1. June 28, 2012 Working Together as Partners in+care
Introducing the Partners in+care Toolkit
June 28, 2012
For Audio: Dial-in#: Participant Code: # 1

2. For more information: www.incarecampaign.org
Welcome & Overview
This Partners in+care webinar is offered as part of the in+care Campaign.
The in+care Campaign is a national effort to improve retention in HIV care.
Webinars are one of many Partners in+care activities designed to engage people living with HIV/AIDS and their allies in the in+care Campaign.
This webinar introduces tools you can use to engage peers and consumers in the in+care Campaign.
Michael Hager
NQC Manager,
TA/Dissemination
New York, NY
Michael
For more information:

3. For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
Participation Guidelines
This is a “public event.” If you have confidentiality concerns . . .
Your names appear on-line in the list of webinar registrants--consider just listing to the audio or to viewing the webinar at a later time, after it is posted at
All webinars are recorded--do not use identifying information when asking questions
Michael
For Audio: Dial-in#: Participant Code: #

4. For Audio: Dial-in#: 866.394.2346 Participant Code: 3971546368#
Participation Guidelines
Actively participate and write your questions into the chat area during the presentation; we will also have a “pop up” question exercise, and will pause for conversation during the webinar
Do not put us on hold
Mute your line if you are not speaking (press *6, to unmute your line press #6)
The slides and recording of this and other Partners in+care webinars are available for playback and group presentations at – “Resources” tab
Michael
For Audio: Dial-in#: Participant Code: #

5. Welcome, Overview, Participation Guidelines - 5 mins
Agenda
Welcome, Overview, Participation Guidelines - 5 mins
Agenda, Learning Objectives, Introductions - 5 mins
Partners in+care Refresher, 20 mins
Opening the Partners in+care Toolkit, 20 mins
The Impact of Retention, 5 mins
Wrap-up & Evaluation, 5 mins
Conversation opportunities throughout webinar
Bob Tracy, NQC
Peer Consultant
St. Paul, MN
Bob

6. At the end of this webinar you will know . . .
Learning Objectives
At the end of this webinar you will know . . .
How the in+care Campaign and Partners in+care fit together
What resources are available in the Partners in+care Toolkit
Why it is important to engage peers and consumers in our “push” to improve retention
Bob

7. Purpose for in+care Campaign
Partners in+care Refresher
Purpose for in+care Campaign
The purpose for the in+care Campaign is to improve health and prevention by keeping and getting more people living with HIV/AIDS in care.
We are doing this by facilitating local, regional and state-level initiatives to improve retention.
Michael
Visit

8. Five Parts of the in+care Campaign
Partners in+care Refresher
Five Parts of the in+care Campaign
Michael
Visit

9. Partners in+care Purpose
Partners in+care Refresher
Partners in+care Purpose
Successful results in HIV care depend upon partnership between consumers and their providers.
So does the in+care Campaign.
1 minutes
Bob
Successful management of HIV as a chronic disease requires many working together in partnership: health care “system,” health care providers – doctor and others, HIV service providers, friend, family and others in our community, but one person who is on the job – who needs to be on task 365 days a year is the person living with HIV/AIDS.

10. Visit www.incarecampaign.org – “Partners” tab
Partners in+care Refresher
Purpose for Partners in+care Campaign Engage people living with HIV/AIDS as partners in the in+care Campaign
Increase Knowledge
Web “hub”
Webinars
Resources
National Network
Peer-to-peer exchange
Self Care
Peer-to-Peer
Engage in QI
Michael
Explain what the Partners in+care activities are intended to do [increase knowledge to support retention], the tools we will be using to do this [web, create national network of “Partners” in+care, webinars, exchange information through Web], all with a focus on increasing knowledge to improve retention through self-care, peer-to-peer connections and consumer engagement in creating systems that work – helping all of those others do the best as they want to do.
Visit – “Partners” tab

11. How have you been involved with the in+care Campaign?
Partners in+care Refresher
Pop-up Question
How have you been involved with the in+care Campaign?
Signed-up for in+care Campaign?
Participated in webinars?
Worked with a regional coach?
Involved with a regional learning group?
Signed up for Partners in+care?
I’m new. Today is the first.
Other?
Select all that apply.
Michael
Visit

12. What has Partners in+care offered, to date?
Partners in+care Refresher
What has Partners in+care offered, to date?
November – Pi+c work group formed
February - Launched Pi+c web site and introduced the Pi+c network *
March – Webinar introducing retention and Pi+c
April – Webinar on self-care and retention
May – Webinar on retention and peer-to-peer outreach & support
June - Introduced the Pi+c Facebook page; exchange tips, stories, information & experiences **
June – Pi+c Toolkit launch & introductory webinar
Michael
* Sign up for Pi+c network at – “Partners” tab
** Send to – “Facebook” in subject line

13. Introducing the Pi+C Toolkit
Partners in+care Toolkit
Introducing the Pi+C Toolkit
A set of resources to reach peers and consumers that are easy-to-find on the Partners in+care web page that you can use to:
Support knowledge about retention
Promote involvement in Pi+c
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

14. What’s in the Pi+C Toolkit
Partners in+care Toolkit
What’s in the Pi+C Toolkit
“How To” guide
Pi+c awareness and promotional tools
Web resource links
Key articles
Short Powerpoint presentations
Webinar archive
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

15. Using the Pi+C Toolkit Partners in+care Toolkit
Getting what you need from the Pi+c web site to take the Pi+c experience beyond the web
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

16. Where to find the Pi+C Toolkit
Partners in+care Toolkit
Where to find the Pi+C Toolkit
Click the “Partners” tab
Open the Pi+c Toolkit
Partners in+care
Toolkit
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

17. Awareness Tools in+care Campaign video Promotional flier [PDF]
Partners in+care Toolkit
Awareness Tools
in+care Campaign video
Promotional flier [PDF]
Palm card [PDF]
Tear sheet [PDF – updated to promote next Pi+c webinar]
Tip Sheet [messages for , FB & Twitter]
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

18. Awareness Tools Have you used any of the Pi+c awareness tools?
Partners in+care Toolkit
Awareness Tools
Have you used any of the Pi+c awareness tools?
Tell us how you have used the tools and about your experiences in the chat room.
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

19. Resources to Share Key HIV Terms [HRSA] Ryan White Services [HRSA]
Partners in+care Toolkit
Resources to Share
Key HIV Terms [HRSA]
Ryan White Services [HRSA]
Living History [HRSA]
HIV self-care [HRSA]
Info about HIV [CDC]
Self Care [The Body]
Consumers & QM/QI [NQC]
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

20. More Resources to Share
Partners in+care Toolkit
More Resources to Share
Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp
Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

21. Things You Can Show Short Powerpoint Presentations & Discussion Tools
Partners in+care Toolkit
Things You Can Show
Short Powerpoint Presentations & Discussion Tools
Pi+c overview
Retention: What It Means for You
Retention & Self-care
Retention & Peer-to-Peer Support
Retention & Consumer Involvement in Quality Management & Improvement
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

22. Things You Can Watch Pi+c Webinar Archive
Partners in+care Toolkit
Things You Can Watch
Pi+c Webinar Archive
Retention: Partners Make It Happen
It Starts with One: Retention & Self-care
Reaching Out to Share the Benefits of Care: Retention & Peer Advocacy
Other in+care Campaign webinars
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

23. +Sign up to Be a Partner in Care
Partners in+care Toolkit
Ways To Connect
Pi+c Network
notices and updates about Pi+c and in+care Campaign
Provide advice [Pi+c surveys]
+Sign up to Be a Partner in Care
Bob
Visit – “Partners” Tab – Partners in+care Toolkit

24. Partners in+care Toolkit
Ways To Connect
Pi+c Facebook Community
Share tips, stories, experiences & resources
Community of people living with HIV/AIDS and allies
Secure and confidential
Join. Send to – Facebook in subject line
Bob

25. + Tell Us Your Improvement Stories
Partners in+care Toolkit
Ways To Share
Share your experiences.
+ Tell Us Your Improvement Stories
Share your resources. Send them to
Join Pi+c work group.
Bob
Visit – “Partners” Tab – Partners in+care Toolkit
Send to – “Work Group” in subject.

26. Are you connected with Partners in+care?
Partners in+care Toolkit
Raise Your Hand
Are you connected with Partners in+care?
How many have signed up for the Pi+c network through the Pi+c web page?
How many have joined the Pi+c Facebook page?
Who wants to join?
Bob
Sign up for Pi+c network at – “Partners” tab
Send to – “Facebook” in subject line

27. 1/3 to 2/3 of PLWHA in US are not in regular care
Our Goal
What We Want to Change
1/3 to 2/3 of PLWHA in US are not in regular care
17-40% of PLWHA who know status are not in regular care
40% of patients newly diagnosed did not see provider within 6 months
Michael
Why is retention such a problem that it merits the focused attention of a year-long, national campaign to make things better?
Cite key statistics that illustrate low number of people living with HIV/AIDS who are fully engage in care.
Summary: In summary, the problem is way, way too many people living with HIV are not getting the regular kind of health care services they need to take full advantage of what we can do to keep them healthy and alive. We need to do better. Much better.
Note that studies are available on the in+care Campaign web site.

28. Stay in care / Return to care
Our Goal
The Value of Retention
Stay in care / Return to care
Retention –having a routine for seeing your doctor/health care provider on a regular schedule
Doing this persistently – year-after-year-after-year
There is a relationship—a seemingly obvious relationship— between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010]
Michael

29. Continuum of Engagement
Our Goal
Continuum of Engagement
Michael
Introduce the continuum of engagement.
Note that what we are trying to achieve is “full engagement” in HIV care.
Retention is about helping those who are receiving some medical care, are lost to care or are using care intermittently make the changes to be “fully engaged.”
While getting tested and linked to care are absolutely important parts of the continuum of engagement for HIV care, “retention” is that set of activities that we undertake to keep people connected or to get them reconnected once the initial “link” to care has been made through testing and linkage activities.
Retention address those stages of engagement with the red dots or arrow. The black dots note linkage activities that are not the primary focus for retention.
What does it mean to be fully engaged? It means, routinely attending provider visits for primary HIV care. Generally, we are talking about attending one visit with your HIV care provider – the person who can prescribe HIV treatment medications – at a minimum of every six months. It also means persistence – making these routine visits year-after-year-after-year.

30. Visit www.incarecampaign.org – “Partners” Tab
Our Goal
Partners in+care: Providers & Consumers Coming Together to Overcome Retention Challenges
Self-care – learning more
Reaching out to others – peer-support, peer navigators, friends and family
“Systems” that work with us by working with them
Michael
Visit – “Partners” Tab

31. What We will Accomplish
Our Goal
What We will Accomplish
Create a network of 1000 consumers ready to be engaged in retention through Pi+c.
Identify 100 consumers ready to become Pi+c leaders & advisers.
Michael
Sign up for Pi+c network at – “Partners” tab
Send to – “Facebook” in subject line

32. What We will Accomplish
Our Goal
What We will Accomplish
Share what we know so we all get better at:
Seeing our doctor and HIV care providers on a regular basis
Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits
Making sure we all get the full benefit of care and treatment in order to improve our health
Michael

33. Will You Join Pi+c? How Can You Use the Pi+c Toolkit?
Michael
Visit “Partners” tab
Sign up for Pi+c network at – “Partners” tab
Send to – “Facebook” in subject line

34. Visit Web / Open the Toolkit www.incarecampaign.org - “Partners” tab
Sign up for Pi+c Network – “Partners” tab
Join Facebook
Send to – “Facebook” in subject line
Campaign Headquarters: National Quality Center (NQC) 90 Church Street, 13th floor
New York, NY Phone 34