IL NET Independent Living Research Utilization-ILRU National Council on Independent Living-NCIL 1

ILRU Independent Living Research Utilization 2323 S. Shepherd, Suite 1000 Houston, Texas

Olmstead, Advocacy and Community Using IL NET’s Training Curriculum Oklahoma City, Oklahoma August 10 and 11, 2005 Independent Living Research Utilization National Council on Independent Living Utah State University Center for Persons with Disabilities The Pacer Center 3

Quote by Justin Dart  What does this quote mean to you?  How does it affect you?  Why do you want to learn about advocacy?  What is your purpose or goal to help someone? 4 Module 1/page 1

Writing your goal will help remind you of the reason you are learning about advocacy, and will help you understand how to apply critical principles in these lessons. 5 Module 1/page 1

Sample goals:  Assist “Joe” in obtaining transportation in the community to go to work.  Help “Jane” in her efforts to be integrated into the regular education classrooms at the local high school.  Find the services necessary to make it possible for “Russ” to leave a nursing home and live in the community. 6 Module 1/page 1

Definitions policy: A set of laws and/or rules that are established by an authoritative body. public policy: A set of laws and rules made by a lawmaking body or a government agency. 7 Module 1/page 2

Definitions (continued) inexpedient: Not suitable or advisable. core precept says: 1. Disability is a natural part of the human experience. 2. The approach is to fix the environment; not the individual. 8 Module 1/page 2

Definitions (continued) methods of administration: How laws are implemented or carried out to be consistent with their stated principles. 9 Module 1/page 2

Objectives  Understand the history of institutionalization of people with disabilities in your state and community.  Determine how the “old paradigm” of beliefs about people with disabilities affected policies in the past to understand how the beliefs need to be changed for the future. 10 Module 1/page 2

Objectives (continued)  Learn about the “core precept” and four goals of the “new paradigm” of disability policy.  Know how to ask questions about the institutions and laws to see if their principles meet the standards of the core precept and goals, and apply this knowledge to your own advocacy plan. 11 Module 1/page 2

History and Old Paradigm of Disability Policy  A common set of principles, derived from sound policies, to use as a framework for advocating.  The historical perspectives of policies and the importance of understanding them in order to make changes for the future.  The old paradigm of disability policy and some examples. 12 Module 1/page 3

Application and Discussion  (Remind participants to be thinking about their advocacy goals.)  Name an example of an institution for people with disabilities in your state. Do you know the history? Who originally advocated for starting it?  What groups or individuals are advocating for maintaining the institution(s) in your state today?  Do you know the opinions of agency officials or lawmakers about maintaining institutions? Who are the officials and what are their opinions? 13 Module 1/page 3

Wisconsin Supreme Court Decision  Demonstrates some of the old paradigms for making policies.  Can you see evidence of the “old paradigm” in state programs or policies?  Are nursing homes the same as institutions?  Is there a particular person in an institution, nursing home, or the community that you plan to advocate for?  Write down your specific advocacy goal 14 Module 1/page 4

New Paradigm of Disability Policy  Disability is a natural part of the human experience.  The approach is to fix the environment, not the individual.  Communicate the core precept to policymakers. 15 Module 1/page 4

The Four Goals of Disability Policy: 1. Equality of Opportunity. 2. Full Participation. 3. Independent Living. 4. Economic Self-Sufficiency. 16 Module 1/page 4

Module 1 ‑ Section 2 The Core Precept and Goal Number One: Equality of Opportunity 17 Module 1/page 5

Module 1 ‑ Section 3 Equality of Opportunity Three Components a. Individualization. b. Inclusion and Integration. c. Effective and Meaningful Opportunity to Participate. 18 Module 1/page 5

Module 1 ‑ Section 3 Goal Two: Full Participation “Individual” and “Systems” components 19 Module 1/page 6

Module 1 ‑ Section 3 Goal Three: Independent Living A legitimate outcome of public policy 20 Module 1/page 7

Module 1 ‑ Section 3 Goal Four: Economic Self-Sufficiency Support for people with disabilities to work 21 Module 1/page 8

The “Checklist” Methods of Administration Advocacy Plan 22 Module 1/page 8