EHDI Information Management Les R. Schmeltz, MS, CCC-A Iowa Les R. Schmeltz, MS, CCC-A Iowa

Looks like a simple, linear process: Collect hospital information: Identify hearing losses Refer for early intervention services Collect and report statistics

Good work, but I think we might need just a little more detail right here. EHDI Data and Patient Information Management Then a miracle occurs out Start

Joint Committee on Infant Hearing 2000 Position Statement Uniform state registries and national information databases Use of information generated

Uses of Information Management: To improve services to infants and their families To assess the quality of screening, evaluation and intervention To facilitate collection of data on demographics of neonatal and infant hearing loss

Improving Services to Infants and Their Families Multiple system components must be integrated Each service provider participates Tracking and follow-up Monitoring of outcomes

Integrating Multiple System Components Seamless system to infants and their families Provider participation

Service Provider Participation Hospitals and other birthing facilities Primary care providers Service providers Early intervention and educational facilities

Tracking and Follow-Up Timely and accurate description of services provided to each infant Documents recommendations for follow-up and referral to other providers Tracking

Monitoring of Outcomes Effective information management used to promote program measurement and accountability Factors contributing to delay in providing EHDI services Measurement of quality indicators

Effective Information Management Capable of aggregating data Provides evaluation data Centralized

Information Collection Federal to state level State to hospital & practitioner level Hospital level

JCIH Quality Benchmarks & Quality Indicators Benchmarks Quality Indicators Review process

CDC Pilot National Data Set Number of live births Number screened prior to discharge Number screened before 1 month of age Total number referred from initial or multiple screenings for audiologic evaluation

CDC Pilot National Data Set Number with diagnostic audiological evaluation by 3 months of age Number of children with permanent congenital hearing loss aged 0-7

CDC Pilot National Data Set Hearing loss must be classified by type, degree and laterality Average/median age in months of diagnosis of hearing loss Number of infants receiving intervention by 6 months of age

Handouts: JCIH Benchmarks and Quality Indicators CDC Data Set Items