General Disability Measurement in Uganda Focusing on Improvement in Methodology and Concepts used By Nabukhonzo Pamela Uganda Bureau of Statistics

Introduction Population and Housing Censuses CBR Programme Conclusion Disability Measurement in Uganda

Introduction  Population and Housing Censuses remain major source of nation wide Disability Statistics  Regional workshop on disability Statistics in Africa  Land mark in the area of disability measurement

Introduction Population and Housing Censuses CBR Programme Conclusion Disability Measurement in Uganda

Methodology 1991 Census2002 Census 1.Two questionnaires 2.Only Households 1.One questionnaire 2.Complete coverage

Questions Asked 1991 Census Is there anyone who was in the HH on the census night disabled? 2002 Census Does “NAME” have any difficulty in moving, seeing, hearing, speaking or learning, which has lasted or is expected to last 6 months or more?

Definition of Disability 1991 Census Any condition, which prevents a person from living a normal social and working life.

Definition of Disability 2002 Census A person who is limited in the kind of or amount of activities that he or she can do, because of on going difficulty(ies) due to a long-term physical condition or health problem that has lasted 6 months or more. This includes all those difficulties that are expected to last more than 6 months.

Summary 1991 Census  The term “disability” was used in the Global question.  One disability  Prevalence rate of 1.1%

Summary 2002 Census  Included information on rehabilitation measures  The term “disability” was avoided in the global question  Multiple disability(at most 2)  Duration was taken care of.

Introduction Population and Housing Censuses CBR Programme Conclusion Disability Measurement in Uganda

Community Based Rehabilitation Programme Implemented under MGLSD

Weaknesses related to Data collection l Existing gaps in developing specific indicators l Lack of reliable data & information systems l Difficulty to collect comparable data l Assessment forms were too complicated l CBR staff hardly filled these forms l Data from some districts was not correlated and systematized

Data Collection Instruments l Identification, registration & baseline information forms l Assessment, follow up & referral forms l Supervision & monitoring guidelines l Reporting guidelines

Definition of Disability CBR Programme Difficulties/restrictions in performing daily activities leading to failure to participate like other people.

Question asked & Methodology Data collection is mainly be observation of the PWD Questions touch on: Severity Duration Cause All domains of well-being

Environment and participation l Home environment l Accessibility l Nutritional practices l Hygiene of PWD l Waste disposal l Source of water l Cultural beliefs/practices related to PWD

Mapping to ICF l Most of the chapters are not touched at all l At least one component/chapter is touched

Introduction Population and Housing Censuses CBR Programme Conclusion Disability Measurement in Uganda

Conclusion l Nation wide data on disability in Uganda is from censuses l Administrative data collection from CBR will be the only comprehensive source though not nation wide l Issues under question matrix were to a great extent covered in both programmes (census excludes severity, CBR includes it