1. Health Management Information Systems Consumer Health Informatics Lecture a This material Comp6_Unit8a was developed by Duke University, funded by the Department of Health and Human Services, Office of the National Coordinator for Health Information Technology under Award Number IU24OC000024.

2. Consumer Health Informatics Learning Objectives 1.Explain how current and emerging technologies have impacted and may continue to affect consumer health informatics(Lecture a) 2.Describe the role of genomics in consumer health informatics (Lecture a) 3.Describe the emergence of personal health records and their implications (Lecture b) 4.Discuss how consumerism influences the ongoing development and use of health information systems (Lecture b) 2 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

3. Health Communication “The art and technique of informing, influencing, and motivating individual, institutional, and public audiences about important health issues. The scope of health communication includes disease prevention, health promotion, health care policy, and the business of health care as well as enhancement of the quality of life and health of individuals within the community” (Ratzan, 1994) 3 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

4. Consumer Informatics Consumer Health Informatics Consumer informatics –Management of data and information –Supports consumers –Use of computers and computer technologies Consumer health informatics –Addresses the needs of the consumer 4 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

5. Interactive Health Communication e-Health Technology –Internet –Web services –Wireless technology Tools 5 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

6. Interactive Health Communication Tools –Online communities and support groups –Online health information –Online health self-management tool –Online communication with health care providers –Online access to personal health records 6 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

7. Impact on Consumer Health Informatics New roles and approaches to health management –Partnership: Consumers and health care providers New expectations –Access to information when needed 7 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

8. Impact of the Internet Increase in informed consumers Availability of online PHRs New forms of communication Accessibility of health care products for purchasing 8 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

9. Impact of Emerging Technologies Convergence of media and emergence of the Internet results in a networked communication infrastructure Facilitates access to health information and health-related support services Expands the communication choices for health professionals, patients, and consumers 9 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

10. Social Media Social networks Blogs Forums Wikis Photo video Podcasts 10 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

11. Potential e-Health Value Propositions Stakeholder: Consumers (e.g., patients, informal caregivers, information intermediaries) Benefits sought from consumer e-Health –Private, 24/7 access to resources –Expanded choice and autonomy –New forms of social support –Possibility of better health –More efficient record management –Lower cost health care services –Avoidance of duplication of services 11 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

12. Potential e-Health Value Propositions Stakeholder: Clinicians Benefits sought from consumer e-Health: –Greater efficiency –Better communication –More adherent and satisfied patients 12 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

13. Potential e-Health Value Propositions Stakeholder: Health care organizations Benefits sought from consumer e-Health –More patient self-care and health management –Lower administrative costs –Improved quality and patient outcomes 13 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

14. Challenges Presented Concerns with privacy and security Risk of liability Lack of law or legislation governing the boundaries Lack of payment for engagement Lack of frequent data updates Resistance by health care providers 14 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

15. Role of Genomics Supply a piece of the personal health record –Family history A risk factor for many chronic diseases of public health significance 15 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

16. Role of Genomics (Ades, 2009) 16 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

17. Consumer Health Informatics Summary – Lecture a Definitions Impact of the Internet on consumer health informatics Effect of current and emerging technologies on consumer health informatics Role of genomics in consumer health informatics 17 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

18. Consumer Health Informatics References – Lecture a References American Health Information Management Association. (2012). Pocket glossary for health information management and technology (3 rd ed.). Chicago, IL: Author. Centers for Disease Control and Prevention. (2010). Genomics and Health. Retrieved from http://www.cdc.gov/genomics/public/index.htm Centers for Disease Control and Prevention. (2011, May). CDC Social Media Tools. Retrieved from http://www.cdc.gov/SocialMedia/Tools/ Gibbons, M.C., Wilson, R.F., Samal, L, Lehmann, C.U., Dickersin, K., Lehmann, H.P., Aboumatar, H., Finkelstein, J., Shelton. E., Sharma, R., & Bass, E.B. (2009, October). Impact of consumer health informatics applications. Evidence Report/Technology Assessment No. 188. (Prepared by Johns Hopkins University Evidence-based Practice Center under contract No. HHSA 290-2007-10061-I). AHRQ Publication No. 09(10)-E019. Rockville, MD. Agency for Healthcare Research and Quality. Retrieved from http://www.ncbi.nlm.nih.gov/books/NBK32638/pdf/TOC.pdf Health Resources and Services Administration (HRSA). (2003, October). Telemedicine reimbursement report. (Prepared by the Center for Telemedicine Law under contract No.02-HAB-A215304). Retrieved from http://www.hrsa.gov/ruralhealth/about/telehealth/reimburse.pdf Kaplan, A. M. & Haenlein, M. (2010). Users of the world unite! The challenges and opportunities of social media. Business Horizons 53(1), 59-68. National Human Genome Research Institute. (2010). Genetic information nondiscrimination act of 2008. Retrieved from http://www.genome.gov/10002328 Office of Disease Prevention and Health Promotion (ODPHP). (2012). e-Health. Retrieved from http://www.health.gov/communication/ehealth/Default.asp 18 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a

19. Consumer Health Informatics References – Lecture a References Ratzan, S.C. (Ed.). (1994). Health communication, challenges for the 21st century. Special issue. American Behavioral Scientist 38(2), 202-207. Robinson, T.N.; Patrick, K.; Eng, T.R.; & Gustafson, D, for the Science Panel on Interactive Communication and Health. (1998, October). An evidence-based approach to interactive health communication: A challenge to medicine in the Information Age. Journal of the American Medical Association, 280(14),1264-1269. Valdez R., Yoon, P.W., Qureshi, N., Green, R. F., & Khoury, M. J. (2010, April). Family history in public health practice: A genomic tool for disease prevention and health promotion. Annual Review of Public Health 31, 69-87. U.S. Department of Health and Human Services. (2000). Healthy people 2010: Objectives for improving health. Retrieved from http://www.healthypeople.gov/2010/Document/tableofcontents.htm#volume1 U.S. Department of Health and Human Services. (2006, June). Expanding the reach and impact of consumer e- Health tools. Retrieved from http://www.health.gov/communication/ehealth/ehealthtools/pdf/ehealthreport.pdf U.S. Department of Health and Human Services. (2012). Genomics. Retrieved from http://www.healthypeople.gov/2020/topicsobjectives2020/overview.aspx?topicid=15 Image Slide 16: Ades, J. (2009, May 1). Prescription form with DNA double helix. [image on the Internet]. Retrieved from http://www.genome.gov/pressDisplay.cfm?photoID=20158 19 Health IT Workforce Curriculum Version 3.0/Spring 2012 Health Management Information Systems Consumer Health Informatics Lecture a