1. Social Media for Health Organizations Workshop
ELF Patient Organizations Networking Day
ERS Congress 2016
ExCel Congress Centre, London, UK
September 3rd, 2016

2. Social Media Workshop Hosts:
Kjeld Hansen, Council Member, European Lung Foundation

3. Objective Find out about ground truth Apply a few relevant concepts
Discuss opportunities for health organizations use of social media
Discuss opportunities for inter-organizational networking
Define workshop outcome?

4. How about you? Introductions
(Where) Is your organization on social media?
What are your experiences on social media?

5. Social & Media What is social? What is media?
Ethnomethodology (Garfinkel & colleagues)
Social: Other-orientation, other-perception, other-interpretation, and/or other-involvement
What is media?
Ecological psychology (Gibson& coleagues)
Media: Time-shifting and place-shifting of meanings and actions.

6. Organization
“An organization is both an articulated purpose and an established mechanism for achieving it”
“[…] maintaining an effective alignment with the environment while
managing internal interdependencies”
Miles, Snow, Meyer & Coleman, 1978

7. Social Organization
”[…] an organization that strategically engages, analyses and manages social media to structure organizational processes and support organizational functions in order to realize operational efficiencies, generate competitive advantages and create value for customers, share holders and other societal stakeholders.”
Vatrapu, 2013

8. New Public Health
The new public health paradigm “goes beyond an understanding of human biology and recognizes the importance of those social aspects of health problems, which are caused by life styles. In the new public health the environment is social and psychological as well as physical” (Ashton & Seymour, 1988) as quoted in (Petersen & Lupton, 1996).

9. Social influence and - network
“We rarely consider that everything we think, feel, do, or say can spread far beyond the people we know”
“[Social network] can help us to achieve what we could not achieve on our own”
(Christakis and Fowler, 2009).

10. Social Organization Social Media Engagement :
Organization's strategic use of social media channels to interact with its internal and external stakeholders for the purposes ranging from marketing, customer support, product development and knowledge management.
Social Media Analytics :
Collection, storage, analysis and reporting of social data emanating from the social media engagement of and social media conversations about the organization.
Social Media Management :
SMM focuses on the operational issues, managerial challenges and comparative advantages with respect to the emerging paradigm of Social Business

11. Social Media Engagement
Suggestions:
Experimenting to understand the needs and interest of your audience
Posting more diverse content such as visual and graphic content
Using more diverse communication forms such as creating competitions and broadcasting live
Collaborating with patients, professionals and organisations

12. Social Media and Health Organizations - Initial research findings
General information from/about the organization
Personal identification
Health campaign (liked, but little engagement)
Competition
Timely information
Health science communication
Personal rights issues
National/continental comparisons

13. Social Media Management
Suggestions:
Developing and defining new roles for your organization on social media
Developing a visible role for your organization on social media
Defining a “home” for social media within your organization (inter-organisational dependencies)
Defining process and policies within your organization
Develop social media plans and ways for evaluation (metrics)

14. Social Media and Health Organizations - Initial research findings
Organizational adoption over time (but many concerns)
Clear evolvement in profile over time
Alignment with organization and society
Define clear and unique offering
Iterate on goals and milestones
Develop domain specific KPI

15. Social Media and Health Organizations - Initial research findings
Debate
Encouragement
Fact sharing
Involvement
Participation
User friendliness
Visibility

16. Thank you for your participation !!!