1 EUROPA DONNA – The European Breast Cancer Coalition Susan Knox, Executive Director KEEPING BREAST CANCER ON THE EUROPEAN HEALTH AGENDA

2 Ensure that all European Women have Access to Accurate Information and Quality Screening, Diagnosis and Treatment

3 EUROPA DONNA Ten Goals To promote the dissemination and exchange of factual, up-to- date information on breast cancer throughout Europe To promote breast awareness To emphasise the need for appropriate screening and early detection To campaign for the provision of optimum treatment To ensure provision of quality supportive care throughout and after treatment To advocate appropriate training for health professionals To acknowledge good practice and promote its development To demand regular quality assessment of medical equipment To ensure that all women understand fully any proposed treatment options, including entry into clinical trials and their right to a second opinion To promote the advancement of breast cancer research

4 34 Member Countries Austria Belgium Bulgaria Croatia Cyprus Czech Republic Denmark Estonia France Germany Greece Hungary Iceland Ireland Israel Italy Lithuania Luxembourg Malta Monaco The Netherlands Norway Poland Portugal Romania Russia Serbia and Montenegro Slovenia Spain Sweden Switzerland Turkey UK Ukraine

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6 EUROPA DONNA Strength European advocacy organisation with European strategy and goals + Extensive network of survivors working at national level, ED fora SIGNIFICANT IMPACT ON EUROPEAN INSTITUTIONS AND NATIONAL HEALTH SERVICES

7 What Are We Lobbying For? Screening according to European Mammography Screening Guidelines Specialist Breast Clinics according to EUSOMA Guidelines National breast cancer registries More resources for research

8 Steps toward a Resolution EUROPA DONNA gives 1st Eur. Parliament Reception (2000) Submission of Views to EC on Setting up European Health Forum (2001) European Parliamentary Group on Breast Cancer Formed EPGBC (2001) with EUROPA DONNA as Secretariat EUROPA DONNA invited to join European Health Forum (2001) Exhibition and reception on Breast Cancer across the EU (collaboration w/ EBCN, EORTC, EUSOMA, ENCR, BIG) (2002) European Patients Forum – ED on Exec. Comm. (2002) First Public Hearing on Breast Cancer at Parliament to prepare Breast Cancer Report (2002) STOA (research workshop) meeting - Brussels to provide more info for Parliament Report (2003) Report drafted in Women’s Committee - Karin Jöns MEP Rapporteur (2003)

9 Resolution voted on and passed by Parliament June 2003 (Historic First Vote)

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11 Other 2003 Milestones Commission Screening recommendations published European Code against Cancer revised

and Beyond European Parliamentary Group on Breast Cancer (EPGBC) EPGBC.ORG Website Launch 1st Meeting 12 October 2004 European Parliament Breast Cancer Resolution Implementation at national level ED Workshops, Training and Publications EBCC4 Individual National Initiatives European Health Forum; European Patients Forum

13 Winning The Battle Means Keeping Our Focus Keeping breast cancer on the political agenda at all levels – at local and national levels and at European level Involving all parties-women, health professionals, policy makers, NGO’s, industry, media and government

14 Via G Previati 12, Milan, Italy