1. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Effects of Caring on a Carers Wellbeing LCYCP Welcomes you to the Carre Arms Sleaford 29 October 2014

2. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Welcome Peta Hill Business Manager LCYCP Heidi De Wolf Chair LCYCP

3. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Reflection on a Carers Journey Jean Willoughby

4. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Impact of Caring on a Carers Mental Health A Managed Care Network Funded Project Overview Peta Hill – Business Manager LCYCP

5. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Impact of the Caring Role Does caring affect my mental wellbeing?

6. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The aims of this project To examine the impact of the caring role on the carers mental health To involve carers who may be experiencing poor mental well being due to their caring role. To learn how referrals from the GP could be easier To support GPs to have better information to support carers To support 50 beneficiaries

7. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Wellbeing – Physical & Mental Health Mental Health - as defined by WHO: “… the emotional and spiritual resilience which allows us to enjoy life and survive pain, disappointment and sadness. It is a positive sense of wellbeing and an underlying belief in our own, and others, dignity and worth.”

8. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Project What, Why & Where Investigating further the impact associated with the difficulties and isolation of the caring role Main focus on the East Coast but gathering evidence across the county through a project support group and surveys One year project Funded by Lincolnshire Partnership Foundation Trust (Managed Care Network)

9. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Process Carers developed a wellbeing questionnaire for Carers. 125 responses received 30 carers involved in the formation of this project LCYCP& carers developed a surgery questionnaire Wellbeing working group established, meeting 10 times across the county Carers developed leaflet to help remove the stigma associated with mental health

10. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House 124 Carers returned the survey 72 cared for a partner or spouse 14 were Parent Carers ‘the fortnightly Ccarers meeting, and the nice people Cared fthere keep me going’

11. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House

12. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House

13. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Joys & Challenges of Caring ‘To survive the caring role, we need to have social contact, sleep, & emotional support’ ‘I see no positive aspects of caring ’ ‘Being there for my wife I know she appreciates it.’ I’ve got amazing support from my family

14. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The Findings

15. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House

16. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House

17. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House What would help the impact of the caring role? Over 45% stated that having more recognition and support from professionals would help Meeting up with friends would help reduce the impact Meeting up with people in a similar position Having more ‘me’ time Having more time to do household tasks Having transport available would reduce isolation

18. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House The response from Health care Professionals 12 questionnaires returned from GP surgeries 12 additional practices had face to face contact during this project. Only a quarter of these had an up to date carers register Some used this to target carers with information 4 Patient Practitioner Groups actively involved Two Clinical Commissioning Groups now actively involved

19. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House GPs raising issue of consent. Carers need to tell the GP they are a carer Surgeries raising concerns about where to find information to support carers Some surgeries requested external support to improve services offered Surgeries are telling us they want better access to information about carers issues. Healthcare Response

20. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House GP Comments We don’t know how to use the Carer register, but would like to make better use of it GP, Lincoln “we don’t offer carer health checks because we don’t want to discriminate them from other patients” Quote from a GP “Not always easy to identify a carer, they need to tell us if they have a caring role” Comment from several practices

21. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Project Support Group - Aims Support Carers to access mental health support information Provide information and strategies to carers, that enable positive wellbeing Provide information to partners Enable partners to recognise the impact of caring Involve and include carers Promote peer support

22. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Identified Impact Positive Impact of Caring Negative Impact of Caring Carers Assessment processes Poor quality of health and social care services received by the cared for Support from a designated support worker Observing poor quality, and deteriorating quality of life of the cared for Respite breaks away from the caring role Difficulty in accessing respite for the cared for Peer support Poor quality information received Pleasure of helping someone else Lack of knowledge to access help Sense of achievement in ensuring the cared for is well looked after Feeling guilty and socially isolated Positive social networks through caring Inability to maintain employment due to the pressures of caring Feeling excluded from the health and social care pathways of the cared for, due to issues of confidentiality and consent Experiencing stigma and judgemental attitudes from others

23. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Conclusions Carers feeling isolated only 32% of carers surveyed met people less than once a month A further 10% never met anyone. improved social integration has positive benefits on peoples mental well being There potentially are some areas to develop stronger safeguarding practises for Carers. There were a significant number who have disturbed sleep due to their caring role, or who were verbally or physically abused

24. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Conclusions The Caring role can lead, in a large proportion of cases, to negative thoughts leading to potential mental illnesses – could be supported through low level counselling. Peer Support -Carers strongly acknowledge the role of peer support in supporting the caring role. Attendance at peer support groups result in larger social support networks, enhanced self esteem and social functioning, thus improving mental wellbeing and enabling carers to self direct. Carers not being informed as they do not necessarily know where to find information results in an exacerbation of poor mental wellbeing

25. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Conclusions GP Surgeries need more support to help them develop how they support Carers- Promote effective Carers Register that they actively use. GPs need information on the support required for patients. Better information needs to be available to Carers at Surgeries.

26. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House What next? Analyse the information from both carers and healthcare professionals in more detail Promote the Carer Journal Promote an information pack that supports GPs to help the carer more readily Report findings to Lincolnshire Partnership Foundation Trust and Clinical Commissioning Groups Influence strategic decisions with this evidence and this information will support the work of the Joint Strategic Needs Assessment Launch new project to support carers emotional resilience

27. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Project Coordinator Anne Stephenson

28. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Its Good to Talk!

29. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House What Makes a Good Friend “Slowly my friends have stopped asking” “Friends! What Friends?”

30. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House How are you?

31. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Time to Change http://www.time-to-change.org.uk/TimeToTalk

32. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Comfort Break Please be back in your seats by 11:30am

33. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Success of Managed Care Network & Importance of Low level Preventative Support Paul Jackman Associate Director - LPFT

34. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Introducing our Key Note Speaker Kate Hull Rogers “Humour Us!”

35. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Its Lunch Time! Carers Short Filming Visit Information Market Place Networking Opportunity Please be re-seated for 1.45pm

36. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House By Carers for Carers ! The Project from a Carers Perspective Pat Massie

37. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House By Carers for Carers ! Table Activity

38. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Involvement Marie Betts Volunteer Coordinator LCYCP

39. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House ‘Supporting Unpaid Carers In Lincolnshire’ Lincolnshire Carers and Young Carers Partnership Ltd Marie Betts – Volunteer Coordinator The relationship between volunteering and emotional wellbeing, applied to Carers.

40. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House We define volunteering as any activity that involves spending time, unpaid, doing something that aims to benefit the environment or someone (individuals or groups) other than, or in addition to, close relatives” NCVO Caring role always comes first. What is volunteering?

41. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House How are volunteering and mental wellbeing linked? (Or what’s in it for me?) Volunteering connects you to others Good for your mind and body Advance your career Happiness and fulfilment. Research demonstrates that volunteering leads to better health and that older volunteers are the most likely to receive physical and mental health benefits from their volunteer activities.

42. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Carers tell us Increased isolation Excluded from ‘having my say’ Increased likelihood of experiencing poor mental health Limited social contact with friends and family No ‘me time’ Sense of pride Confusion about where to find advice and information What it means to be a Carer

43. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Lincolnshire Carers and Young Carers Partnership The Me‘N’U Of Opportunities to Get Involved in Volunteering to include carers in shaping and designing services : Supporter Champions Ambassador

44. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House How You Can Help From 1 hour per month to a weekly commitment. Supporter: Office Support, Attend Events to Promote Partnership. Champions: GP Surgeries, Local area Ambassador: Media Interviews, LCYCP Board, Representative on Interview Panels, Attending Policy and Strategy Meetings.

45. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House

46. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House You Said! We Did Clive Yates Engagement & Development Anne Stephenson Project Co-ordinator

47. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House You Said! We Did Group Meeting - County Rotation/ Working Groups Co- Production of Leaflet Questionnaires Carer & GP Raise Awareness GP Surgeries – Think Carers Development of Carer Champions Network Raise Awareness with Young Carers / Schools Celebration Event

48. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Mindfulness for Carers Maureen O’Callaghan

49. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House This session What is mindfulness? Proven benefits of mindfulness 8 week MBSR programme for Carers Consultation

50. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House What is mindfulness? Experiential learning….

51. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Seeing things clearly…..

52. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Proven benefits Improved health and wellbeing – including immune function Increased resilience Enhanced focus and concentration leading to improved decision making Improved self-awareness leading to increased self-care Great connectivity with others and improved interpersonal relationships

53. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Monitoring and evaluation Baseline assessment User satisfaction Achievement of learning outcomes Revisit baseline assessment Application of learning i.e. behaviour change Impact of the behaviour change on carer

54. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Table discussion Is there anything else we need to do to ensure the programme…. A.Is accessible to carers B.Is relevant C.Adds value rather than duplicates existing services

55. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Thank you for your contribution Maureen O’Callaghan Director and Mindfulness Teacher T: 07939 845920 E: maureen@nowunlimited.co.ukmaureen@nowunlimited.co.uk W: www.nowunlimited.co.ukwww.nowunlimited.co.uk

56. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Next Steps Marie Betts Volunteer Coordinator LCYCP

57. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Funded Project Courtesy of Managed Care Network funding LCYCP in collaboration with Now Unlimited will deliver a project designed to support and enhance the Mental Wellbeing of Carers. Three groups. Peer Support in Boston and Skegnes Low Level intervention in Boston and Skegness 8 Week Mindfulness Course

58. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Peer Support Sessions The expertise and knowledge is in the room. The support that people with lived experience can give one another. In a support group, people are able to talk with others who are like themselves - people who truly understand what they're going through and can share the type of practical insights that can only come from first hand experience Research has shown that peer-run groups result in larger social support networks and enhanced self-esteem and social functioning. We will do this through Peer Listening, Peer Education and Peer Role Modelling.

59. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Action based sessions There is considerable evidence that low-intensity interventions can reduce the level of both depression and anxiety. Lead by the members of the groups, what the group want to do. Structured around practical sessions supporting healthy minds and bodies. Typically will include efficacy, coaching, relaxation, employability sessions.

60. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House 8 Week MBSR Programme for Carers Invite expressions of interest Initial assessment interview to determine suitability Baseline assessment Tailored distance – learning course materials including MP3 downloads Weekly telephone mentoring support/monitoring Access to an on-line forum Celebration event Evaluation

61. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House To express an interest and to be kept informed: Marie Betts – 01522 846911 marie@lincscarerspartnership.net Maureen O’ Callaghan - To express an interest and to be kept informed: Marie Betts – 01522 846911 marie@lincscarerspartnership.net Maureen O’ Callaghan - T: 07939845920 E: maureen@nowunlimited.co.uk W: www.nowunlimited.co.uk marie@lincscarerspartnership.net maureen@nowunlimited.co.uk www.nowunlimited.co.uk

62. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Future Challenges Peta Hill Business Manager LCYCP

63. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Keeping in Touch Tel 01522 846911 Like our Page Facebook.com/LincsCarers Follow us @LincsCarers Visit www.lincolnshire.gov.uk/lcycpwww.lincolnshire.gov.uk/lcycp

64. Lincolnshire Carers and Young Carers Partnership Ltd Registered in England No. 08548267 Registered Office: Companies House Afternoon Tea! Carers Short Filming Visit Information Market Place Networking Opportunity Safe Journey Home Thank you for your support