NDAU Database Yevgeniy (Eugene) Statnikov NDAU Data Manager

Data Capture Neonatal.Net THANK YOU!

Receive Data: NHS Server at NDAU Review Data: NDAU Transfer to NDAU: NHS Connection Extraction: Clevermed Storage: Clevermed Server Overview Data Capture on Neonatal Unit: Neonatal.Net Reporting: NDAU/NNAP Create Database: NDAU Database

Data Capture Neonatal.Net  Static items – recorded once (1 st admission) Name, NHS number, gestational age, birthweight  Episodic items – recorded at each episode of care Admission and discharge time, infection, diagnoses  Daily items – recorded at each day of care Enteral feeding today, respiratory care today

Storage  Securely uploaded and held on NHS Server (Clevermed, Ltd)  Data are truly ‘raw’ NHS Server

Extraction  Information for neonatal units with Caldicott Guardian permission only  All patient identifiers removed No names or addresses given NHS numbers encrypted All dates (including date of birth) converted into minutes Clevermed

Transfer  Data encrypted  Transferred via NHS connection  Data received and held on NHS server at NDAU NHS Connection

Review Data  Examine the data  Completeness Gestational age for all babies Infection form: Sample recorded as taken but no pathogen results recorded thereafter Dataset Incomplete data entry NNAP AUDIT

Create NDAU Database  Assign numeric equivalents to frequently occurring free text items Enteral feeding: (Formula name) → ‘Formula’  Assign numeric equivalents to string items Gender: ‘Female’ → ‘0’ / ‘Male’ → ’1’  Remove duplicate items If Admission Time of Episode 2 is before Discharge Time of Episode 1 then all days of care in Episode 1 will be duplicated in Episode 2 NDAU Database Inaccurate time entry

Create NDAU Database Neonatal.Net  Static items – recorded once (1 st admission) Name, NHS number, gestational age, birthweight  Episodic items – recorded at each episode of care Admission and discharge time, infection, diagnoses  Daily items – recorded at each day of care Enteral feeding today, respiratory care today

Create NDAU Database  Link static data items to episodic and daily items to create a dataset  Derive variables ROP data for NNAP Episodic available in the following Neonatal.Net forms : Daily-details form, Ad-hoc ROP form, Discharge summary, Clinical summary of stay Infection data for NNAP Episodic available in the following Neonatal.Net forms: Daily-details form, Ad-hoc Infection form, Discharge summary, Clinical summary of stay Data entered in multiple locations NNAP AUDIT ITEMS

Deriving data items: ROP Ad hoc ROP form Daily details Clinical summary of stay Discharge diagnosis, Principal diagnosis NNAP

Deriving ROP Ad hoc ROP form Daily details

Reporting: Index of Multiple Deprivation

Reporting: Breast Feeding by Network of Booking

Summary  Thank you for data submission  Help improve neonatal care and baby outcomes through audit  Audit requires high quality data Completeness Accuracy  Raw data Daily clinical records

Acknowledgements All neonatal units contributing to the NDAU NDAU Team NDAU Steering Board Jane Abbott (BLISS)Jacquie Kemp Prof. Peter BrocklehurstProf. Azeem Majeed Prof. Kate CosteloeProf. Neena Modi Prof. Liz DraperProf. Andrew Wilkinson Imperial College London Academic Neonatal Medicine Unit

Reporting: Completeness of BAPM Data Items  AdmitUnitCode (BAPM-Item 1 Name of Hospital)  DeprivationScore (Derived from BAPM-Item 3 Postcode of mother’s residence at time of birth)  IntendedPlaceofDelivery (BAPM-Item 4:Planned place of delivery at booking)  PlaceofBirth (BAPM – Item 5 Place of Birth)  AnonPatientId (Derived from BAPM-Item 6 Baby’s NHS Number)  AdmitFromUnitCode (BAPM – Item 9: Source of admission to unit)  AdmissionMonth/AdmissionTime (BAPM – Item’s 10 and 11 Date and Time of Admission)  Birthweight (BAPM Item 12)  GAWeeks (BAPM Item 13: best estimate of gestational age at delivery)  Gender (BAPM Item 14)  MultipleTotal ( BAPM Item 15: Number of fetuses)  MultipleIndicator (BAPM Item 16: Birth Order)  SteroidsGiven (BAPM Item 17: Antenatal steroids)  DischargeTime (BAPM Item 18)  DischargeStatus (BAPM Item 20: Discharge or Transfer destination)  ChestDrain/Tracheostomy (BAPM Item 27: Air leak requiring drainage)  ROPSurgery (BAPM Item 29: Therapy for retinopathy of prematurity)  VPShunt (BAPM Item 32: Surgical procedures as a result of post haemorrhagic hydrocephalus)  PDASurgery (BAPM Item 33: Surgery for PDA)  NECSurgery (BAPM Item 34: Surgery for NEC)  RespiratorySupport (BAPM Item 35: Days when an endotracheal tube is in situ/ Item 36: Days on CPAP)  CareLevel (BAPM Item 38: Number of IC days/Item 39: Number of HDC days/Item 40: Number of special care days)

Data entered in multiple locations: NEC Suspected NEC form Daily details Clinical summary of stay Discharge diagnosis, Principal diagnosis