Data quality of leukaemia experiences in the Netherlands Otto Visser Amsterdam Cancer Registry

Myeloid neoplasms WHO Classification 4th edition Leukaemia Myeloproliferative neoplasms CML, typical Chronic neutrophilic leukaemia Chronic eosinophilic leukaemia, NOS Myeloid and lymphoid neoplasms with eosinophelia Myelodysplastic/myeloproliferative neoplasms CML, atypical CMML JMML Myelodysplastic syndromes - Acute myeloid leukaemia Many specific types Acute leukaemias of ambiguous lineage Acute undifferentiated leukaemia Mixed phenotype acute leukaemia

Lymphoid neoplasms WHO Classification 4th edition Leukaemia Precursor lymphoid neoplasms B-ALL T-ALL Mature B-cell neoplasms CLL B-PLL Hairy cell leukaemia (Burkitt leukaemia) Mature T-cell and NK-cell neoplasms T-PLL T-LGL Aggressive NK-cell leukaemia Adult T-cell leukaemia Hodgkin lymphoma - Histiocytic and dendritic cell neoplasms Post-transplant lymphoproliferative disorders

Aspecific codes & diagnoses Diagnosis 9800 (chronic) Leukaemia, NOS 9801 Acute leukaemia, NOS 9820 Lymphoid leukaemia, NOS 9832 PLL, NOS 9860 Myeloid leukaemia, NOS 9863 CML, NOS 4

Chronic myeloid leukaemia codes in ICD-O-3: CML, NOS M9863 typical CML, BCR-ABL positive M9875 atypical CML, BCR-ABL negative M9876

Results of quality checks of CML, nos Amsterdam Cancer Registry, 2001-2007 In total 101 patients were checked: 4 cases: other diagnosis (1 AML, 3 CMML) 63 cases: typical CML 15 cases: atypical CML 19 cases: no further specification possible (no genetics available), 3 patients < 75, 16 patients 75 or older

Diagnosis of CML Amsterdam Cancer Registry, 2001-2007

Survival CML: <75 year

Survival CML: 75+

Unspecified leukaemia codes Netherlands Cancer Registry, 2001-2007

Unspecified AML codes Netherlands Cancer Registry, 2001-2007