Www.medicalhomeportal.org A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD.

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Presentation transcript:

A National Resource for Pediatricians and Parents Caring for CSHCN Chuck Norlin, MD Lynne Kerr, MD, PhD Al Romeo, RN, PhD

I have no financial interests to disclose

To describe a web-based resource to support you, your patients, and their families in the medical home

Just another day at the office (in Utah and, hopefully soon, beyond)…

Ramone, your five-year old patient with Prader-Willi syndrome, vomited twice this morning but doesn't really look sick. Should we see him today?

The health department called about Jessica, a 5-day old with a positive newborn screen for methylmalonic acidemia. Now what do we do?

Your first patient, a 5 year old, is new to the practice, coming in for a well child check and the schedule says he has fragile X. Is there anything special you should know or do?

Juanita, is here with her son who was recently diagnosed with autism. Having read a lot of confusing stuff on the web, she wants to know how to find reliable information about the diagnosis, planning for his schooling, and how to help his siblings deal with this.

After a long hospital stay, Tiffany just went home with a new tracheostomy and the home care company wants orders and a letter to support the need for an in-line humidifier.

Ramone, your five-year old patient with Prader-Willi syndrome, vomited twice this morning but doesn't really look sick. Should we see him today?

The health department called about Jessica, a 5-day old with a positive newborn screen for methylmalonic acidemia. Now what do we do?

Your first patient, a 5 year old, is new to the practice, coming in for a well child check and the schedule says he has fragile X. Is there anything special you should know or do?

Juanita, is here with her son who was recently diagnosed with autism. Having read a lot of confusing stuff on the web, she wants to know how to find reliable information about the diagnosis, planning for his schooling, and how to help his siblings deal with this.

After a long hospital stay, Tiffany just went home with a new tracheostomy and the home care company wants orders and a letter to support the need for an in-line humidifier.

Wanted Users Feedback and Ideas Partners in other states/regions Authors Reviewers

Supported by th e National Library of Medicine #G08 LM A2 (3/2006-2/2009)