Cathy Levine Executive Director UHCAN Ohio Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference Why Should Consumer Advocates Care About Transparency? Really, do you want them deciding what’s good for us? Health care costs too much US health care quality/outcomes below other nations - disparities If you don’t measure it, you don’t know what to fix Current cost controls disproportionately fall on backs of consumers – especially highest needs and lowest income Payers/employers, providers, policymakers doing reforms Should consumers have a voice in reshaping payment and delivery of health care?

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference Case Example: Ohio Governor Kasich, 2011, creates Office of Health Transformation Website for “greater transparency” Regular reports on what they are doing – little or no data Much alignment happening in private sector initiatives, with OHT input – no consumer involvement Governor’s Advisory Council on Payment Reform - ceremonial Major decisions being made behind closed doors

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference What We’ve Done Successfully in Past Established broad, diverse coalitions for organized consumer voice United around principles Developed recommendations Supported administrative, legislative proposals when aligned Building relationships with stakeholder groups Built consumer voice in new models of care Patient Centered Medical Homes Integrated Care Demonstration for Dually Eligible Ohioans Local Initiatives, e.g. Health Collaborative of Greater Cincinnati “Make the Right Call” – education campaign

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference Successes Thus Far Seat on Ieadership body of Ohio Patient Centered Primary Care Collaborative Two “Learning Centers” focus on Consumer Engagement Seat on Gov’s Council on Payment Reform Requirement in Ohio’s integrated care demonstration that MCOs must have consumer advisory councils tied to governance Foot in the door

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference What You Can Do – Build Campaign Form policy team of consumer advocates Find state-based expert help – public employees/retirees unions, think tanks, universities Find out what’s going on – build on what’s underway Form coalition Organize around Payment Reform and models of care Principles Issue reports and develop proposals from broad coalitions Build strategic alliances on specific issues Wage grassroots campaign w/stories

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference Resources Catalyst for Payment Reform – initiatives/price-transparency initiatives/price-transparency National Conference of State Legislatures: health-costs.aspx health-costs.aspx CMS.Gov- state innovation models

Consumer Advocate Beginners’ Guide to Transparency: Using Data to Win Policy Change Cathy Levine, Families USA Conference Contact Me! Cathy Levine UHCAN Ohio x222 Find us on: UHCAN Ohio 370 S. 5th St Suite G3 Columbus, OH 43125