1. Involving our parents and service users

2. FACTS – Who we are? Family Advisory Committee (Temple Street) Established in 2012 Made up of - Parents (9), Advocacy Representatives (2) and Staff (4) Committee meets every 4 to 6 weeks Aim - Improve the patient and family experience. Contact email – FACTS@cuh.ieFACTS@cuh.ie

3. FACTS – What we do? Provide a forum for service users and staff Respond to questions about services and raise issues as appropriate Influence future service planning and development Suggest and involve in service improvements Provide information for parents To be the voice from parent/child perspective

4. I feel that it is important that families have a place to go where their voice is heard where they can influence and shape the care of children in Temple Street hospital” Bernie Priestly “Wanted an engagement experience that was creative and meaningful and would encourage people to come back. As a parent, value the opportunity to have a voice when there are so many other voices around too” Jim Hussey “I wanted our experiences of care of our sick children to help inform and improve care, where needed, for the parents and children who will follow in our footsteps to Temple Street Children’s Hospital” Catherine Rossiter

5. “ Good to be involved with a hospital that listens & has a passion for engagement & values parents & child's voices” Caitriona Sharkey Getting people involved is powerful – enjoy learning how and why we do it. What Temple Street did and continues to do for my family is priceless - this is my chance to give something back“ Caroline Duggan “ Good to be involved with a hospital that listens when coming from a place of advocating for disadvantaged groups” - Susan Webb March 2016

6. Cait O’Tierney, Hygiene Co-ordinator, Susan Webb, FACTS member, Sharon Ryan, Directorate Nurse Manager, One example of involving FACTS members and viewing our hospital from our parents perspective and continue to question and improve our service.

7. Examples - Involving Parents in Temple Street Family Advisory Committee Temple Street Governance and Quality and Patient Safety committee Clinical Governance committee Bereavement Committee Management Hygiene Audits New Children’s Hospital Project  Catering in new hospital  Voice of the Child project

8. FACTS - Examples of Work Feedback from parent perspective on many policies – example Parents accompanying children to Theatre, Code of behaviour, Visiting policy. Prices in canteen – Changes suggested by parents to Catering dept Isolation room signage – involvement in creating Refurbishment – example –Top Flat - parent input to group Patient experience surveys and Comment cards – ideas from parents Hygiene Audits – with Management team ( 5 visits to ward areas ) Transition to adult care – input to Framework Introduction of WiFi – Voice for parents - Minister Varadkar’s visit to hospital 2015 National documents – feedback New Children’s Hospital – input on planning group, branding, and voice of the Child

9. Plans for 2016 Please email suggestions or comments – FACTS@cuh.ie Or submit via Comment card or note to Gráinne Bauer Chair, FACTS Director of Nursing Welcome suggestions from all parents Engaging staff from a child’s/parent’s perspective – i.e attending Nurse Graduation Increase options to welcome feedback from parents – Comments cards, email, or direct note/letter Increase opportunities for the voice of parents/guardians to be heard…