CTxCPCRN Central Texas Cancer Prevention and Control Research Network Kick Off Grantee Meeting Atlanta, Georgia October 15-16, 2009

CTxCPCRN Team School of Rural Public Health ▫Marcia Ory ▫Craig Blakely ▫Brian Colwell ▫Yan Hong ▫Meghan Wernicke (Program Director) College of Medicine and Scott & White Healthcare ▫Angie Hochhalter ▫Jana Reynolds Texas AgriLife Extension ▫Ninfa Peña-Purcell ▫Carol Rice

CTxCPCRN Aims Participate in CPCRN collaborative projects Work with stakeholders to advance CBPR around cancer prevention and control Disseminate evidence-based cancer prevention and control interventions in the community, state, and national networks Develop interventions to promote healthy behavior among cancer survivors

Resources We Bring to the Network Interdisciplinary team Experience modifying cancer risk behaviors Strong commitment to CBPR principles Access to communities in our catchment area Affiliation with system of healthcare providers AgriLife as a dissemination arm

Idea for Cross-Site Work on Survivorship Establish or participate in work group Review survivorship literature on care transitions and promotion of healthy lifestyles Conduct focus groups with survivors to learn more about type of interventions they would like Develop and pilot cross-site intervention

Our Interests in Survivorship The number of people surviving cancer is increasing; 9.8 million cancer survivors in U.S. Increased risk for secondary cancers and other diseases Evidence of nonadherence to health behavior recommendations Healthcare transition from specialty to primary care

Options for Focus Group Study Identify needs of survivors and their families across the country related to ▫Connecting with community resources ▫Social support ▫Mental and physical health ▫Promoting healthy behavior ▫Transitions in healthcare ▫Other needs

Intervention Possibilities Help with goal setting to adhere to health behavior recommendations Ways to ease the transition back from specialist to primary care physician

Intervention Design Target Population (n=150): ▫Adult (>18 yrs) cancer survivors who have completed treatment in the past year ▫Adult family members or other support persons Recruitment:  Healthcare settings  Texas AgriLife Extension  Area Agencies on Aging  Other CPCRN partners

Intervention Components Leaders: ▫Scott & White and/or SRPH staff trained by program developers ▫Will eventually be peer led by other cancer survivors from community Duration: ▫Initial 2-3 hour workshop with possible follow-up Setting: ▫Clinics, community centers, churches, etc. Format: ▫Limited didactic presentation ▫Skill building through interactive activities ▫Peer sharing

Initial Workshop Content To be refined based on participant feedback Based on NCI Facing Forward series Engaging primary care physicians, supporters and community resources Goal setting Personalized survivorship plan

Proposed Pilot Study Outcomes Feasibility, processes of implementation Changes in self-reported outcomes six months after the workshop ▫Self-efficacy for chronic disease self-management ▫Medication adherence ▫Health-related quality of life ▫Physical activity frequency/intensity ▫Patient activation ▫Adherence to recommended screening

Possible Funding Sources Cancer Prevention and Research Institute of Texas (CPRIT) Prevention Grants ▫Evidence-Based Prevention Programs and Services ▫Health Promotion, Public Education, Outreach Programs Lance Armstrong Foundation Research Program

CTxCPCRN Central Texas Cancer Prevention and Control Research Network Marcia Ory: Angie Hochhalter: Meghan Wernicke: