1. PPI Knowledge Transfer Event
Current status of PPI
Ijeoma Uchegbu
PPI Knowledge Transfer Event
DEC London

2. PPI KTE Survey
AIM was to understand the status of patient and public involvement in the NIHR DECs and HTCs
DISSEMINATED
Within DEC and HTC organisations
Lay members
Non-lay members
Twenty eight (28) RESPONDERS to the survey
Information used to inform the KTE

3. About responders (1)

4. About responders (2)

5. Current PPI activities

6. Future PPI activities

7. Comparison of current & future activities

8. “Other”
“Activities vary from project to project” - unable to answer question
Focus groups
Group Discussions
“Awareness raising”
Input Into KTE
Social media dissemination
Yearly review
Identification of need
Co-design technology
PR and communication

9. Challenges faced incorporating PPI into research
Engaging researchers/clinicians/industry
Recruitment of lay members with an interest in the research
Understanding lay member capacity to be involved in research
Knowing how much to expect[ations]
Obtaining funding for PPI research activities
Deadlines and timescales
Variations in involvement from different researchers
Gaps in experience and knowledge
Training of lay and non-lay members
Lack of national policy describing “how to”
Understanding of ethical processes for involving patients in research
Time consuming

10. Workshop - Challenges
Which challenges are most important? Please vote for two challenges you feel are most important
Now, within your groups please discuss your allocated challenge
Describe challenge
Who is affected
What impact does it have
How to mitigate negative impact
You have 20 minutes to discuss within your groups before a whole group discussion about challenges led by appropriate group
If you have any time have time, discuss other challenges