The Importance of STEVE COMING…AND GOING LIKE NAPHSIS, IT’LL GET YOU…

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 The Importance of STEVE NAPHSIS Past President State and Territorial Exchange of Vital Events A secure electronic messaging system (but NOT like EVVE) Intelligence Reform Good Business Practices

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Intelligence Reform Regs Very rapidly report fact of death to state of birth Flag birth records “deceased” to protect them from fraudulent use For completeness we need inter- jurisdictional exchange (“IJE”) and STEVE

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE Will Speed Things Up Electronic exchange through STEVE can be as often as sending partners want STEVE will send batches of any size, even one record at a time Once a file is in place, STEVE will parse and send it automatically

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 IJE Methods Now - CA California sends notification of about 120,000 deaths/year to birth jurisdictions Each is a plain paper copy of the death certificate 300+ REAMS of paper + postage Secure??? Hardly!

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE is Better Paperless Secure No more batch printing, packaging, postage Huge savings in staff time

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Other Notification Methods Line listings Abstracts Each jurisdiction’s format is different NCHS SDN/VRX – used by too few

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE: One Exchange Method STEVE builds on knowledge gained from NCHS’ SDN/VRX system All events will be sent and received in same format Standard “roster” record layout is posted on NAPHSIS website

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE for Complete Data Files Send data to place of residence Deaths Births Fetal deaths ITOPs Receive data for your jurisdiction’s residents

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE Will Send It All File layouts for exchanging births, deaths, fetal deaths, and ITOPs have been developed and posted Out-of-jurisdiction resident events can also be exchanged in batches of any size or timing Updated/edited replacement records can be sent

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Honor Sending State’s Limitations Each jurisdiction has its own laws and regulations that differ widely By signing IJE Agreement you’re agreeing to use others’ events appropriately Violations may occur, or data completeness may be unnecessarily compromised

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE Manages “Permissions” Sending partners specify their jurisdictions’ limitations on data use when “setting up” STEVE Sending partners may specify data elements to be given to each program STEVE is more detailed and flexible than IJE Agreement “Matrix” of permissions

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 STEVE for Receiving Partners STEVE makes it easy to honor others’ data restrictions Receiving partners will only receive data elements they can use STEVE allows different programs to obtain different data elements in their own “mailboxes”

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 IJE’s Major Challenges Getting information from jurisdictions can be slow, unpredictable, or impossible – STEVE is faster Sending information can be expensive and time consuming – STEVE is cheaper Knowing and honoring others’ data use restrictions can be unbearably complex – STEVE is simpler

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Interne t STEVE is a Web-Based Messaging System S Sending Jurisdiction Receiving Jurisdiction

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 TM of Jurisdiction A Controller Module Internet TM of Jurisdiction B A Controller Module Will House Master Files and Collect Transaction Meta-data

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 IJE File Jurisdictions Will Configure Filters to Designate Content and Recipients of their Exchange Messages

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Natality (2003) Natality (pre-2003) Mortality Roster Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 1. Element Element.. Check all Check none 3. FILE TYPE FILE LAYOUT Vital Records NCHS Programs Requester Internal RECIPIENT 2. Configuring a TM Filter for Exchange with Other Vital Records Jurisdictions 4. 5.

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Natality (2003) Natality (pre-2003) Mortality Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 1. Element Element.. Check all Check none FILE TYPE FILE LAYOUT Vital Records NCHS Programs Requester Internal RECIPIENT 2. Configuring a TM Filter for Exchange with Programs/ Agencies 5.. Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Review PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research Check all Check none PROGRAM TYPE

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Natality (2003) Natality (pre-2003) Mortality Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 1. Element Element.. Check all Check none FILE TYPE FILE LAYOUT Vital Records NCHS Programs Requester Internal RECIPIENT 2. Configuring a TM Filter for Exchange with Internal Programs and Agencies Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Reviews PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research Check all Check none PROGRAM TYPE 4.

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Natality (2003) Natality (pre-2003) Mortality Fetal Death (future formats) 1. Element Element.. Check all Check none 3. FILE TYPE FILE LAYOUT Vital Records NCHS Programs Requester Internal RECIPIENT 2. Configuring a TM Filter for Exchange with NCHS 4. 5.

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Natality (2003) Natality (pre-2003) Mortality Roster Fetal Death ITOP Marriage (future) Divorce (future) Civil Union (future) 1. Element Element.. Check all Check none 3. FILE TYPE FILE LAYOUT Vital Records NCHS Programs Requester Internal RECIPIENT 2. Configuring a TM Filter for a Record or Data Request 4. F:/birth dbf DESTINATION Alabama Alaska American Samoa Arizona Arkansas California Colorado Connecticut Delaware District of Columbia Florida Georgia Hawaii SOURCE

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Receiving TM Vital Records EHDI Immunization Child Support Enforcement Research Exchange Files are Automatically Delivered to Recipient Mailboxes

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Birth Defects Newborn Hearing Child Support Enforcement Health Start Program Immunization Infant Death Reviews PRAMS AIDS Registry Medicaid Enrollment IRB--Approved Research PROGRAM TYPE Vital Records Programs RECIPIENT Configuration of Program Mailboxes Operator User ACCESS CONTROL USERS Jane Doe John Q. Public Paris Hilton Dr. McDreamy MAILBOX SETUP Birth Defects Mailbox Authorized access: P.Hilton Destination ID xxcythol 5. 6.

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Main VR Data Repository Of Sending Jurisdiction Source files Controller Module NCHS TM Sending Jurisdiction’s TM NCHS-reportable vital events Medical coding, other data Out-of-jurisdiction records Receiving Jurisdiction’s TM STEVE Outgoing Messages from Sender Metadata and Updates to profiles and settings

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Main VR Data Repository Of Sending Jurisdiction Controller Module NCHS TM Sending Jurisdiction’s TM Receiving Jurisdiction’s TM STEVE Incoming Messages to Sender MDNs, corrections, Medical coding, other data MDNs Out-of-jurisdiction records Master file profiles and settings Received files

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Current Status of STEVE SMS Awarded Contract Development Q1-Q3 of 2008 Deployment beginning Q4 of 2008 and continuing through 2010 Seeking additional funds to complete development and deployment

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 Preparation – START NOW! Prepare to convert your files into standard IJE format Prepare to convert received records into your own format Consider hardware and software Attend the upcoming STEVE technical break-out session When you’re ready, volunteer your state for roll-out

The Importance of STEVE FROM BIRTH…TO DEATH IT’LL GET YOU (or at least your data)… AND BACK AGAIN!

2008 NAPHSIS Annual Meeting Celebrating 75 Years of Excellence Orlando, Florida June 1–5, 2008 For More Information Check the NAPHSIS website at for updates The NAPHSIS website has standard record layouts in the IJE project area Contact Leesa Shem-Tov at or Jane McKendry at