. One Vision, One Voice: Palliative Care Community of Practice
January 16, 2004

2. Institute for Johns Hopkins Nursing - Dr. Karen Spencer, EdD
The Team
Institute for Johns Hopkins Nursing
Dr. Cynda Rushton, DNSc,RN, primary investigator
- Dr. Karen Spencer, EdD
- Kathy Sabatier
- Mary Hapeman
- Lois Gould
- Bruce Dennett
Dell Professional Services

3. Palliative Care
“A model for the relief of suffering and the improvement of quality of life across the spectrum of illness”
Not restricted to people who are close to death
Applies to infants, children and adults

4. Palliative Care: Real Stories about Real People

5. Where we want to be: Integration
The integration of palliative and curative care challenges us to move beyond the “serial processing” of curative care then palliative care
To new ethical frameworks and norms of practice that provide for the “parallel processing” of curative and palliative care.

6. The Nursing Leadership Academy for End-Of-Life Care
Objectives
Educate nurse leaders in strategies of planning and managing organizational change and advocacy initiatives related to palliative & end-of-life care
Create a system of support, networking, and mentoring integrate palliative care into all specialties of nursing practice
Funded by the Open Society Institute’s
Project on Death in America
Nurses are the largest group of health care professionals
More than 2.4 million registered nurses in the U.S.
Nurses provide holistic care to patients and families across the lifespan
Unique knowledge and skill
Spend greatest amount of time with patients and families
Trusted by consumers

7. The Nursing Leadership Academy for End-Of-Life Care
Impact
44 national nursing specialty organizations
More than 600,000 nurses represented by Academy participants

8. Connecting Academy Members
Technology was the enabler – our team could focus on people and processes because so much of what communities need – a space for conversations, a place to share documents, a search engine to find resources and people – was available “out of the box” with Windows SharePoint Services.

9. Technology Enables Community
Find and make connections with one another
Share best practices
Solve problems
Create enhanced meaning from their work
Provide support for the care giver
Find key resources

10. Technology Platform
Windows Server 2003
Windows SharePoint Services
SQL Server 2000 Standard

11. Partnering for Success

12. Academy site: http://www.pcnleadership.net
(Public website)
Academy site:

13. Contact Information
Susan Hanley
Practice Executive
Dell Professional Services
Dr. Karen Spencer
Assistant Professor
Johns Hopkins School of Nursing
Dr. Cynda Rushton