1. Model Systems Knowledge Translation Center (MSKTC)
Applying Knowledge Translation Strategies to Develop Free Evidenced-Based Resources in SCI and TBI
Xinsheng “Cindy” Cai, Ph.D.
MSKTC Co-Project Director March 9, 2018

2. Agenda What is the MSKTC? What is knowledge translation (KT)?
How does the MSKTC apply KT when developing research-based consumer resources?
What are the various types of MSKTC resources?
How can MSKTC resources benefit you?
Open discussion
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3. Model Systems Knowledge Translation Center (MSKTC)
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4. Goals of MSKTC www.msktc.org
Enhance the relevance and visibility of Model Systems research
Communicate Model Systems research effectively to stakeholders

5. Audiences Individuals with SCI, TBI, and Burn and Their families
Practitioners and Clinicians
Policymakers and Advocacy Organizations
Researchers

6. Model Systems 14 SCI Model System Centers with 1 Data Center
16 TBI Model System Centers with 1 Data Center
4 Burn Model System Centers with 1 Data Center
Funded by National Institute on Disability, Independent Living, and Rehabilitation Research, Administration for Community Living, US Department of Health and Human Services

7. Knowledge Translation (KT) Defined
KT is defined as the exchange, synthesis and ethically- sound application of knowledge—within a complex system of interactions among researchers and users—to accelerate the capture of the benefits of research —Canadian Institutes of Health Research

8. MSKTC KT “Explained”
Knowledge translation engages consumers throughout the research process—from planning to execution to follow-up—in order to promote findings that are meaningful, relevant, understandable, and accessible. —MSKTC Approach

9. Knowledge to Action Framework

10. Applying KT in Developing MSKTC Resources
Understanding consumer needs
Clear purpose
Empowerment and decision making
Managing emotional impact
Plain language writing
Clear organization
Images to enhance comprehension
Consumer testing
Model Systems researchers’ input and approval
Spanish translation

11. KT Toolkit

12. Example KT Tools on Communicating with Patients and Families

13. Example KT Tools on Social Media

14. Examples of SCI Resource Topics
Pressure Sores Sexuality & SCI Pregnancy after SCI Bowel & Bladder Managing Pain Wheelchair & Safe Transfer Driving after SCI Adaptive Sports Employment after SCI

15. Examples of TBI Resource Topics
Alcohol & TBI Fatigue & TBI Vision Problems After TBI Depression & TBI Severe TBI Relationships After TBI Driving after TBI Sleep & TBI Headaches after TBI

16. Variety of Free Research-based Resources
Factsheets
Facts and figures
Narrated slideshows
Videos
Podcast
Hot topic modules
Quick reviews
KT toolkit
Systematic reviews
Publication database

17. Facts & Figures
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18. TBI Policy Factsheet
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19. Factsheets
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20. Infocomics

21. Podcast Briefs

22. Narrated Slideshows
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23. Video Products Source: www.msktc.org 2 minute
Don’t Let Your Bowels Control You:
Time: 2:52
Dating and Sex:
Time: 1:46
Medications, Techniques, and More: Time: 5:15
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24. The Brain Injury Family Intervention Feelings Checklist
4 minutes TBI:
Antidepressant Medications: Time: 2:44
Ambiguous Loss: Time: 2:08
Smartphones as Memory Supports: Time: 1:48
SCI
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25. Managing Pain: Shoulder Exercise for People with Spinal Cord Injury
4 minute
Managing Pain: Shoulder Exercise for people with spinal cord injury:
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26. Hot Topic Modules (Factsheets, Videos, Slideshows)

27. Tour of the MSTKC Website

28. How MSKTC Resources Benefit You, Your Patients, and Their Families
Information for Peer Support Groups
Research-based Resources to Enhance
Daily Living for People with SCI & TBI

29. How MSKTC Resources Benefit You, Your Patients, and Their Families
Go-to-Resources for Caregivers
Inform Recovery and Rehabilitation

30. How MSKTC Resources Benefit You, Your Patients, and Their Families
Research-based consumer friendly free resources for patient education programs
Print and video materials to display in patient and family waiting rooms

31. How MSKTC Resources Benefit You, Your Patients, and Their Families
Educate Decision-makers about SCI and TBI to Make Positive Change
Free Content for Independent Living Resource Libraries

32. How MSKTC Resources Benefit You, Your Patients, and Their Families
And much more!
Tell us how you have used MSKTC resources with our StoryShare Initiative

33. How MSKTC Resources Benefit You, Your Patients, and Their Families
Tell us about your and your patients’ information needs by participating in our survey
Provide input on our products

34. We want to hear from YOU
Participate in the TBI and SCI Model Systems research studies:

35. Open Discussion
Questions
Comments
Input

36. Xinsheng “Cindy” Cai, Ph.D.
Contact Information
Xinsheng “Cindy” Cai, Ph.D.

37. Thank you!