The Johns Hopkins Low Vision Service Jim Deremeik Johns Hopkins Vision Research and Rehabilitation Center Baltimore, Maryland

Organizational Structure Johns Hopkins School of Medicine Department of Ophthalmology Branch of the Johns Hopkins Vision Research and Rehabilitation Center Research division endowed by the Multiple District 22 of the Lions

Goals Patient Care Research Teaching

Mission Statement Wilmer Eye Clinic To use and develop the finest scientific evidence to promote improved ophthalmic care and the reduction of visual disability in a collaborative environment that combines compassionate patient care, innovative research and the training of future leaders in ophthalmology and visual sciences.

Johns Hopkins Hospital Downtown Baltimore, Maryland Satellite branches (5) of Wilmer Eye Institute geographically located in metropolitan Baltimore Low Vision clinic facility located in JHH with satellite branch at Greenspring Station

Staffing FT Clinical Director: Dr. Judy Goldstein 1 PT clinician 2 technicians PRN 2 administrative assistants 1 FT CLVT occupational therapist 1 PT CLVT

Clinic Operations Financially supported by patient fees No clinic endowment 46 weeks / year 3 – 4 days per week 8:15 – 4:30 daily Current 3 month wait time for new patient both locales

Geographic Area Served Metropolitan Baltimore which comprises Baltimore City and the five surrounding counties Patients in the Mid Atlantic corridor of the United States – day trip to Hopkins Primary care provided by ophthalmologist at Wilmer with patient living in the United States International patients – declined since 9/11

Patient Profile Age range 5 years to – 75 ARMD, glaucoma, DR, neuro (stroke), hereditary eye disease, etc. Accompanied by spouse or family member Frequently no prior low vision rehabilitation services

Patient Statistics 2007 Total patient visits 1320 New patients 886 –JHH711 –Greenspring175 Return patients 434 –JHH175 –Greenspring151

Follow Up Services Johns Hopkins clinic Home visit by OT working for Hopkins Home visit by independent OT State rehab services VA Independent contractor –International patients

Equipment Provided to patient through clinic after appropriate evaluation and training. Equipment dispensed through service Referral to DORS for assistance CCTV sales are referred to vendor in the community for home installation, sale and follow up support

Recent trends Increasing number of referrals from the Department of Physical Medicine and Rehabilitation Patients seeking service closer to initial diagnosis. ARMD patients on lucentis treatment example of this type of patient.

Research Programs Patients have participated in the development and validation of Activity Inventory which is tool to assess patient needs. Clinic is one of twelve sites of LVROS - usual care study. Clinic is one of twelve planned LVDRS sites for RCT. LVDRS will measure impact of OT, and Orientation and Mobility service. This trial will also measure impact low vision devices will have upon low vision rehabilitation outcomes.

Future changes Fellowship program July 1, June 30, PT clinicians will be added this coming fiscal year to meet increased demand of the service

Additional Information Contact Jim Deremeik