ISB Notice and preparing for the implementation of the new IAPT Data Standard Shaun Crowe Mental Health, Employment and IAPT Mental Health Collaborative 13 th September 2011

Information Standard Board Notice Currently Since Sept 2008, IAPT services submit to DH every 3 months data on a number of high level KPIs to measure against national commitments London regional IAPT team has a role in data verification From April 2012 New IAPT Data Standard mandated for all services Improve patient level information through monthly returns IAPT services required to submit full data extract of 50 data items per patient covering demographics, diagnosis, type of treatment and pre & post treatment scores on all measures (not just PHQ & GAD). Central processing Reports generated for local services IAPT data more transparent – accessible to general public

Rationale behind new IAPT Data Standard Provide definitive framework to recording patient outcome measures Consistent approach to recording patient recovery and monitoring Builds on existing IAPT Dataset – with refinements to certain data items and new fields added Provide a more comprehensive record of the patient experience Data can be further analysed to monitor compliance with Equalities legislation Not forgetting meeting the information needs of service planners (commissioners; service providers and policy)

Data items IAPT will record Patient details: Personal demographic data like age, faith, gender, ethnicity, employment status, sexuality. Ensure equality of access in line with legislation. Disability: Users’ of IAPT may have multiple disabilities, or they may have none. Fields in place to ensure that co-morbid physical or mental health disability information is recorded early in pathway. Referral: Summary information like provisional diagnosis, to inform the clinical approach, and key dates to calculate waiting times. Appointment: Captures details of every contact with the patient (face to face, telephone etc). Outcome scores and key dates recorded to measure recovery rates. This includes treatment type to monitor NICE compliance. Clinical outcomes measures include symptoms, social and occupational functioning.

Benefits to commissioners Demonstrate equity of provision of service The pattern of durations of interventions and the frequency of multi-step interventions The emerging pattern of outcomes, including the variability of this within and between services.

Implementation Messages Make data collection integral to the management of patient pathways Use data as a clinical management tool to aid recovery not as a management ‘bolt-on’ Do not add to measurement burden unnecessarily

Reporting IAPT Data ISB have approved the IAPT application. Approval includes permission from the National Information Governance Board to flow patient identifiable data to a central repository for reporting purposes. The Review of Central Returns has also endorsed the application. IAPT reports will be published on the NHS Information Centre website Allowing for benchmarking; more accessible information; and public comparison of the range of interventions and outcomes achieved by services

London Implementation support Central reporting system went live in Sept 2011 Services encouraged to early adopt IAPT Data Standard from Sept 2011 in preparation for April 2012 There will be some parallel running between existing and new processes in terms of data recording Services will be expected to continue to return KPIs throughout 2011/12 via the existing Omnibus system. This collection will stop at the end of Q Clinical Leads Network – 4 th October 1-4pm at MWB dedicated to support services with the data migration process

Supporting the migration process It is important to emphasise that the provision of a patient- level reporting system will have significant impact on local information management practices. DH and NHS Information Centre will provide guidance material and support for services However, each service will be required to extract the full IAPT data standard and export to the central data collection system – introduction and maintenance will require considerable local service resource This will involve a number of stages of processing including strict validation checks. These are necessary to ensure data is managed safely and to drive data quality improvement.

User Identifiable Data Data will flow centrally, however, reports will be aggregated and it will not be possible to identify a user from reports. It is a legal responsibility to inform users that their data will be used for secondary purposes and to offer an option to ‘opt out’. DH have included an example information leaflet in the new data handbook, this may be printed and distributed to users. Alternatively services may prefer to incorporate the information into existing users leaflets.

Essential Reading The IAPT Data Handbook (v2.0.1 June 2011) contains detailed information on the value and importance of IAPT Data collection. Measurement tools are contained in the separate appendices file The documents are free to download from

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