1. Datasets Lyndon Taylor BSc FCOptom AOP Director of Finance
Vice Chairman Joint Information and IT Committee
LOCSU Associate

2. Outline
Where are we now?
Where do we want to be?
How do we get there?

3. No standardisation whatsoever IOPs
Where are we now?
No standardisation whatsoever
IOPs
Some record as single number
Some record as 19,18,20 (rather than the average!)
Some record it as a text field!!!!
Quote “user requests”

4. Why is this a problem?
Cannot usefully share patient records
Connecting with anything else within CfH is made more difficult
Record Keeping is commonest theme in GOC disciplinary cases
Clinical decision support very difficult without standardisation

5. Where do we want to be? For discussion this afternoon
My view is that we should work together to develop a unified National Optical Dataset
Will need considerable input from profession and IT suppliers
Will need trust to share current datasets and needs
Could ultimately lead to “Kite Mark”?
Record keeping to National Standard!

6. Where are other professions?
CfH did “Do Once and Share” projects
Cataracts
Glaucoma
Diabetic Eye Disease
Now embedded in all CfH Spine software
Cataract dataset led directly to
The Cataract National Dataset electronic multicentre audit of 55,567 operations
Eye (2009) 23, 38–49

7. Has Optics done anything ?
Local Optical Committee Support Unit (LOCSU)
Setting up “Enhanced Service” pathways across England
Glaucoma Referral/Monitoring
Cataract Pre and Post Op
Childrens Eyecare
Low Vision Services etc
Developing IT systems to support these
LOCSU dataset derived from DOAS ones

8. In your pack List of web addresses for DOAS reports
Some are a bit mixed up with pathways
A copy of LOCSU ES dataset
THIS IS A WORKING DRAFT
NOT been updated since NICE Glaucoma guidelines!
Welcome to look at it but please be careful what work you do based on it!!

9. Now to be controversial
Record information can be standardised fairly easily……
Images are currently pretty standard
JPG, TIFF etc
What about Visual Fields?
What about OCTs
Currently clinical care is impeded because we cant share data properly
NICE require sharing of “All test results plus images”

10. Can we do anything to improve this mess?
Not trivial
Equipment suppliers work on world stage not just UK
Commercial issues
Dicom goes a little way along this route but doesn’t improve readability
Would you be prepared to look at it?
Can we help facilitate such discussions

11. Thank you
I hope that has given you all some food for thought