1. Report to Summit for period July 2008 - September 2009 19 November 2009 Yezingane Network

2. Yezingane Network – Who we are Children’s sector Civil society network Over 90 members Represent thousands of organisations and individuals From around the country Work to prevent and address the impact of HIV & AIDS on children, families and communities in South Africa Established in 2003

3. Yezingane Network –Name finalised Our name: Yezingane Network Yezingane means ‘For the children’ in isiZulu Formerly known as CATCH Network and CHANN By-line :Coordinating Civil Society Action on Children, HIV and AIDS Logo 

4. What have we done Made significant progress towards our goals Participate in SANAC Structures and improved coordination with other relevant bodies Support and monitor NSP implementation Improve effectiveness and cohesion of civil society around children especially around HIV and AIDS Helped SANAC to work Helped SANAC and NSP to work for and with Children

5. Yezingane Network’s HIGHLIGHTS 2008/9 Raised profile of critical, child-focussed issues on national agenda Provided consistent voice on children’s issues Influenced a number of policies affecting children Raised awareness and mobilised membership around the NSP, specifically through a child-focused lens Mobilised at provincial level – NSP and civil society PMTCT Mobilisation - gateway to MNC Health, wellbeing, care & support Assessed progress on NSP for children

6. Yezingane Contributions to NSP awareness work for, and with, children What Yezingane Network aimed to achieve Promote NSP literacy of and action by Children’s Sector Support M&E of child related outputs and outcomes of the NSP. Did this through 2 workshops with Children on NSP 1 workshop with adults who support children’s groups Publications –produced and distributed 3 formal publications plus additional informational materials Co-hosted a satellite session with UNICEF at 2009 South African AIDS Conference ‘Progress towards achieving NSP targets for children: Where are we and what are our next priorities?’ Networks membership engagement : ACESS, CHAIN-NACOSA, CINDI Provincial Mobilising – focussed on PMTCT and NSP (see Network)

7. Promoting the NSP – What does this mean for Children? Children active participants to the national response by implementing and monitoring NSP interventions More children aware of their contributions to NSP. More children have info on SA response to address children’s rights in context of HIV and AIDS Older children have info from the Scorecard on how we are doing in delivering on their rights and issues Children’s participation in member organisations is more effectively supported in their work

8. Yezingane Network Contributions to SANAC & other structures What Yezingane Network aimed to achieve Maintain active children’s sector representation on SANAC structures thru input into the design & function of the structures Encourage more active engagement between various child related structures and processes. Did this through 100% attendance at SANAC Plenary and PIC meetings during this period were attended by Children’s Sector Reps 4 Sector reports submitted to SANAC including 1 annual report Yezingane Network made inputs at 9 non-SANAC meetings

9. Working with SANAC – What does this mean for Children? Children are better served by adults in key decision-making structures as there is a constant monitoring of processes and issues, and their potential effect on children and their rights. Since we are working more effectively as a country to address issues relating to children and families affected by HIV and AIDS. Children’s issues in the forefront of adults’ thinking and actions in key structures and processes. Children’s issues are increasingly prioritised and therefore being dealt with more speedily.

10. Yezingane Network – looking inward What Yezingane Network aimed to achieve Effective and efficient functioning of a Secretariat that supports and coordinates the Yezingane Network; Facilitate communication and information sharing on issues relating to children, and HIV and AIDS Champion critical issues related to children around HIV & AIDS Did this through Effective secretariat Effective Yezingane Network structures – regular and well-organised meetings Mobilising membership at provincial level Regular and meaningful communications and consultations Networks membership engagement eg. ACESS, CHAIN-NACOSA, CINDI

11. Communications and Information Publication or communication toolCopies producedDistributed What Does the NSP on HIV and AIDS Mean for Children? - released April 2009 10,000 copies produced3,253 distributed NSP Poster for Children25,000 printed20,000 distributed to Soul Buddyz groups and 3,529 distributed to members and other key stakeholders Scorecard 2009 focussing on children and HIV and AIDS – launched August 2009 7,500 printed with distribution underway ‘Key Messages around children and HIV AND AIDS’ March 2009 2,000 briefs printed and distributed ‘What can we do to realise children’s rights through strengthening PMTCT?’ - produced June 2009 and circulated at PMTCT and provincial mobilising meetings Children’s Sector National Network updates3 Quarterly updates produced Communications sent to network members by e-list 77 Individual communications

12. Effectively organised Children’s Sector - What does this mean for Children? Services and support to children where they live, play and learn are supported by policies and guidelines that take their rights and realities Individual children’s participation enabled by services based on guidelines that take children’s views and feelings into account More children are born HIV-free, live longer and less likely to develop disabilities with new treatment and PMTCT guidelines More children will have better parenting as more mothers receive the treatment they need and are better able to be parents. More children reached by guidelines and policies as adults working in organisations at provincial level are better informed and supported in implementing the NSP and around PMTCT specifically

13. Opportunities and critical issues Strengthening the Yezingane Network: Further development of governance policies for the Network Election of the new Children’s Sector executive representative Strengthening of communications and reporting within the Network Engaging and deepening network membership engagement in issues, processes and structures Strengthening of child participation within the Network Ongoing membership mobilisation: Support the PMTCT roll-out Linking PMTCT uptake to improved maternal, newborn and child health and wellness, awareness raising on safe infant feeding, testing and treatment of children Linking PMTCT to other care and support measures such as birth registration, grant uptake of for newborns, monitoring with early id and referral for children with disabilities, mental health, etc Continuing circulation of materials: Continue to ensure wide circulation of materials and resources as a way to raise awareness both within and beyond the children’s sector. Translation of materials into more languages will also be a priority.

14. What to look forward to SANAC from national to local – members and sectors engage NSP Massive testing Scaling up PMTCT and treatment Community competence – AIDS as a starting point Policies & Guidelines – be on the look out for Male Circumcision HIV Counselling and Testing (HCT a step up from VCT) Infant Feeding Treatment and PMTCT guidelines CCMF Chronic Illness grant Stigma and discrimination framework

15. The Yezingane Network Summit TCS TTT feedback Yezingane Network Treatment Care and Support Technical Task Team Feedback Dr. A Coovadia-ECHO Ms. M Jayakody-CHAIN- NACOSA 19 November 2009

16. Treatment Care and Support TTT Key Engagements: Policy Guidelines for HIV Counselling and Testing (HCT)- final draft Task Sharing/Shifting-presented to NHC Adult, Paediatric, PMTCT and HIV& TB Guidelines- many engagements Orphan Estimation and Institutionalization of Surveillance System- presentation by DSD-linking maternal IDs and newly registered babies to track no’s of new orphans when maternal deaths are registered Community Care Givers Policy Framework (CCGPF Developing PMTCT guidelines.

17. Treatment Care and Support TTT Upcoming Issues and Critical Opportunities: Community Caregiver Policy Management Framework PMTCT Social Mobilisation HCT Guidelines Follow up

18. RME TTT Highlights Establishment of TTT (1 st teleconference Sept 2008) Eight meetings / teleconferences held btw June 08-Nov 09 (although attendance is generally poor) Improved administration around meetings Extensive inputs to the process and terms of reference for the NSP Mid-Term Review Input to the Know-your-epidemic and Know-your-response study (USAID) Input into UNGASS report preparations Recommendations for establishment of SANAC M&E Unit Information sharing on sectoral M&E activities

19. RME-TTT Opportunities and critical issues Essential that strong, well resourced and appropriately staffed M&E Unit established Mid Term Review to be completed by December 2009 ~ NB to engage this Feb 2010, opportunity to input draft UNGASS report ~ consultative meeting

20. The Yezingane Network Summit LHR TTT feedback Yezingane Network Law & Human Rights Technical Task Team Feedback Joan van Niekerk- CHILDLINE SOUTH AFRICA 19 November 2009

21. Law & Human Rights TTT This task team got off to a slow start but has now met four times and also held a law and human rights sector meeting which was very well attended. The Children’s sector was represented on this task team by Joan van Niekerk, who has attended 3 of the 4 meetings and presented at each on children’s issues.

22. Law & Human Rights TTT Highlights of participation – issues discussed and action motivated 1. A general overview of the impact of HIV and AIDS on children was given as this is not well understood by those who concentrate on adult issues. 2. A strong motivation has been made to change law and policy to give effect to the protection of children’s property rights. Protection at present is inadequate as this is a function of the high court – which is usually inaccessible to children and certainly children from rural areas.

23. Law & Human Rights Task Team Issues discussed A draft policy has been developed by the department of Health to support efforts to reduce and deal with the problem of stigma and HIV and AIDS – which has consequences for the care and protection of children who are infected and affected. Initially the policy made no mention of children. After motivation some references to children have been made but these are not yet adequate. Circumcision – new policy documents have not taken into account the provisions of the Children’s Act. The linkages and appropriate provisions were motivated for inclusion in the new health policies. Sexual assault and access to services: the children’s sector representative consistently flags the impact of abuse on children and the need for children to be consistently supported in their need to access services, especially the provision of health services to prevent HIV infection.

24. Law & Human Rights Task Team Overall Apart from the secretariat, the children’s sector representative has been one of the most consistent participant in this task team – both in terms of attendance and participation. Members of the children’s sector are invited to bring any issues relating to law and human rights to the sector representative in order to put them on the committee agenda.

25. CATHOLIC INSTITUTE OF EDUCATION Childrens Sector Summit 18-20 November 2009 Prevention Technical Task Team Key Highlights Structural - Draft terms of reference for the Technical Task Teams - Appointment of Administrator for TTT’s Issues - Prevalence (For each person on treatment there are six new infections) - Policy (Male circumcision, PMTCT, VCT, Barrier methods) – increased scope of PTTT to look at all government departments - Failure to apply and target prevention resources - Lack of Education, Gender inequality and poverty contribute to increased infections. Our responses on these have not been adequate. - Know Your Epidemic Know your response - Integrated Prevention Policy being developed

26. CATHOLIC INSTITUTE OF EDUCATION Opportunities for Childrens Sector Engagements - Continued engagements with policy developments, TTT to review departmental policies. Sector to ensure these policies are child friendly. - Sector efforts to continue call for Education for All. Prevention Education to be scaled up but importantly the Education system as whole needs to be strengthened. - Know Your Epidemic Know Your Response, Childrens sector can be mobilised to work with Provincial Prevention Technical Task Team - Sector can provide models and templates in the development of the Integrated Prevention Policy - The sector must continue to make inputs into the HIV/AIDS research agenda Childrens Sector Summit 18-20 November 2009 Prevention Technical Task Team

27. Why did we let the children down Issue of access to treatment and symptom management for children Child Palliative Care Child Participation ( which forums did this happen in) Seems as if the information given today is new, how to open lines of communication Which forums exist for people to engage with Yezingane Are the SANAC structures doing what it is meant to do? Northern Cape, who feeds the reports on the work done. Very little in NC for children and HIV and AIDs Review held last week, 2 out of 5 represented. Provincial report may be one sided. Where do these people get the information, they don’t come to grass roots – provincial co Applaud reports but feel that there is not much broad consultation with the membership Issues around RME- coordination of evidence based research. How to coordinate and distribute to communities, language specific and child friendly Involving provinces, implementing strategies PMTCT,etc Making sure that campaigns and messages to children are strengthened –Human trafficking Working with Grannies Gogos Information for election of members to the committee, eligibility and dates Statistics, do they include migrants (UMC) or just South African children. If not what are we doing for children from other countries What approach to develop child friendly policies How do we mobilise the implementers at grass roots level How do we target provinces with large numbers of orphans How to integrate NSP into Life Orientation Programme